akiko

I have taken afinitor 10mg 1 x day for 2.5 months, and I can say that my issues have been increased bowel movements ( 7 to 8 a day),not so much diareha but runny and almost chalk like coloring and the most annoying and painful is the cramping associated with the bowel movements, and I also lost 20lbs in 2 months, I just stopped taking it 7 days ago on my own just to see if there are any changes, came back down to having 2 to 3 bowel movements and gained back 4 lbs in a weeks time, have to see doctor next week and discuss other options. Let me know if you have any side effects, I would be curious to know

I too had a sarcoma-located right shoulder. In most places the chemo regime for sarcomas is an inpatient therapy usually over the course of 4 days/3 nights. I happened to be able to go through treatment at an infusion center and was sent home on an overnight pump for the adriamycin for three nights each cycle. Instead of sitting in an infusion chair all day I was given a room since I was there between 7 - 8 hours. Also, I became seriously neutropenic, it's a wonder I never got sick.
Good luck, praying for minimal side effects for you. Let me know if you have any questions.

So sweet :-) Thank you so much :-)

Everyone pretty much answered for you. Sending well wishes your way. :)

Hi
How are you feeling? Hope you are feeling well.
It would be great if you can introduce Nana san to me.
Thank you.

Hi Makiko san
I have connected with Nana san. Both of you are so great and courageous :-) Excited to get to know both of you.

yes - according to my Japanese colleagues (doctors). From what we understand based on the limited sampling (n=2 docs, so please take this as one option) and a peer-reviewed journal, Taxotere doing was 20-35% less.
Also my current regimen, TCH (Taxotere-Carboplatin-Herceptin) is not widely used there due to the worse side-effects than others. I can send you more info, if you wish to exchange email.

hope you are not having a constellation of side-effects like me.

hugs,

cranburymom, makiko