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111 Goodwill
- 5 Followers
- 4 Following
babylady317
Indianapolis, IN
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Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma > Triple-Negative Breast CancerPatient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: 12 months ago, Female





Wall Post 11 days ago
Littlehouse wrote on babylady317's wall
Just checking in to see how you were doing. Started my radiation today. Wasnt so bad. Hope it stays that way. Hope all is well with you.
New Follow 3 months ago
babylady317
is following Chemo ended in Oct, radiation in Dec, now new side effects ? Has anyone else experienced this?
Question 3 months ago
babylady317 posted a questionBreast Cancer
Chemo ended in Oct, radiation in Dec, now new side effects ? Has anyone else experienced this?
Answered Question 3 months ago
Keephopealive answered
You can get neuropathy, the feet/hand tingling. I was told you can get side effects years down the road from chemo and radiation and surgery. The fun never ends.
I have had chemo 3 x in my life...cisplatin, 5FU, and taxol and kept acrylic nails each time without any trouble...I was soooo happy. My big nail turned dark bluish this last round of chemo and I asked the nurse but she was sure it was not the chemo, looked more bruised. I always pedicures too but due to swollen legs my daughter does it at home for me.
Answered Question 3 months ago
babylady317 answered
Thanks so much everyone for you posts. It always helps knowing you are not alone in the journey we cancer patients follow !
Answered Question 2 months ago
dollyrose answered
After 4th Taxol, nail issue began with pain under toenail and then partial separation from nail bed. Also started with red skin spots on arms where darker brown sun spots had been. ???
Wall Post 4 months ago
DaveWaz wrote on babylady317's wall
Hi babylady,
Just checking in to see how things are going. Please don't hesitate to reach out if/when you need us. We're here for you, as is the rest of the network.
Comment 4 months ago
babylady317
Thank you for asking ! Am doing fine, getting stronger every couple of days. My oncologist asked me to participate in Clinical trials with the diabetes drug Metformin. I do not have diabetes but they have found it helps 40 % of triple negatives because it protects the cells. I am delighted to do something to help with research.
Comment 4 months ago
DaveWaz
Good to hear from you and it sounds like things are moving in the right direction. We're so grateful that you are part of our network.
Wall Post 4 months ago
Littlehouse wrote on babylady317's wall
I'm also a triple negative. I'm getting ready for my 3rd treatment. Thats my 1/2 way point. Will finish chemo at end of March. Then I will have radiation on my right breast due to surgery.
Comment 4 months ago
babylady317
Good Luck and let me know if I can answer questions for you !
Experience 4 months ago
babylady317
Procedure or Surgery (Lumpectomy)
Experience 4 months ago
babylady317
Oh No (Diagnosed): Since my Mother died from breast cancer many years ago I always feared I would one day have it. She had 6 other siblings and they all had cancer but cancer is not what took all of them in the end. I saw the tumor during my mammogram and said WHAT is that. Then the waiting was the worst. When Dr called to say MALIGNANT it seemed surreal. Often, it still does. I am thankful it has not been a physically painful experience.
I always prayed I would live to raise my sons unlike my mother who died when I was 9 years old and fortunately those prayers were answered.I am so thankful for all the advances in diagnosis and treatment since my mothers day. I am thinking of having BRAC test to see if I carry genetic mutation. Most triple negative patients do.
New Follow 4 months ago
babylady317
is following mcteach
Wall Post 4 months ago
babylady317 wrote on indysongbird's wall
Oh my ! Those early days were so difficult for me. I could not comprehend what the Dr was telling me, I was like in shock. I hope you can take someone with you or record on your phone, iPad etc what Dr says. It will get better for you. I went to Community North hospital and cancer center and they were wonderful. At St V I hope they have navigator for you. mine was an oncology nurse that was a liaison between Dr and patient. She was WONDERFUL ! She told me how everything would feel, what to expect. I got the binder that someone else mentioned on here and it was like a bible for me. Helps to have organization I think.
Wall Post 4 months ago
babylady317 wrote on kpollok11's wall
Hello, It sounds like we both have similar diagnosis and were diagnosed this summer. If you want to compare let me know. Good luck.
New Follow 4 months ago
babylady317
is following kpollok11
New Follow 4 months ago
babylady317
is following Is there a category for triple negative breast cancer on here that anyone knows of ? Thank you
Question 4 months ago
babylady317 posted a questionBreast Cancer
Is there a category for triple negative breast cancer on here that anyone knows of ? Thank you
Answered Question 4 months ago
KarenG_WN answered
Hi babylady,
Thanks so much for your question. I saw that you were able to register your breast cancer diagnosis as triple-negative. Good job on getting that done!
Now, when you are on your WhatNext "Home" page, on the right side you will see a box that says "Find Peers." These people who we recommend to you are closest to your diagnosis. We have several women with triple-negative on WhatNext, so these should be the people who you will see first. You can look at their journeys and "follow" anyone you choose by clicking "follow" on their page. This way, it cuts down the noise by enabling you to see information of people who are most relevant to you.
If you are interested in searching others with different diagnoses, you can go to the "People" page, and use the search tools on the left hand side of the page.
I hope this helps. If not, please let me know what else you need.
Thank you for being here.
Best,
Karen
Answered Question 4 months ago
babylady317 answered
Thank you. This is a great site ! I have told others about it. It always helps me to have others to "talk" to about all of this.
Answered Question 4 months ago
KarenG_WN answered
Thank you for the kind words, and for helping to spread the word! If you ever have any ideas for making the site more useful please feel free to email me at kareng (at) whatnext (dot) com.
We support you!!!
New Follow 4 months ago
babylady317
is following indysongbird
Wall Post 4 months ago
babylady317 wrote on indysongbird's wall
Hi, I sent you an email so we might compare info. I am in Indy as well and wonder which hospital you go to ?
Comment 4 months ago
indysongbird
I'm going to St. Vincent's on 86th St. I had trouble with the site last night and could not respond until now. I just got my official diagnosis yesterday and I'm starting chemo tomorrow.
Wall Post 4 months ago
nightsky wrote on babylady317's wall
What type of chemo will you be getting?
Comment 4 months ago
babylady317
I had taxotere and Cytoxin .
Wall Post 4 months ago
DaveWaz wrote on babylady317's wall
Welcome fellow Hoosier. Thank you for taking the time to register and share your journey. I know we have several people on the network with IDC and triple negative experience so when you are ready please do not hesitate to reach out to them.
If you need anything (e.g., emotional support, help finding support/care resources, insights as to what to expect), please be sure to ask the network for help. You can do this by clicking on the "Ask Network" link on your logged in home page or the "Questions" link at the top of this page. When you post needs/questions using our question feature, we route your question to everyone in the network who might be able to help. Also, know you can use the "Update" feature on the site to keep anyone who might be following you on WhatNext up to date.
I look forward to reading how you progress. Our thoughts are with you on your journey.
-David,
Founder, WhatNext
Comment 4 months ago
DaveWaz
babylady317 You can update a profile picture just by clicking on the stock image. When you do you should see a link to "Change Picture". I hope this helps.
David
Comment 4 months ago
babylady317
I sent an email to some friends who are dealing with cancer telling them about this site. Jayson Parker wrote back to say he is meeting with you ! I am so fond of Jayson, Kendra and Tatum. I admire that they took cancer and did something positive with Tatums Bags of Fun ! I have known Kendra for over 20 yrs. Wonderful people !!!
Comment 4 months ago
DaveWaz
What a small world. I am glad you are finding benefit here. We have some great people. Thank you for helping to spread the word. We need all the help we can get.
Experience 5 months ago
babylady317
Radiation (External radiation )
Experience 5 months ago
babylady317
Drug or Chemo Therapy (Chemotherapy): I had taxotere and Cytoxin for Chemo.
Experience 5 months ago
babylady317
Procedure or Surgery (Lumpectomy)