babylady317's Avatar

babylady317

Indianapolis, IN

  • Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma > Triple-Negative Breast Cancer
    Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: 12 months ago, Female
  • Littlehouse's Avatar  

    Wall Post 11 days ago

    Littlehouse wrote on babylady317's wall

    Just checking in to see how you were doing. Started my radiation today. Wasnt so bad. Hope it stays that way. Hope all is well with you.

  • babylady317's Avatar  

    New Follow 3 months ago

    babylady317

    is following Chemo ended in Oct, radiation in Dec, now new side effects ? Has anyone else experienced this?

  • babylady317's Avatar  

    Question 3 months ago

    babylady317 posted a questionBreast Cancer

    Chemo ended in Oct, radiation in Dec, now new side effects ? Has anyone else experienced this?

    • Keephopealive's Avatar

      Answered Question 3 months ago

      Keephopealive answered

      You can get neuropathy, the feet/hand tingling. I was told you can get side effects years down the road from chemo and radiation and surgery. The fun never ends.
      I have had chemo 3 x in my life...cisplatin, 5FU, and taxol and kept acrylic nails each time without any trouble...I was soooo happy. My big nail turned dark bluish this last round of chemo and I asked the nurse but she was sure it was not the chemo, looked more bruised. I always pedicures too but due to swollen legs my daughter does it at home for me.

    • babylady317's Avatar

      Answered Question 3 months ago

      babylady317 answered

      Thanks so much everyone for you posts. It always helps knowing you are not alone in the journey we cancer patients follow !

    • dollyrose's Avatar

      Answered Question 2 months ago

      dollyrose answered

      After 4th Taxol, nail issue began with pain under toenail and then partial separation from nail bed. Also started with red skin spots on arms where darker brown sun spots had been. ???

  • DaveWaz's Avatar  

    Wall Post 4 months ago

    DaveWaz wrote on babylady317's wall

    Hi babylady,

    Just checking in to see how things are going. Please don't hesitate to reach out if/when you need us. We're here for you, as is the rest of the network.

    • babylady317's Avatar

      Comment 4 months ago

      babylady317

      Thank you for asking ! Am doing fine, getting stronger every couple of days. My oncologist asked me to participate in Clinical trials with the diabetes drug Metformin. I do not have diabetes but they have found it helps 40 % of triple negatives because it protects the cells. I am delighted to do something to help with research.

    • DaveWaz's Avatar

      Comment 4 months ago

      DaveWaz

      Good to hear from you and it sounds like things are moving in the right direction. We're so grateful that you are part of our network.

  • Littlehouse's Avatar  

    Wall Post 4 months ago

    Littlehouse wrote on babylady317's wall

    I'm also a triple negative. I'm getting ready for my 3rd treatment. Thats my 1/2 way point. Will finish chemo at end of March. Then I will have radiation on my right breast due to surgery.

    • babylady317's Avatar

      Comment 4 months ago

      babylady317

      Good Luck and let me know if I can answer questions for you !

  • babylady317's Avatar  

    Experience 4 months ago

    babylady317

    Procedure or Surgery (Lumpectomy)

  • babylady317's Avatar  

    Experience 4 months ago

    babylady317

    Oh No (Diagnosed): Since my Mother died from breast cancer many years ago I always feared I would one day have it. She had 6 other siblings and they all had cancer but cancer is not what took all of them in the end. I saw the tumor during my mammogram and said WHAT is that. Then the waiting was the worst. When Dr called to say MALIGNANT it seemed surreal. Often, it still does. I am thankful it has not been a physically painful experience.

    I always prayed I would live to raise my sons unlike my mother who died when I was 9 years old and fortunately those prayers were answered.I am so thankful for all the advances in diagnosis and treatment since my mothers day. I am thinking of having BRAC test to see if I carry genetic mutation. Most triple negative patients do.

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    New Follow 4 months ago

    babylady317

    is following mcteach

  • babylady317's Avatar  

    Wall Post 4 months ago

    babylady317 wrote on indysongbird's wall

    Oh my ! Those early days were so difficult for me. I could not comprehend what the Dr was telling me, I was like in shock. I hope you can take someone with you or record on your phone, iPad etc what Dr says. It will get better for you. I went to Community North hospital and cancer center and they were wonderful. At St V I hope they have navigator for you. mine was an oncology nurse that was a liaison between Dr and patient. She was WONDERFUL ! She told me how everything would feel, what to expect. I got the binder that someone else mentioned on here and it was like a bible for me. Helps to have organization I think.

  • babylady317's Avatar  

    Wall Post 4 months ago

    babylady317 wrote on kpollok11's wall

    Hello, It sounds like we both have similar diagnosis and were diagnosed this summer. If you want to compare let me know. Good luck.

  • babylady317's Avatar  

    New Follow 4 months ago

    babylady317

    is following kpollok11

  • babylady317's Avatar  

    New Follow 4 months ago

    babylady317

    is following Is there a category for triple negative breast cancer on here that anyone knows of ? Thank you

  • babylady317's Avatar  

    Question 4 months ago

    babylady317 posted a questionBreast Cancer

    Is there a category for triple negative breast cancer on here that anyone knows of ? Thank you

    • KarenG_WN's Avatar

      Answered Question 4 months ago

      KarenG_WN answered

      Hi babylady,

      Thanks so much for your question. I saw that you were able to register your breast cancer diagnosis as triple-negative. Good job on getting that done!

      Now, when you are on your WhatNext "Home" page, on the right side you will see a box that says "Find Peers." These people who we recommend to you are closest to your diagnosis. We have several women with triple-negative on WhatNext, so these should be the people who you will see first. You can look at their journeys and "follow" anyone you choose by clicking "follow" on their page. This way, it cuts down the noise by enabling you to see information of people who are most relevant to you.

      If you are interested in searching others with different diagnoses, you can go to the "People" page, and use the search tools on the left hand side of the page.

      I hope this helps. If not, please let me know what else you need.

      Thank you for being here.

      Best,
      Karen

    • babylady317's Avatar

      Answered Question 4 months ago

      babylady317 answered

      Thank you. This is a great site ! I have told others about it. It always helps me to have others to "talk" to about all of this.

    • KarenG_WN's Avatar

      Answered Question 4 months ago

      KarenG_WN answered

      Thank you for the kind words, and for helping to spread the word! If you ever have any ideas for making the site more useful please feel free to email me at kareng (at) whatnext (dot) com.

      We support you!!!

  • babylady317's Avatar  

    New Follow 4 months ago

    babylady317

    is following indysongbird

  • babylady317's Avatar  

    Wall Post 4 months ago

    babylady317 wrote on indysongbird's wall

    Hi, I sent you an email so we might compare info. I am in Indy as well and wonder which hospital you go to ?

    • indysongbird's Avatar

      Comment 4 months ago

      indysongbird

      I'm going to St. Vincent's on 86th St. I had trouble with the site last night and could not respond until now. I just got my official diagnosis yesterday and I'm starting chemo tomorrow.

  • nightsky's Avatar  

    Wall Post 4 months ago

    nightsky wrote on babylady317's wall

    What type of chemo will you be getting?

  • DaveWaz's Avatar  

    Wall Post 4 months ago

    DaveWaz wrote on babylady317's wall

    Welcome fellow Hoosier. Thank you for taking the time to register and share your journey. I know we have several people on the network with IDC and triple negative experience so when you are ready please do not hesitate to reach out to them.

    If you need anything (e.g., emotional support, help finding support/care resources, insights as to what to expect), please be sure to ask the network for help. You can do this by clicking on the "Ask Network" link on your logged in home page or the "Questions" link at the top of this page. When you post needs/questions using our question feature, we route your question to everyone in the network who might be able to help. Also, know you can use the "Update" feature on the site to keep anyone who might be following you on WhatNext up to date.

    I look forward to reading how you progress. Our thoughts are with you on your journey.

    -David,
    Founder, WhatNext

    • DaveWaz's Avatar

      Comment 4 months ago

      DaveWaz

      babylady317 You can update a profile picture just by clicking on the stock image. When you do you should see a link to "Change Picture". I hope this helps.

      David

    • babylady317's Avatar

      Comment 4 months ago

      babylady317

      I sent an email to some friends who are dealing with cancer telling them about this site. Jayson Parker wrote back to say he is meeting with you ! I am so fond of Jayson, Kendra and Tatum. I admire that they took cancer and did something positive with Tatums Bags of Fun ! I have known Kendra for over 20 yrs. Wonderful people !!!

    • DaveWaz's Avatar

      Comment 4 months ago

      DaveWaz

      What a small world. I am glad you are finding benefit here. We have some great people. Thank you for helping to spread the word. We need all the help we can get.

  • babylady317's Avatar  

    Experience 5 months ago

    babylady317

    Radiation (External radiation )

  • babylady317's Avatar  

    Experience 5 months ago

    babylady317

    Drug or Chemo Therapy (Chemotherapy): I had taxotere and Cytoxin for Chemo.

  • babylady317's Avatar  

    Experience 5 months ago

    babylady317

    Procedure or Surgery (Lumpectomy)