Look up tickling cancer on the site. He is testicular cancer survivor, and very active on the site. He can help you with that click here for his page www.whatnext.com/users/ticklingcancer
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ticklingcancer wrote on Faithe's wall
Hello Faithe, just wanted to check in on you and see how things were going? Give you a little bit of encouragement from a Stage III Testicular Cancer Survivor. Let me know if I can answer any questions. We'd love to get some updates.
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PastorDavis wrote on Faithe's wall
I too am a testicular cancer survivor. I was diagnosed with stage III embryonic carcinoma when I was 16. They told me I had a 60% chance of living more than 5 years. That was 28 years ago! Feel free to read my story on my page. I will answer any questions that you may have.
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ticklingcancer wrote on Faithe's wall
Hi Faithe, thanks for joining the site. If you have any questions at all, please don't hesitate to ask. Let me know if he'll be receiving chemo or radiation. If it's pure seminoma, it responds extremely well to both radiation and chemo. non-seminoma also responds well but tends to be a bit more stubborn. The oncologists are typically prepared for the stubbornness. These are the most common types of testicular cancer. Again, any questions at all, please ask me. Crash is a great source as well. Here's a link to his page...
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Faithe asked a questionTesticular Cancer
Looking for others who have a family member diagnosed with testicular cancer. Can you share what to expect from the surgery? Recovery time?
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Crash
6 months agoI had testicular cancer. I was diagnosed when I was 21, I'm 58 now. The orchiectomy is performed by cutting into the junction between the thigh and the abdomen. I was surprised by that. I thought they'd just cut open the scrotum, but they cut along the fold where the thigh and abdomen meet, then they snag the cord from which the testicle hangs, pull the cord which brings the testicle up, and snip it off. It's easier to heal from an incision like that than it is from a cut on the scrotum. For me they waited a few weeks (months?) before they did the para aortic retro peritoneal lymph node resection. Cancer is an evil bit-h, where ever it starts it heads to the brain. So, from the testicle they knew that it would move up to the lymph nodes in the abdomen. They did the para aortic (around the heart) retro peritoneal (everything in the abdomen) lymph node resection. For me they took out 80 lymph nodes, thirteen were positive for CA. Recovery from that surgery takes a lot longer. They cut you open from just below the sternum to just above the jewel box. They make a nice semi circle around the belly button. ;-) They tell you not to do any thing strenuous for, I can't remember....one month? I didn't listen and tore out three stitches between the belly button and the jewel box. No permanent damage other than the incision scar is wider. Be prepared for the totally absurd request from the nurse to cough. There you are with your splayed belly stitched up and she comes into your room and tells you to cough. You look around to see where the hidden camera is located and then you realize she's serious.
It takes a long time to recover from that surgery. Just walking will make you weak as a baby. One month recovery is probably a good minimum. Two week recovery is probably good for the orchiectomy. You get some really good scars. Going to the pool elicits stares from kids. Some times I tell people that the scars from drainage tubes are from where I was shot. ;-) Have as much fun with it as you can.
Good luck and thank you for looking out for your relative! -
ticklingcancer
6 months agoHey Faithe, I recently completed chemo for pure seminoma. At diagnosis, I was Stage III. I was lucky enough to not require surgery because my cancer formed in my abdomen and chest.Below is a great article that talks about what to expect with the surgery. Do you know if he will receive chemo or just radiation?
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