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76 Goodwill
- 5 Followers
- 1 Following
flkid
Kingsport, TN
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Patient: Prostate CancerPatient Info: Newly diagnosed (has not begun treatment), Male
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Kingsport, TN
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Experience 3 days ago
flkid
Celebration (Remission): Had first psa test post surgery, negative. Will do back now every three months.
Wall Post 7 days ago
flkid wrote on James' wall
James, got another question, my surgeon who is out of state stated wait three months for the first post psa test. I have read a lot of posts etc, and looks like 8-10 weeks is a good time for the first psa reading.
Comment about 9 hours ago
James
Flkid, Thought I posted this the other day it could not find it. Asked if they gave you the PSA test results. Our urologists are now using a more precise analytical method which gives them a three decimal reading i.e.0.05 etc. Was good to hear your count was low...so be sure to follow up with future tests and get this under control. Have a good Summer, James
Wall Post 7 days ago
flkid wrote on Clif's wall
I had biopsy last Oct. becuase of quick rise in psa and in early fifties. I waited five months for robotic surgery with a gleason of 6. After they found gleason of 7 and cells were close to margin but further dissection was clear. I would not wait especially at your age and if you are in good health.
Wall Post 16 days ago
James wrote on flkid's wall
Flkid, I personally think you may be rushing the exercise routine but you have to listen to your own body. I would not put any pressure on the incision sites because the consequences aren't worth it. Waiting another few weeks to be safe doesn't mean much in the long run. Herniating these areas requires more surgery which I'm sure you do not want to face.
Regarding the incontinence...the Kegel exercises will help but "time" is still the most beneficial. I know that's really annoying but it will improve in time. I used a small insert for several months afterwards just as a precaution. I would say it was necessary during tennis while your not always concentrating on the issue at hand. Otherwise try not to sneeze or laugh too much...they're a killer. Stay in touch, James
Wall Post 17 days ago
flkid wrote on James' wall
James,
went back to the gym yesterday, seven weeks later, did upper body light weights. I did wear a plastic guard on my stomach. One of the excercises is with pulleys for my lower back, I did five, my stomach all the way across is sore. I talked to my case manager and they said 6 to 8 weeks before going back to the gym, while the hospital and all the literature says 2-4 weeks. Who do you believe?
Also on the leakage after five weeks , the only leakage i have is after i go to the bathroom, even with the shaking. other than that i have not seen anything else.
I am still doing the excersises twice per day, do not know if that is enough times ore what? Any insight.
Wall Post 23 days ago
flkid wrote on James' wall
I had my surgery done out of state. Everytime i call them i talk to the PA who is really good but they donot have a answer. I will tell you on the left of the incision, the flap was up and swollen for like five weeks. What type of plastic guard or extender did you get if I may ask?
Comment 22 days ago
James
Sounds like you may have had some infection at that incision...fortunately it healed. My hernia at the navel (this is somewhat larger so that the removed prostate gland can be removed from your body) did not develope until much later, about 5-6 months so I did not have any support. An elastic band may have helped prevent this from developing as the area is weakened by the incision. I thought that I was being careful but nevertheless I now am living with a slight bulge at the navel. A surgical repair would be required to correct it and there would not be a "guarantee" of it not re-herniating, plus I would lose a belly button...people would stare and think I was an alien.
My calls back to my urology group and even some follow up visits are also with the PAs...surgeons are so, so busy earning the big bucks to pay the rent. Would be interested in hearing any further in put, James
Update 23 days ago
flkid posted an update
Post op- robotic seven weeks, urinary and other problem is not bad at all. Because of the lap surgery stomach muscles still get stiff. I go back in 6 weeks for my checkup psa
Wall Post 23 days ago
flkid wrote on James' wall
James,
I called my surgeon about the stomach support, they do not recommend it, hmm, they did say just go to like walgreens and buy one and recommendations, I want to use it for going back to the gym and if i have to lift heavy boxes.
Thanks
Comment 23 days ago
James
Fluid, I'd be curious as to how your surgeon would respond to the possibility of why is there a tendency to develope an umbilical hernia after a prostatectomy and how to prevent that from occurring. Why does this happen? It wasn't there pre-op and it wasn't "covered" in the release that is required to be signed pre-op. James
Wall Post 30 days ago
flkid wrote on James' wall
Thanks for the insight on the hernia, I certainly calling my surgeon to discuss. Yea there is a lot of things they do not tell you. I do agree that on the urinary side things have progressed. good so far. Good luck to you!
Wall Post about 1 month ago
James wrote on flkid's wall
Flkid, Joined recently and just saw that you're just out of Davinci procedure with abdominal muscle weakness. Suggest an elastic support for this tenderness so as to prevent a herniation at the navel incision. I was not aware of this possibility and developed an umbilical hernia after almost 6 months post op. Had not seen any mention of this possibility in all my pre op research. And yet now apparently it is a fairly common outcome. Touch base with your surgeon to see if he can recommend avoiding this from happening...good luck to you and stay in touch.
Wall Post about 1 month ago
flkid wrote on MichaelV's wall
Hi MichaelV,
Had the robot surgery, had some issues with the lap procedure and stomach muscles but getting better everyday. Other than the stomach muscles so far everything else is going good. Got to go back in three months for the psa test.
Comment about 1 month ago
MichaelV
I will keep my fingers crossed for the next two years. It takes time to heal, don't over do it, I did and got really sick. Take it easy and let things heal.
Wishing you all the best out comes.
Michael
Experience about 1 month ago
flkid
Procedure or Surgery (Robotic assisted laparoscopic prostatectomy): Its been 2.5 weeks and still recovering, strength is coming back. Had issues though with the lap procedure, stomach muscles bothered me a lot for a few days.
Wall Post 2 months ago
MichaelV wrote on flkid's wall
I'm here for you if you would like to chat. Have been fighting prostate cancer since 2002. I am a walking encyclopedia of some of the things you my find on your journey. Wishing you the best.
Michael
Update 3 months ago
flkid posted an update
Having robotic surgery in two weeks, psa was 2.44, and one sample was positive.
Question 3 months ago
flkid posted a questionProstate Cancer
When they remove the prostrate they also remove the lymph nodes, I heard that this can cause swelling of the legs?
Answered Question 3 months ago
DaveWaz answered
This is a good questions and I am surprised nobody has weighed in yet. I'm going to see if I can find someone to comment. Perhaps @saltermd may have thoughts on this.
Thanks, and stay strong!
Answered Question 2 months ago
MichaelV answered
Had the procedure and did not suffer from any leg swelling but read what else happened to my after my surgery. Hope all goes well with your procedure. I'm pulling for ya.
Michael
Answered Question 2 months ago
nancyjac answered
Lymphodema can be a side effect of lymph node removal due to blockages in the lymph system. It is most common in breast cancer with node removal in the armpit area, and even then, statistically it occurs only in 10-25% of those cases.
New Follow 3 months ago
flkid
is following When they remove the prostrate they also remove the lymph nodes, I heard that this can cause swelling of the legs?
Update 3 months ago
flkid posted an update
question for tanker 66,
thanks for the followup, going in five weeks for the robotic, stage 1.
How long did it take for the two other functions to get under control?
Comment 3 months ago
DaveWaz
Hi flkid, just going to help you out here. To make sure tanker66 sees your post here, you need to "tag" him. You can do this by putting the @ symbol before a person's screen name. So I am going to tag @Tanker66 so he knows he's been tagged and to check this out. Hope this makes sense. Thanks.
Wall Post 3 months ago
flkid wrote on aforce4good's wall
I have stage one, psa 2.44, found one out of 12, going for the robotic surgery in March,
New Follow 4 months ago
flkid
is following anyone have the robotic at the University of Penna, in Phila, any comments
Question 4 months ago
flkid posted a questionProstate Cancer
anyone have the robotic at the University of Penna, in Phila, any comments