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flkid

Kingsport, TN

  • Patient: Prostate Cancer
    Patient Info: Newly diagnosed (has not begun treatment), Male
  • flkid's Avatar  

    Experience 3 days ago

    flkid

    Celebration (Remission): Had first psa test post surgery, negative. Will do back now every three months.

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    Wall Post 7 days ago

    flkid wrote on James' wall

    James, got another question, my surgeon who is out of state stated wait three months for the first post psa test. I have read a lot of posts etc, and looks like 8-10 weeks is a good time for the first psa reading.

    • James' Avatar

      Comment about 9 hours ago

      James

      Flkid, Thought I posted this the other day it could not find it. Asked if they gave you the PSA test results. Our urologists are now using a more precise analytical method which gives them a three decimal reading i.e.0.05 etc. Was good to hear your count was low...so be sure to follow up with future tests and get this under control. Have a good Summer, James

  • flkid's Avatar  

    Wall Post 7 days ago

    flkid wrote on Clif's wall

    I had biopsy last Oct. becuase of quick rise in psa and in early fifties. I waited five months for robotic surgery with a gleason of 6. After they found gleason of 7 and cells were close to margin but further dissection was clear. I would not wait especially at your age and if you are in good health.

  • James' Avatar  

    Wall Post 16 days ago

    James wrote on flkid's wall

    Flkid, I personally think you may be rushing the exercise routine but you have to listen to your own body. I would not put any pressure on the incision sites because the consequences aren't worth it. Waiting another few weeks to be safe doesn't mean much in the long run. Herniating these areas requires more surgery which I'm sure you do not want to face.
    Regarding the incontinence...the Kegel exercises will help but "time" is still the most beneficial. I know that's really annoying but it will improve in time. I used a small insert for several months afterwards just as a precaution. I would say it was necessary during tennis while your not always concentrating on the issue at hand. Otherwise try not to sneeze or laugh too much...they're a killer. Stay in touch, James

  • flkid's Avatar  

    Wall Post 17 days ago

    flkid wrote on James' wall

    James,

    went back to the gym yesterday, seven weeks later, did upper body light weights. I did wear a plastic guard on my stomach. One of the excercises is with pulleys for my lower back, I did five, my stomach all the way across is sore. I talked to my case manager and they said 6 to 8 weeks before going back to the gym, while the hospital and all the literature says 2-4 weeks. Who do you believe?

    Also on the leakage after five weeks , the only leakage i have is after i go to the bathroom, even with the shaking. other than that i have not seen anything else.

    I am still doing the excersises twice per day, do not know if that is enough times ore what? Any insight.

  • flkid's Avatar  

    Wall Post 23 days ago

    flkid wrote on James' wall

    I had my surgery done out of state. Everytime i call them i talk to the PA who is really good but they donot have a answer. I will tell you on the left of the incision, the flap was up and swollen for like five weeks. What type of plastic guard or extender did you get if I may ask?

    • James' Avatar

      Comment 22 days ago

      James

      Sounds like you may have had some infection at that incision...fortunately it healed. My hernia at the navel (this is somewhat larger so that the removed prostate gland can be removed from your body) did not develope until much later, about 5-6 months so I did not have any support. An elastic band may have helped prevent this from developing as the area is weakened by the incision. I thought that I was being careful but nevertheless I now am living with a slight bulge at the navel. A surgical repair would be required to correct it and there would not be a "guarantee" of it not re-herniating, plus I would lose a belly button...people would stare and think I was an alien.
      My calls back to my urology group and even some follow up visits are also with the PAs...surgeons are so, so busy earning the big bucks to pay the rent. Would be interested in hearing any further in put, James

  • flkid's Avatar  

    Update 23 days ago

    flkid posted an update

    Post op- robotic seven weeks, urinary and other problem is not bad at all. Because of the lap surgery stomach muscles still get stiff. I go back in 6 weeks for my checkup psa

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    Wall Post 23 days ago

    flkid wrote on James' wall

    James,

    I called my surgeon about the stomach support, they do not recommend it, hmm, they did say just go to like walgreens and buy one and recommendations, I want to use it for going back to the gym and if i have to lift heavy boxes.

    Thanks

    • James' Avatar

      Comment 23 days ago

      James

      Fluid, I'd be curious as to how your surgeon would respond to the possibility of why is there a tendency to develope an umbilical hernia after a prostatectomy and how to prevent that from occurring. Why does this happen? It wasn't there pre-op and it wasn't "covered" in the release that is required to be signed pre-op. James

  • flkid's Avatar  

    Wall Post 30 days ago

    flkid wrote on James' wall

    Thanks for the insight on the hernia, I certainly calling my surgeon to discuss. Yea there is a lot of things they do not tell you. I do agree that on the urinary side things have progressed. good so far. Good luck to you!

  • James' Avatar  

    Wall Post about 1 month ago

    James wrote on flkid's wall

    Flkid, Joined recently and just saw that you're just out of Davinci procedure with abdominal muscle weakness. Suggest an elastic support for this tenderness so as to prevent a herniation at the navel incision. I was not aware of this possibility and developed an umbilical hernia after almost 6 months post op. Had not seen any mention of this possibility in all my pre op research. And yet now apparently it is a fairly common outcome. Touch base with your surgeon to see if he can recommend avoiding this from happening...good luck to you and stay in touch.

  • flkid's Avatar  

    Wall Post about 1 month ago

    flkid wrote on MichaelV's wall

    Hi MichaelV,

    Had the robot surgery, had some issues with the lap procedure and stomach muscles but getting better everyday. Other than the stomach muscles so far everything else is going good. Got to go back in three months for the psa test.

    • MichaelV's Avatar

      Comment about 1 month ago

      MichaelV

      I will keep my fingers crossed for the next two years. It takes time to heal, don't over do it, I did and got really sick. Take it easy and let things heal.
      Wishing you all the best out comes.
      Michael

  • flkid's Avatar  

    Experience about 1 month ago

    flkid

    Procedure or Surgery (Robotic assisted laparoscopic prostatectomy): Its been 2.5 weeks and still recovering, strength is coming back. Had issues though with the lap procedure, stomach muscles bothered me a lot for a few days.

  • MichaelV's Avatar  

    Wall Post 2 months ago

    MichaelV wrote on flkid's wall

    I'm here for you if you would like to chat. Have been fighting prostate cancer since 2002. I am a walking encyclopedia of some of the things you my find on your journey. Wishing you the best.
    Michael

  • flkid's Avatar  

    Update 3 months ago

    flkid posted an update

    Having robotic surgery in two weeks, psa was 2.44, and one sample was positive.

  • flkid's Avatar  

    Question 3 months ago

    flkid posted a questionProstate Cancer

    When they remove the prostrate they also remove the lymph nodes, I heard that this can cause swelling of the legs?

    • DaveWaz's Avatar

      Answered Question 3 months ago

      DaveWaz answered

      This is a good questions and I am surprised nobody has weighed in yet. I'm going to see if I can find someone to comment. Perhaps @saltermd may have thoughts on this.

      Thanks, and stay strong!

    • MichaelV's Avatar

      Answered Question 2 months ago

      MichaelV answered

      Had the procedure and did not suffer from any leg swelling but read what else happened to my after my surgery. Hope all goes well with your procedure. I'm pulling for ya.
      Michael

    • nancyjac's Avatar

      Answered Question 2 months ago

      nancyjac answered

      Lymphodema can be a side effect of lymph node removal due to blockages in the lymph system. It is most common in breast cancer with node removal in the armpit area, and even then, statistically it occurs only in 10-25% of those cases.

  • flkid's Avatar  

    New Follow 3 months ago

    flkid

    is following When they remove the prostrate they also remove the lymph nodes, I heard that this can cause swelling of the legs?

  • flkid's Avatar  

    Update 3 months ago

    flkid posted an update

    question for tanker 66,

    thanks for the followup, going in five weeks for the robotic, stage 1.

    How long did it take for the two other functions to get under control?

    • DaveWaz's Avatar

      Comment 3 months ago

      DaveWaz

      Hi flkid, just going to help you out here. To make sure tanker66 sees your post here, you need to "tag" him. You can do this by putting the @ symbol before a person's screen name. So I am going to tag @Tanker66 so he knows he's been tagged and to check this out. Hope this makes sense. Thanks.

  • flkid's Avatar  

    Wall Post 3 months ago

    flkid wrote on aforce4good's wall

    I have stage one, psa 2.44, found one out of 12, going for the robotic surgery in March,

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    New Follow 4 months ago

    flkid

    is following anyone have the robotic at the University of Penna, in Phila, any comments

  • flkid's Avatar  

    Question 4 months ago

    flkid posted a questionProstate Cancer

    anyone have the robotic at the University of Penna, in Phila, any comments