grams2jc's Avatar

grams2jc

Wathena, KS

  • Patient: Breast Cancer
    Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 1 year ago, Female, Age: 49, Stage III, HER2 Positive: No, ER Positive: Yes, PR Positive: No
  • hummingbird's Avatar  

    Wall Post 3 months ago

    hummingbird wrote on grams2jc's wall

    I sometimes wonder how we all can write about the damage that cancer does to us so easily...then realize that we are only seeing the black and white words on the screen and not all the blood, sweat and tears that goes into the fight! Keep fighting...

  • jennt4211's Avatar  

    Wall Post 5 months ago

    jennt4211 wrote on grams2jc's wall

    Keep up the fight and stay positive! Hugs!!

  • grams2jc's Avatar  

    Update 5 months ago

    grams2jc posted an update

    1 week into my now stage 4 diagnosis. Er+, Pr-, Her2- BC jumped to brain, OMG. At least 3 maybe 4 lesions. Started Whole brain radiation 12/22 with 4th trtmt of 15 due today, probably cyber or gamma knife after rads course. Chest, abdomen and pelvic CT as well as bone scan done 12/22- CLEAR. MO and RO offering words of remission and long term hope - that is a blessing. I guess no mets anywhere else makes me an "odd bird", couldn't I have won any prize besides a cancer one?

    Still processing it all but feeling more positive and joyful than 1 week ago.

    What a sneaky beast, I was unaware of the brain/blood barrier that did not let chemo or Tamoxifen in to protect my brain but let the blood borne rogues through

    Still alive and learning,

    Jennifer

    • lynn1950's Avatar

      Comment 5 months ago

      lynn1950

      Hi Jennifer. I read your news first on CSN. I am glad that you are feeling more positive now. It IS an awful, sneaky beast. Best wishes that all goes well. xoxoxox

    • grams2jc's Avatar

      Comment 5 months ago

      grams2jc

      Thank you Lynn..I can't wait til about 2 1/2 weeks from now when I can shout the news of the birth of my 2nd JC, (girl this time) Yes their family all have J first names, no they aren't the Duggers. My biggest short term goal and motivation right now is to get my hands on that little dolly. I keep rubbing her mommy's tummy saying come out and see your BeBe. That is what her brother calls me right now. LOVE IT

  • grams2jc's Avatar  

    Update 6 months ago

    grams2jc posted an update

    2nd Thanksgiving since diagnosis. 7 months post chemo, nearly 5 months post rads...didn't find myself 1 time wondering what the holiday would be like without me next year. That's progress, and since I don't see my oncologist til January I should be doing better through Christmas too. Woo hoo!

    • leesabee's Avatar

      Comment 6 months ago

      leesabee

      CONGRATS KIDDO I am extremely happy for you and your family!!!!! Keep taking good care of yourself

      I will send happy thoughts your way, Have A Wonderful Holiday Season

  • bonjour's Avatar  

    Wall Post 6 months ago

    bonjour wrote on grams2jc's wall

    Thanks for sharing your experience with CIPN. It makes me wonder if I should have complained more as the pain in my feet became worse. I have read that if it's treated sooner, it goes away sooner. Mine was at its worst as I was finishing radiation. My medical oncologist switched me from Gabapentin to Lyrica. Recently I requested an Rx for Lidoderm patches. The patches and wearing tennis shoes help a lot. Wishing you many birthdays!

  • grams2jc's Avatar  

    Experience 7 months ago

    grams2jc

    Celebration (Good results): Clear mammogram

  • grams2jc's Avatar  

    New Follow 7 months ago

    grams2jc

    is following Karen

  • grams2jc's Avatar  

    Experience 7 months ago

    grams2jc

    Decision Point: Gyn did pelvic u/s as baseline for Tamoxifen - 3 mths post starting Tamox. Noted thickening, fibroids, ovarian cyst..had endometrial biopsy which was fine but still rec. hyst. Sent to other gyn as 1st gyn doesn't do surgery, that gyn didn't rec. surgery. 3rd gyn rec. hyst due to worry about ovarian cancer, onco said yeah, good idea. Primary care doc says no, wait until healthier, BC is in remission, RA is in remission, stress could cause problems with RA. He suggested wait at least 6 months. So waiting. What a bunch of info and conflicting thought. Will revisit at a later date

  • grams2jc's Avatar  

    Update 7 months ago

    grams2jc posted an update

    Have decided to wait on having a hysterectomy. 2 ob/gyn for it, 1 against, my onc either for or neutral and my primary care doc against. The primary care doc had valid points about my overall health, not just concerns regarding breast and ovarian cancer...he thinks I need to be healthier before another big surgery.

  • grams2jc's Avatar  

    Wall Post 7 months ago

    grams2jc wrote on leesabee's wall

    Good luck with your surgery tomorrow! Hope all goes well as you get rid of "Ursula the Ugly", sounds like a ren. fest. character. Take care and keep us updated.

  • grams2jc's Avatar  

    Wall Post 7 months ago

    grams2jc wrote on stillkickin's wall

    Belated Happy Birthday to you. I think you should still be celebrating!

    • stillkickin's Avatar

      Comment 7 months ago

      stillkickin

      Thanks for the belated birthday wishes, gram, and I agree that I should still be celebrating. This birthday was definitely a BIG deal for me.

  • Loriann's Avatar  

    Wall Post 7 months ago

    Loriann wrote on grams2jc's wall

    Hi Friend, I just read your profile, and I'm hoping for all the best for you! I was diagnosed 13 months ago. Have repeat scans on the 27th of October. Ahhgg, those are hard hu? Glad you got some decent news (HOORAY). Hooray!

    • grams2jc's Avatar

      Comment 7 months ago

      grams2jc

      Hi
      So far I am doing great, still not as much energy and seriously mulling over having a hyst. but haven't quite decided yet. I now have 2 clear chest cts and a clean right mammo under my belt so am feeling a little better about it all (at least til I freak out over next ct in April)

      Take care of yourself

  • leesabee's Avatar  

    Wall Post 7 months ago

    leesabee wrote on grams2jc's wall

    hey lady how are doing? I'm just waiting for surgery. I gotta few things to do around the house and some paper work for my boss to fill out. I will drop a line your way again soon take care honey

  • leesabee's Avatar  

    Wall Post 7 months ago

    leesabee wrote on grams2jc's wall

    pre op consult was difficult to understand at first but my surgeon was very patient and understanding with me. After surgery I will have a series of chemo and radiation and alot of positive attitude that I will beat this#$%^&&* cancer

  • leesabee's Avatar  

    Wall Post 7 months ago

    leesabee wrote on grams2jc's wall

    Congrats on chest CT I hope the tightness goes away soon

  • grams2jc's Avatar  

    Update 7 months ago

    grams2jc posted an update

    Clear chest CT, Yahoo!!! Oncologist says shortness of breath and tightness in chest definitely result of rads, shows on CT. Can be treated with cortisone if I need it. Don't think I will do that yet.

  • grams2jc's Avatar  

    Experience 7 months ago

    grams2jc

    Celebration (Clear CT): 2nd clear CT. Felt wonderful to get that news, oncologist gave me a hug.

  • grams2jc's Avatar  

    Update 7 months ago

    grams2jc posted an update

    CT done, now just wait until Thursday afternoon for result. Here goes the stress eating

    • Clementine_P's Avatar

      Comment 7 months ago

      Clementine_P

      Good luck today! I hope the test results come in clean.

      Best,
      Clementine

  • grams2jc's Avatar  

    New Follow 7 months ago

    grams2jc

    is following mitchis469

  • grams2jc's Avatar  

    New Follow 7 months ago

    grams2jc

    is following mariet