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26 Goodwill
- 1 Follower
- 3 Following
hessteh
San Francisco, CA
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Patient: Colorectal (Colon) CancerPatient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 7 years ago, Male, Age: 67
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Wall Post 3 months ago
bobhess wrote on hessteh's wall
Hi hesseh and sorry it's took me so long to respond to your question of about 3 months ago. Yes we are sure the neuropathy was induced by the oxi. We have yet to try anything about treating the neuropathy as of yet because of the hope it will go away in a certain time,6 months, but that time limit is about to expire, so next time I;m at treatment will discuss what we may to to treat the neuropaty.
Comment 2 months ago
ttisme
my onc said the neuropathy could last up to 2 years, decreasing as time passes.
New Follow 3 months ago
hessteh
is following I had an abdominal perineal resection April 2011, followed by chemo and radiation for recurrent rectal cancer.
Question 3 months ago
hessteh posted a questionColorectal (Colon...
I had an abdominal perineal resection April 2011, followed by chemo and radiation for recurrent rectal cancer.
Answered Question 3 months ago
cjtigers answered
I had the same type of surgery in July of 2010. Within a year I had a pretty good size hernia at my stoma site. It was bothering me, plus it was sometimes noticeable through my clothes. My surgeon and I decided it would be worth repairing. After some research I asked my surgeon if it could be performed laparoscopically. She conferred with some colleagues, did some of her own research and we decided to go for it. It was her first try and the first time a parastomal hernia was repaired laparascopically at the hospital where it was performed. It was very successful, only spent 2 nights in the hospital and healing time was only a few weeks. I walk almost daily, but still have not done any weight training (it's been 5 months since the hernia repair). I've been thinking about seeing a trainer to see what types of exercises wouldn't compromise the hernia site. Let me know how you are progressing.
New Follow 3 months ago
hessteh
is following How to help healing of perineal wound? I had an abdominal perineal resection, followed by chemo and radiation last year.
Question 3 months ago
hessteh posted a questionColorectal (Colon...
How to help healing of perineal wound? I had an abdominal perineal resection, followed by chemo and radiation last year.
Answered Question 3 months ago
hessteh answered
Thanks Carol for your helpful comments. Have you ever heard of TheraBond (a silver dressing)? Article in this link talks about its advantges. Worth trying?
http://www.woundsresearch.com/article/use-new-antimicrobial-dressing-therabond-non-healing-wound?page=0,0
Answered Question 2 months ago
DukeM answered
Hessteh, did you apply or were you approved for social security disability the time you were healing your wound? My temporary disability pay had expired and I need financial help. I hope ato hear from you soon. Thanks!
Answered Question 2 months ago
hessteh answered
I did not apply as I don't even know what social security disability is. I am retired and get social security monthly benefits. Sorry I can't help more. Good luck.
New Follow 3 months ago
hessteh
is following Exercise
Experience 3 months ago
hessteh
Procedure or Surgery
New Follow 3 months ago
hessteh
is following TJM
Question 6 months ago
hessteh posted a questionColorectal (Colon...
Wound from abdominal perineal resection reopened after radiation. Any ideas to accelerate healing?
Answered Question 5 months ago
CarolLHRN answered
I am assuming you are seeing a doctor to take a look at the wound and recommend the wound care.
The best things for healing are eating a balanced diet. Sometimes extra protein helps with healing. Keep the wound clean and do the wound care as directed. Wounds heal best when they heal at their own speed to prevent them from opening again. You also have to watch that the skin doesn't just heal leaving under your skin to still need to heal.
Answered Question 5 months ago
toml answered
I had a different surgery, robotic laproscopic surgery, and no radiation, but 100 days after surgery on of the sites split open from infection due to an undissolved stitch, The doctor said for some reason my body did not sissolve that stitchand the body just pused it out and reopeaned the area. He had to go in and remove the stitch and give me antibiotics, now it is healed.
Answered Question 5 months ago
dearestdeb answered
Part of my wound from peritoneal surgery did not heal properly because an ostomy was too close. I had to go to a wound care specialist and they had me put on something called duoderm. It is like a clear rubber that goes on the wound and helps it to heal from the inside out. You keep it on the area for a few days. It looked white underneath like there is fluid in there but when I took it off, I was amazed at how beautifully it was healing.
New Follow 6 months ago
hessteh
is following Wound from abdominal perineal resection reopened after radiation. Any ideas to accelerate healing?
New Follow 6 months ago
hessteh
is following Oxaliplatin induced neuropathy: Tingling in fingers, balance issues. Does anyone know of any treatments that work?
Question 6 months ago
hessteh posted a questionColorectal (Colon...
Oxaliplatin induced neuropathy: Tingling in fingers, balance issues. Does anyone know of any treatments that work?
Answered Question 5 months ago
markmather answered
I have been off heavy chemo for 10 months and the nueropathy is still an issue. I have been taking a calcium magnesium supplement and also medicinal mushrooms for my immune system. It has been slow improvements with it all moving down to my feet. My whole body felt numb for months especially after I would eat. It will get better if you pay attention to it and don't let it bother you.
Answered Question 5 months ago
abrub answered
I was advised to take Alpha Lipoic Acid for my neuropathy, and it helped a lot (from being unable to walk to functioning on a high level.) I did this over a year post-chemo, as I was still having severe problems.
My dr recommended 600-800 mg twice a day; I took 600-800 mg after breakfast. I couldn't tolerate the evening dose. Saw improvement in a few weeks.
My PCP was going to try me on Lyrica or Neurontin if that didn't work - both drugs have their own side effects.
Answered Question 3 months ago
agrogan answered
I took vitamin B12 for the neuropathy. After my 3rd chemo round I had a really hard time with the tingling sensation. I researched on the net and found out that vitamin B hleps especially B12 and B6. I bought sublingual vitamin B12 from SAMS and it helped a lot. After my 4th session the sensation was still there but not as severe and it diminished much sooner than before. I found out that taking one pill 3 times a day helps more than only taking it once a day. Hope this helps you I also will look into L-Glutamine but will talk to the doctor before taking it.
New Follow 6 months ago
hessteh
is following bobhess
Experience 6 months ago
hessteh
Side Effects: 2011:
Surgery: delayed wound healing, peristomal hernia.
Chemo: flushing, delayed oxaliplatin induced neuropathy. Fatigue.
Radiation: Fatigue. Weakened tissues and reopened surgical perineal wound. Oozing fluid and blood.
Experience 6 months ago
hessteh
Radiation: 2005: 36 cycles once daily.
2011: 17 days, BID (twice daily), to minimize long term toxicity. Skipped last planned day due to surgical wound reopening and oozing fluid and blood.
Experience 6 months ago
hessteh
Drug or Chemo Therapy (Chemotherapy): [phone number redacted]: Xeloda with radiation, followed by adjuvant Xeloda. Minimal side effects, some hand foot syndrome.
2011 Folfox, 6 cycles. Some flushing occured. Delayed oxaliplatin induced neuropathy.
Wall Post 6 months ago
DaveWaz wrote on hessteh's wall
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Experience 6 months ago
hessteh
Procedure or Surgery: 2005 Low anterior resection for rectal cancer. Stage II. No lymph nodes. Negative margin. Got it all!!
2011 Abdominal perineal resection (colostomy) for local recurrence. Had positive margin against prostate. This was MAJOR surgery and the perineal wound took 5-6 months to heal. Have peristomal hernia, which is no fun. Also, nerve damage caused bladder to not work, requiring self cathing.
New Follow 6 months ago
hessteh
is following KarenG_WN