• Jeannie's Avatar

    Jeannie shared an experience

    Celebration (Remission): I have been dancing with NED for 8 months. It took about 6 months to feel good again. I still get tired out and have chemo brain but all and all I feel good! God is Good.

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    • Kathy's Avatar
      Kathy

      I'm really happy for you. That is awesome.

      4 months ago
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    carm wrote on Jeannie's wall

    Jeannie, no I am an oncology/end of life nurse that specializes in gyne oncology. If you need anything you know where to find me. You can also reach me at [email redacted]. Carm.

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    Jeannie wrote on carm's wall

    carm, have you had ovarian cancer too. I am dancing with NED after being treated for agressive stage 4 serous ovarian cancer with mets to liver, lymph, and diaphram. I find your information very helpful and would like to follow you.

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    Jeannie started following

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    Jeannie posted an update

    nobrand, do have a cream called Lidocaine 2.5% to put on your port with a piece of saran wrap 1 hour before you go get your port accessed? My Dr gave me a prescription for it. Works like a dream.

    coopcrew, my CA-125 has been running in the 9's and 8's now. I will go 3 months until I get my next one.

    2 Comments
    • Carol-Charlie's Avatar
      Carol-Charlie

      Congratulations on the 8's and 9's... Doing a happy dance here in Minnesota. I'd forgotten about the saran wrap and lidocaine... yes it works.. I

      9 months ago
    • coopcrew's Avatar
      coopcrew

      Those are awesome CA 125 counts! I pray that they will stay that way for a long time. So far I have not felt any symptoms for recurrence. I go back to teaching with inservice meetings next week and students' first day is Sept. 4. With no symptoms, it is easy to ignore this cancer. My next appt. is Nov. 7. I started a new diet that is mostly vegetables and I am hoping that it will help me lose about 15 lbs, get my HDL and triglycerides back to normal, and keep this cancer from growing and giving me symptoms. We'll see...

      9 months ago
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    Jeannie started following

    User: coopcrew