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31 Goodwill
- 3 Followers
- 6 Following
Jeannie
Circle Pines, MN
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Patient: Ovarian and Fallopian Tube Cancer > Epithelial Ovarian Carcinoma > Serous TypePatient Info: Newly diagnosed (has not begun treatment), Diagnosed: 9 months ago, Female, Age: 63





New Follow 6 months ago
Jeannie
is following LisaYadenCole
Wall Post 6 months ago
Jeannie wrote on Annebehymer's wall
Hi annebehehymer,
I have stage IV ovarian cancer, diagnosed Sept 1 2011. surgery 9/20/11, first chemo 10/17/11 Just finished my second round. I'm 62 and have mets to the liver(spots), diaphram, and lymph nodes. Sugery consisted of ovaries, tubes, appendix, 1 foot of colon (didn't invade) part of my vagina and the debulking. I noticed you mentioned nerve damage of feet and hands. My oncologist had me start taking B6 when I started with the symptoms and they went away. Maybe that can help you. My daughter insists it should be a liquid form as she says it absorbs better. My ears were ringing too and the B6 helped with that neurologic sign too.
Jeannie
New Follow 6 months ago
Jeannie
is following Annebehymer
New Follow 6 months ago
Jeannie
is following Is your hair suppose to grow back while on chemo? Mine started to grow back when I took my second chemo (that week).
Question 6 months ago
Jeannie posted a questionOvarian and Fallo...
Is your hair suppose to grow back while on chemo? Mine started to grow back when I took my second chemo (that week).
Answered Question 6 months ago
Chris answered
I was so prepared to loose hair - well as much as you can... I had a wig party so my family could help me pick one out - I cut my long hair to the top of my shoulders - each week during my aggressive chemo treatment the nurses would look at me and go "you still have hair!". They did this for 6 months..... I was one of the lucky ones that only lost a little on top.
Answered Question 6 months ago
BrandenC answered
Since hair loss is a side effect of the medicine it doesn't happen everytime, much like nausea or tiredness. It is a common side effect but it isn't uncommon to not lose your hair or in your case grow your hair back while on chemo. For me my hair just thinned out a bit my first time. It just effected my fingers instead.
Answered Question 6 months ago
Beverly answered
Like lots of people have said, I don't think getting chemo is an automatic hair loss. I think it is particular to the type of treatment and the person involved. I also cut mine to a "boy style" 3 weeks after the 1st tx. It did get thinner but that's all. Now 3 months later, it seems like it is growing back and getting thicker, and growing much longer. It feels like straw growing from my head but I'd rather have straw than none.
Wall Post 6 months ago
Jeannie wrote on Barb's wall
HI
I have stage 4 ovarian cancer which means it has spread to my liver, diaphram, and lymphnodes. I had surgery to remove both ovarys, tubes, appendix and 1 foot of my colon.
After 5 weeks I had my first chemo session to try and get rid of the cancer they couldn't remove.
If you are still in the hospital the hospital offered accupuncture, message, reflexology and I used them all. I still continue with accupuncture. All of these therapy's help with pain control and were free in my hospital.I think they helped quite a lot.
I learned that pain meds constipate and I should of insisted on staying in the hospital until I could have a BM. I couldn't have a BM for 10 days before I was sent to a GI specialist and she had me take a capful of MiraLax each morning. To this day I take MiraLax each day so I don't get so bound up again as if effects other aspects of a person's treatment.
For my chemo I was put on Taxol and Carboplatin in an IV which is pretty standard treatment for ovairan cancer as I understand it. I found out they give you anti nausea meds IV before chemo. They can make it last for quite a while or give you some that don't. My first time they only gave me anti nausea meds for 2 days because of the BM problem. The second time they gave me enough for 5 days and believe me you want the 5 day one as you don't get so sick as you are further along with chemo when it wears off.
Hope this helps
j
Wall Post 7 months ago
Jeannie wrote on KarenG_WN's wall
I see you are a moderator. I need some help. I found a person I want to post on but I can't find her or I should say I don't know how to find her and post on her blog. How do I do that?
Comment 7 months ago
KarenG_WN
Hi Jeannie,
Do you know her user name? Or her specific diagnosis? You can search by diagnosis on the left hand side under the "People" section (look at the top of the screen and see where it says MY: Home, People, etc. Click on People.). Another suggestion - on your WhatNext Home page - look at the top right. You should see a section called, Find Peers. If this person shares your diagnosis, then you should be able to find her in that section.
If you have any additional details I'd be happy to help. Please let me know if you get stuck - we'll figure it out =)
Thanks!
Karen
Experience 7 months ago
Jeannie
Oh No
Experience 7 months ago
Jeannie
Procedure or Surgery
New Follow 7 months ago
Jeannie
is following KarenG_WN
Wall Post 7 months ago
DaveWaz wrote on Jeannie's wall
Welcome. Thank you for taking the time to register and share your journey. I see you are finding your way around the site.
If you need anything (e.g., emotional support, help finding support/care resources, insights as to what to expect), please be sure to ask the network for help. You can do this by clicking on the "Ask Network" link on your logged in home page or the "Questions" link at the top of this page. When you post needs/questions using our question feature, we route your question to everyone in the network who might be able to help. Also, know you can use the "Update" feature on the site to keep anyone who might be following you on WhatNext up to date.
I look forward to reading how things progress.
- David, Founder, WhatNext
Wall Post 7 months ago
mysecondchance wrote on Jeannie's wall
I described my experiences with chemo under drug therapy on my page, if you want to check it out. It is kind of lengthy. Good luck to you.
New Follow 7 months ago
Jeannie
is following mysecondchance
Wall Post 7 months ago
Jeannie wrote on bpositive's wall
We are the same age and I have stage 4, which i guess means it metasized to my liver, diaphram and lymphs. I've had surgery and will have my first round of chemo on Monday the 17th.
I 'm wondering what that will be like, do you know?
Comment 7 months ago
bpositive
jeannie,
Sorry to be so long getting back to you but we've been out of town. Yes, I've felt pretty good for 2 -3 weeks. I had no troubles with the actual chemo treatment but just felt pretty yukky for a fews following. I first started with 6 treatments 3 weeks apart, Taxol and carboplatin. I did loose my hair about 2 weeks after 1st treatment but I had already gotten a wig. I will be praying that you will do well and have a great PET scan at the end of treatments. One little tidbit that's alittle personal is you might want to take/wear a pad (s) b/c you will be getting lots of fluids??!!! No one bothered to mention that to me.
I go tomorrow for Dr. visit and labs and Tues. will have 2nd monthly treatment of cisplatin. Praying that my CA 125 will have dropped already.
Keep me posted on how you're doing. Will be glad to answer any questions that I can.
Hope this note gets to you. I'm not computer savy so this website is alittle confusing or alot confusing to me.
Have a great week.
New Follow 7 months ago
Jeannie
is following bpositive
New Follow 7 months ago
Jeannie
is following rangerali
Wall Post 7 months ago
Jeannie wrote on rangerali's wall
I have stage 4 ovarian cancer and just found out the 1st of Sept. I have had surgery where they removed most of the cancer. Mine has spread to the liver, lymph system, and my diaphram. On Monday the 17th I will have my first chemo and I have no idea what to expect ( well really what to expect from someone who actually had been through it)
One of the things that keeps my spirts up is a service my kids signed me up for. It's called Caring Bridge. It's free and you can post what ever you want to say on it. You can send an invitation to people in your address book in your email. My girls put my diagnosis etc on the site while I had surgery. I am so thankful that they did. There is a guest book and people I haven't heard from for years are praying for me, bringing dinner giving me tips and advice and just plane encouraging me. I check several times a day just to boost my spirits. If it's something you think you'd be interested in, just go to caringbridge.com and follow the directions. Make sure you tell people to check the part about getting an email whenever you post.
I will pray for you. Do you feel up to telling me what to expect on Mondays chemo for me. Do you have a port? Does is really take 5-6 hours? If you want to answer I did sign up on this site or you can just answer on your site.
I too am here to listen
Comment 7 months ago
rangerali
i was diagnosed with breast and ovarian cancer in feb. i went for my mammogram in jan and noticed a calcium deposit on my right side. i had a biopsy done right away and it was cancer. then they did a pet scan where they scanned my whole body from head to toe and that is where they found a tumor and fluid. i started chemo in april and went once every three weeks. my first treatment i was there about 8 hours because they had to do bloodwork before i started and had to wait for the results. i had this done through an iv. my doctor didn't want a pick because he didn't want me to go through any surgery unless i had to. then they gave me a couple of different medications so i wouldn't have that nauseau feeling. that takes about an hour. then i had avastin (excuse the spelling of the med) which the 1st time was 90 min, 2nd treatment 60 min and then the 3rd 30 min. the taxtil takes 3 hours and carboplatin takes an hour. i felt okay just tired. i have to take emend to help my stomach on tues and wed. i have to take a shot 24 hours after chemo. that is where i start to feel lousy. that shot makes me feel like i have the flu a couple of days. my body aches, stomach feels a little upset and i go to the bathroom a lot. it takes me a week and i feel better where i can drive and do things again. that has been my experience with chemo. my hair started coming out after my 2nd treatment. i bought a wig but never used it. i lost most of my hair but not all of it.
i had surgery in july and hopefully on oct 24th will be my last chemo and they can start working on the breast cancer. the ovarian cancer was at stage 3 so it took priority over the breast cancer. my family and friends have been great. as soon as someone finds out everyone calls each other which is a blessing for me. my main concern is my 6 year old daughter and everyone has been great.
thanks for telling me about that. i can look into it. thanks for listening. i'm here for you to. good luck and i hope things go well for you. my thoughts and prayers are with you and your family.
Comment 7 months ago
tgaw53
Sorry to hear about your cancer. My wife was recently diagnosed with Stage IIIc if not 4 ovarian cancer as well and has had 2 chemo's. By now you have already had your first according to your post. I can only tell you how my wife was affected. She received Carboplatin and Taxol and did pretty well as far as nausea and vomiting. She was prescribed Zofran, Compazine and Zyprexa for nausea. Zyprexa is typically for depression and other mental issues that my wife does not have but the side benefit of the drug is nausea control. She is to receive chemo 3 times and 3 weeks apart before surgery. On day 14 after her first chemo her hair started to come out so we buzzed it and she feels better about it. She has had some nausea and a little vomiting but the bigger issue is the extreme fatigue. I had chemo last year and experienced the same thing so this will probably affect you too as most patients report the same. It is a little hard to tell what is being caused by the chemo and what is the cancer itself since she had some of the symptoms prior to chemo. Her 3rd one is on the 24th so we are less than a week away but the pattern has been that for two weeks after chemo she feels bad and on week three starts to feel a little better. Hope this helps with the expectations. Not great news but just sharing what she went through. Good luck.
Update 7 months ago
Jeannie posted an update
Is there a way you could put spell check on this site or is it here and I don't see it?
Comment 7 months ago
DaveWaz
Jeannie, Good question. We do not have any special spell check features built into the site, primarily because today's internet browsers have spell check built in. So if you are typing a note on this site and see a word underlined in red it is your browser telling you that you misspelled something. Usually you can fix a misspelling by simply right clicking on the word and you will see a list of spelling options. I hope this helps.
Experience 7 months ago
Jeannie
Side Effects (Constipation): After having part of your bowel resected stay away from high fiber and watch your pain pills. I got so constipated It took a week of different laxatives and a trip to the GI specialists. Now I'm afraid to take pain meds.
wish this site had a spell check!
Comment 7 months ago
SarahPants
I have the same problem! Not so great! I too am suspicious about taking the pain meds.
Experience 7 months ago
Jeannie
Procedure or Surgery (Surgery): I had a very large tumor that was attached to my colon which they resected 12 inches of, removed both ovarys & tubes, appendix, omentum, debulked, removed a few positive lymph nodes, metastsized to the liver and diaphram. I ran into trouble taking Dilaudid for pain. I had no BM for over 10 days. After spending a week with various laxatives I was sent to a specilist (GI) who put me on Nulytely ( Dr said it was the most potent but have to drink a gallon of solution). Until that worked I was nauseous and in pain. Now I only have the pain. The Dr says it should improve with chemo which I start on Monday.