• Julie99's Avatar

    Julie99 asked a questionBreast Cancer

    Anyone have the unfortunate experience of being "terminated" from your job while out on disability during treatments?

    10 answers
    • Nonnie917's Avatar
      Nonnie917

      No I haven't, but it sure sounds like a complaint for L&I. I would be doing some checking into that if I were you. Sounds like what they did was illegal. Good luck.

      about 13 hours ago
    • Jaimebrie's Avatar
      Jaimebrie

      Hi Julie 99,
      I was fired from my job after I became so ill from chemo and could not go into the office for 10 days. I had my laptop set up by the IT dept. and tried to work from home, but I was too ill, having to be hospitalized several times. I had no short term or long term disabilty. I did get unemployment and had COBRA which drained my entire savings because it was so expensive, but I had to have COBRA since I was at the beginning of my treatments and what turned out to be 13 surgeries. I think you should consult with an attorney to see what your options are. I was referred to a fabulous attorney who truly cared about me and not his fee.
      I wish you lots of luck and stay strong and positive.
      Best,
      Jaimebrie

      about 13 hours ago
    • bella's Avatar
      bella

      contact the American cancer society and they will either put you in contact with a attorney or one will contact you.They were very helpful to me as it can be legal as it was for me in the state I lived in.And after my FML I was let go after five years.Each state is different . I wish you the best

      about 5 hours ago
  • Julie99's Avatar

    Julie99 posted an update

    4 days until my last chemo treatment!!! This part of the journey is almost done! Radiation should start mid June, but I might have a few weeks in between to just RELAX! YAY!!!

    2 Comments
    • HearMeRoar's Avatar
      HearMeRoar

      YOU GO GIRL!! I HAVE 5 WEEKS LEFT OF CHEMO :)

      4 days ago
    • GregP_WN's Avatar
      GregP_WN

      congrats on finishing the worst part! Enjoy your "vacation" and when you start radiation you will probably think it's nothing compared to the chemo. Glad your doing well.

      1 day ago
  • Julie99's Avatar

    Julie99 asked a questionBreast Cancer

    How long after chemo is done will the side effects like fatigue and chemo brain last?

    5 answers
    • Ydnar2xer's Avatar
      Ydnar2xer

      Going on vacation to California (seeking sun) for two weeks immediately after my chemo was done really helped me recover. I was "tender" with myself--napping when I felt like it, taking it easy, but also beginning to exercise a little bit. I got tired very quickly! But I began to think of myself no longer as a "cancer patient" but as the old me. It's now been about 10 weeks since chemo ended and I am going to the gym 5x a week, eating tons of veggies & fruits and have lost 13 lbs, 10 of which was due to the steroids. I am feeling GREAT physically, although I still do get tired sometimes, and of course, I still am BALD with horrid toe and fingernails!

      My mental health is something else! My husband finds he has to tell me things more than once, because I forget them.. also, doing simple math computations in my head can be overwhelming. I never was a genius, but am hoping to regain my former mental abilities. I often wonder if I'm losing some of them anyway because I'm 60? At least my attitude is GREAT and I'm happy to be here!

      about 1 month ago
    • karen1956's Avatar
      karen1956

      At least one month recovery for each month of Tx....but it can gtake up to a year or two to get back to before Dx......but it does get better bit by bit!!!!

      about 1 month ago
    • StrongSteph's Avatar
      StrongSteph

      I agree with all the other responses. It definitely takes longer than one wants. I had to learn to relax and go with the flow. It was almost a year until I felt human.

      about 1 month ago
  • Julie99's Avatar

    Julie99 shared an experience

    Celebration (Half way through CHEMO!): I'm doing 8 rounds, every 2 weeks. AC/T. Next week I start up my first Taxol and I've made it through the half way mark. Two treatments in April and 2 in May.
    Still nervous about it all, starting a new drug, then having radiation, but focusing on the positives and that so far the side effects haven't been too bad. Long road, but passing the half way mark of chemo is making it feel like progress is happening.

  • Julie99's Avatar

    Julie99 posted an update

    Feeling pretty grateful for the limited chemo side effects I've had. Fatigue can be overwhelming at times and chemo brain is so frustrating. But I haven't been sick once and my blood counts have been normal or even high. I haven't had any bone aches from the shot (THANK GOD, I heard that was bad but the Claridin D must be working!!)

    I'm happy I got the okay to exercise again and that has really changed my emotional well being. I've been trying to keep as active as possible, balancing that with rest and managing the fatigue.

    I can't imagine working through chemo and I'm nervous about how I'll be during radiation as well. I'm grateful that financially I'm doing okay right now, thank GOD for my boyfriend and for short term disability (and long term when/if I need to use that as well).

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Glad your not having too bad side effects. They were tough on me during treatment. I was one of those who took it badly. Your lucky, as it were.

      about 1 month ago
  • Julie99's Avatar

    Julie99 asked a questionBreast Cancer

    Pro's and Con's of a Port for chemo? What is your experience?

    48 answers
    • geekling's Avatar
      geekling

      I'm very sorry for your mistreatment.

      A radiologist and his big male nurse tried to do something similar to me but I would not stand for it. I had already explained an awful situation to my oncologist and switched radiologists away from the one who was trying to get me to switch back or change my story of why I'd switched. I was the only adult in the room and told the nurse there was no reason for him to be there because the radiologist and I were talking about things which had nothing to do with him just as your care had nothing to do with the social worker and, in truth, the nurse had no right to speak with you either. Only your doctor, and it is your oncologist doctor to whom you ought to speak about how you were treated, and who ought to answer your questions and explain about your need or lack of need for a port or direct you to someone reasonable who can answer your questions and explain things.

      I had a cancer a long time ago. I was not given a choice about having a port or not once I'd submitted to doctorly care. The port was part of the deal. What did happen to me was that the surgeon wanted to put the port into my chest with me awake and conscious under local anethestic. I told him I would not be able to remain still and asked that I be put fully under for the procedure. The surgeon (who I would recognise to this day in spite of only having seen him once so many years ago) continued to speak about locals and I, having been there before (with a dentist), continued to ask to be asleep.

      The surgeon put me under and did his little operation. I awoke to see him leaving, out of the corner of my eye, and I awoke to the certain knowledge that I'd just been knifed and began to sob bitterly and moan. The nurse on duty, using her best sympathic manner, patted me near the area thinking to calm me down. I had no choice but to begin screaming. The pain was intense. No one could help me until another doctor could be found as this expletive deleted excuse for a human being had left the building with no instructions for any pain killers for me. Even more interestingly, that port fell out and had to be replaced. I had the replacement put in by a different surgeon.

      I only had two 4 day rounds of chemotherapy through the port(s) but a fxcxing boatload of radiation (16 weeks, daily) in between and during each round.

      There are a lot of egos involved in your treatment and a lot of pushers and shovers and control freaks.
      You chose an oncologist. He controls the team. It is to him (or her) that your worries and concerns need to be addressed.

      As an aside, scars fade and make for interesting stories (make up wild ones) so don't let stuborness bite you in the behind. Just remain calm and dignified in this most indignant of situations, demand respect and to be asked rather than told about ANY thing. Keep in the forefront that you have a name and a personality which is other than patient 10465.

      Sending you a big cyber hug and best wishes for recovered good health.

      about 1 month ago
    • Danuta's Avatar
      Danuta

      I am not getting a port for four chemo transfusions and I feel exactly like you do. I want control of my body and I am sick and tired of all the you have to do this statements. I chose lumpectomies and chose no lymph nodes removed. He only took three during the lumpectomies and then wanted more. Got a second opinion not to do it and stuck to my decision. So now I am getting chemo and radiation. Yes, you do feel like prey and they are on the attack. I know they are trying to do their best but sometimes I just want to say leave me alone

      about 1 month ago
    • Snooks' Avatar
      Snooks

      I opted for a port because I am deathly afraid of needles and knew how many "XXX" I would have to endure during chemo. But the biggest advantage of the port was to draw blood and it was a blessing when I had to be hospitalized during my chemo treatments because my immune system plummeted. All of the intravenous feedings and all the blood transfusions went in via the port. It sure beat getting "pricked" all the time with a needle. But I will agree with you that it is a personal choice and one should not be pressured to get a port. Good Luck and God Bless

      27 days ago