lynn1950's Avatar

lynn1950

Council, ID

  • Patient: Breast Cancer
    Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 5 years ago, Female, Age: 62, Stage III, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes
  • adelia11's Avatar  

    Wall Post 3 months ago

    adelia11 wrote on lynn1950's wall

    Hi Lynn I have been reading your story. You have that determination or quality, to choose not to wear a wig. I wish I could get to that point. I have been without hair for a month now. Just diagnosed last Sept. I have been having trouble finging sources, that do not charge an arm or leg for hats, scarves etc. I have insurance but most sources want payment up front. Can you give me some ideas?

    • lynn1950's Avatar

      Comment 2 months ago

      lynn1950

      I just saw this...sorry it's taken so long to reply. I'm not so sure there was anything much out of the ordinary for me to decide not to wear a wig. It was just when I looked in the mirror as was I trying on wigs, they all seemed very unnatural to me. My cancer center has a wig room with wigs AND hats AND scarves. I found two cute hats there. I liked big scarves that I could wrap and wrap some more. These are not so easy to find and the ones I had were given to me and I have passed them on to other survivors. One of my favorites was made from a recycled sari. I didn't know that insurance pays for scarves! : ) I am also a great believer in buying clothing from thrift stores; I like that I am recycling. I hope this helps.

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    Wall Post 3 months ago

    lynn1950 wrote on JennyMiller's wall

    Hi Jenny, Thinking of you. Hope you are on the mend from your last treatment. xoxoxo Lynn

  • lynn1950's Avatar  

    Wall Post 3 months ago

    lynn1950 wrote on dispatcher906's wall

    Wow, Dispatcher. I was so glad to see your post and know that you are finishing the A/C. The S/Es of your last four treatments will be different. I remember that instead of the Neulasta shots that I had with the A/C, I gave myself Neupogen shots with the T. In terms of nausea, the T was much easier for me. On the other hand, my nails and skin were affected by the T, so be sure to be generous with lotion.

    Cancer sucks. And one of the worst things about it is the emotional roller coaster ride. Here is a ((((hug))))). It does get better. xoxoxo Lynn

  • lynn1950's Avatar  

    Wall Post 4 months ago

    lynn1950 wrote on JennyMiller's wall

    Hi Jenny - I don't remember my throat muscles feeling any differently during chemo. hmmmm...maybe someone else will chime in.

    Losing one's hair is a difficult part of chemo. Even though my chemo was during the summer months, my head would be cold at night. I wore a snuggly hand knit cap that a friend gave me. I really wasn't one for wigs, so I wore mostly scarves during the day.

    Your family sounds wonderful and that says good things about you, too!

    • sofarsogood's Avatar

      Comment 4 months ago

      sofarsogood

      I viewed my baldness as my Badge of Courage. A friend of mine painted her head orange for Halloween, and had Henna designs another time. It is emotional for women, but really not rational. It will grow back, and there are worse things that can happen.

  • lynn1950's Avatar  

    Wall Post 4 months ago

    lynn1950 wrote on JennyMiller's wall

    Hi Jenny. I am stage III as well. It is about 4 years since I was first diagnosed (Feb. 08). Your writing is so evocative - it brings back memories of those first days and reminds me of the kindness and professionalism that I experienced.

    My treatment schedule was very much like yours. Right now you are probably feeling the effects of your second infusion. Just think...you are halfway finished with the A/C part of chemo!

    Like you, I had times of major meltdown; I think it is part of the cancer package. Be sure and let your caregivers know. Your emotional well-being is also their concern.

    Please feel free to contact me if I can be of any help. xoxoxo Lynn

    • JennyMiller's Avatar

      Comment 4 months ago

      JennyMiller

      Hi Lynn, Thanks so much for your post - it really helps to hear from someone who has been through this and now has it behind her. Thanks for the perspective of the first 4 sessions being half over - I like that!! I have chemo on Thursdays and it seems like Tuesday is my "yucky" day -- a little achy, etc. My main thing seems to be that my throat (the walls) hurt -- not a sore throat -- maybe the muscles -- anyway, it only lasts a day or two and a cough will accompany it somewhat. Seems like a strange effect to me. However, I am not getting bone pain from the Neulesta shot because of taking the Claritin so I won't complain. Once again - thanks for your caring thoughtfulness!!!

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    New Follow 4 months ago

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    Wall Post 5 months ago

    bonjour wrote on lynn1950's wall

    Thanks for sharing your experience with Arimidex. Maybe some of the aches I'm experiencing are not age, but side effects of the drug. I agree with you, "Keep the monster at bay!" Good luck to you in your continuing recovery.

  • dispatcher906's Avatar  

    Wall Post 6 months ago

    dispatcher906 wrote on lynn1950's wall

    Hi Lynn...thank you for your support. I am at the waiting stage from surgery to being referred to the oncologist. I will have an appointment set up on Tuesday when I go back to the surgeon. Once the PET scan is complete I'll know more of exactly what I am fighting. *fingers crossed*

    • lynn1950's Avatar

      Comment 6 months ago

      lynn1950

      Glad to meet you, though sorry it is on this site!

  • lynn1950's Avatar  

    Wall Post 6 months ago

    lynn1950 wrote on dispatcher906's wall

    Hi dispatcher. I live in Idaho, too. My diagnosis is IIIa (in 2007) and I am 61 years old. Just want to say that YOU CAN DO THIS! If I can help, please let me know.

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    New Follow 6 months ago

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    New Follow 8 months ago

    lynn1950

    is following Ended chemo 04/25/11 - 4 epiubicin/cytox, 4 taxol. 33 rads done 7/8/11. Feel worse now than right after Anyone else?

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    New Follow 8 months ago

    lynn1950

    is following im about to start chemo in a couple of weeks and i would like to know what to expect on my first time

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    New Follow 8 months ago

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    is following survivor time of patients in breast cancer

  • NewFlower's Avatar  

    Wall Post 8 months ago

    NewFlower wrote on lynn1950's wall

    Lynn

    Thanks for the info about Susan, I did not go on-line. I am glad for email and good
    Ineews

  • NewFlower's Avatar  

    Wall Post 8 months ago

    NewFlower wrote on lynn1950's wall

    Hello Lynn,
    Thanks for your comment.
    Do you know how Susan is doing after her lumpectomy?
    Please say hello to her and my best wishes for quick recovery.
    Hugs

    • lynn1950's Avatar

      Comment 8 months ago

      lynn1950

      Hi, New Flower. I have only had a brief message from Susan saying she is doing better.

    • lynn1950's Avatar

      Comment 8 months ago

      lynn1950

      I'm not sure if you read that Susan posted that she got her path report and her margins are clear and no nodes are involved!

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    New Follow 8 months ago

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    Wall Post 9 months ago

    lynn1950 wrote on TraciInLA's wall

    Hi, Traci, my cyber walking buddy.

    • NewFlower's Avatar

      Comment 9 months ago

      NewFlower

      Hi girls am walking every day two about 1 to 2 miles. On weekends I am taking my husband with me.
      Have a nice weather this weekend
      New Flower

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  • lynn1950's Avatar  

    Question 9 months ago

    lynn1950 posted a questionBreast Cancer

    Does anyone have information about taking Zometa to prevent bone metastases?

    • Lori928's Avatar

      Answered Question 2 months ago

      Lori928 answered

      I have been on zometa for 1 1/2 years. I had one "tiny" area of my sternum with cancer (breast)...it was radiated along with me being on Femara. I started on monthly infusions, then moved to every 3 months, now I am getting the infusions every 4 months. My scans are showing up NED. From what I understand if there is not any cancer in the bones, the drug is too intense and the side effects may be too intense just to keep the bones strong. In answer to your question lynn1950, I think your oncologist made a good decision not to use it as a prophylactic means. Be well...

    • mykidshavepaws' Avatar

      Answered Question 2 months ago

      mykidshavepaws answered

      Interesting question. I have stage IV lung cancer and had 2 spontaneous rib fractures. That's how my cancer was initially diagnosed because they did a chest X-ray due to the severe pain. The bone scan was negative for metastasis. My oncologist is recommending Zometa even though I expressed reservations (primarily because of side effects). He also said it can help in prevention of bone metastasis. I'm wondering if the bone scan is really accurate. I am getting the Zometa along with chemo but I'll be tested for bone density also to see if the fractures may be related to osteoporosis. I was diagnosed with osteopenia but it's been at least 2 years since my last test. Trying to read all I can between the maze of appointments. I'll be interested to see what you decide.

    • lynn1950's Avatar

      Answered Question 2 months ago

      lynn1950 answered

      Thank you, everyone, for your responses.

  • DaveWaz's Avatar  

    Wall Post 9 months ago

    DaveWaz wrote on lynn1950's wall

    Lynn, Thank you for being one of the first to join the WhatNext network and taking the time to share your story and help others on the site. I saw the Update you posted on Zometa. I would recommend you post it as a question via our "Ask Network" feature that is on your WhatNext home page or you can find by clicking on the "Questions" tab at the top of the page. When you post a question via our "Ask Network" feature your question gets distributed throughout the entire WhatNext network, whereas when you post an "Update" only people who are following you or who happen to be browsing your profile will see it. I hope this helps. David, WhatNext, Founder.