macarena1's Avatar

macarena1

San Fernando, CA

  • Patient: Breast Cancer
    Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: 11 months ago, Female, Age: 45, Stage II, HER2 Positive: No, ER Positive: No, PR Positive: No
  • Lirasgirl33's Avatar  

    Wall Post about 1 month ago

    Lirasgirl33 wrote on macarena1's wall

    Hi Macarena!, I live in the San Fernando Valley near you, there are support groups at We Spark in Sherman Oaks. I am fairly new to this website but hope you have already found out about We Spark. I know your last post was 6 months ago. Hope you are doing ok. Sending love and well wishes your way.

  • Staci1219's Avatar  

    Wall Post 4 months ago

    Staci1219 wrote on macarena1's wall

    Hi there macarena1, my name is Staci and I am an advocate for the ACS. If you can't find a support group at your cancer center where you are getting your treatments or by finding one on the bulletin boards around check with your local American Cancer Society. They can tell you where they meet and the times, my records show your local office is located in Burbank, California. I hope this helps you. Just remember you can beat this and don't let it beat you....keep your chin up, head held high. You have a friend here when you need me, anytime. I'll say a prayer for ya.

  • Energy's Avatar  

    Wall Post 4 months ago

    Energy wrote on macarena1's wall

    My daugther was diagnosed brest cancer III two years ago, when thrue chemo, radiation, I need a support group to help me. My girl is someone that I don't know now, I need help.

  • DaveWaz's Avatar  

    Wall Post 7 months ago

    DaveWaz wrote on macarena1's wall

    Welcome. Thank you for taking the time to register and share your journey. I see you are already connecting with some of folks on the network. Good work.

    If you need anything (e.g., emotional support, help finding support/care resources, insights as to what to expect), please be sure to ask the network for help. You can do this by clicking on the "Ask Network" link on your logged in home page or the "Questions" link at the top of this page. When you post needs/questions using our question feature, we route your question to everyone in the network who might be able to help. Also, know you can use the "Update" feature on the site to keep anyone who might be following you on WhatNext up to date.

    I look forward to reading how you progress. Our thoughts are with you on your journey.

    - David, Founder, WhatNext

  • macarena1's Avatar  

    New Follow 7 months ago

    macarena1

    is following I need to find a support group in my area, where can I find one,

  • macarena1's Avatar  

    Question 7 months ago

    macarena1 posted a questionBreast Cancer

    I need to find a support group in my area, where can I find one,

    • leepenn's Avatar

      Answered Question 7 months ago

      leepenn answered

      Good morning
      At my cancer clinic, support groups are advertised on a bulletin board. There's one for people in the 20s, 30s, and 40s. After attending a support group at which I was the youngest by around 20 years, I very quickly realized that my needs, hopes, fears, etc... might not be a good fit for that group. The people there were mostly wonderful, but the facilitator definitely had a perspective that did not match where I am in my life. When I shared my fear of not being able to return to a high level of fitness, her response was that I simply needed to grieve for my fitness and move on. I'm sorry, but I'm going to fight like XXX to get that back!!!! I'm not writing it off! Anyway, there's a monthly support group here in the twin cities (MN) that meets on Thursday nights... in about two weeks, I'll be trying that one out. I saw the flier on the bulletin board by the coffee makers in my clinic.
      So, I hope this helps.... And I am so sorry we share this diagnosis.
      Lee

    • Afterglow's Avatar

      Answered Question 7 months ago

      Afterglow answered

      You might try the American Cancer Society as they maintain lists of support groups in many communities. This is how I found Man-to-Man (prostate cancer support) in my area. The local ACS chapter may be of help, too. I'd also suggest talking to the local cancer treatment centers and hospitals as they frequently are aware of the support groups.

    • Unbelievable's Avatar

      Answered Question 7 months ago

      Unbelievable answered

      I live in Chicago area. I found two breast support groups through American Cancer Society.

      Another source might be checking with hospitals. Some hospitals offer a support group and some do not offer any support group.

      Good luck.

  • macarena1's Avatar  

    Wall Post 7 months ago

    macarena1 wrote on RE16's wall

    I am in my second month of chemotherapy and I am finding it very hard to cope with the emotional stress, any suggestions?

    • RE16's Avatar

      Comment 7 months ago

      RE16

      Cancer is a very emotional illness, I strongly suggest you tell your oncologist that you are having a difficult time coping with your current situation he can give you meds to help you cope and get you through treatment. Things will even out with time, but I will be honest with you and tell you that to some degree once we know we have had cancer we tend to always be a bit more emotional in regards to our health. Please speak to your doctor as soon as possible and let me know how you are doing.

    • leepenn's Avatar

      Comment 7 months ago

      leepenn

      hi there - what's your regimen like? i'm nine cycles into my 12 weekly cycles of taxol, with carboplatin on every third... i'm also on an experimental drug that seems to be mucking with my blood counts in a big way... that will be followed by 4 cycles of AC every other week.

      i find that exercise helps a TON!!!! i don't know what you like to do in terms of being active, but whatever it is, DO IT DO IT DO IT!!!! my mental state always improves after motion. for me, that is riding my bicycle. i'm no where near as fast as i was pre-chemo... but i still ride quite a lot. sometimes, the rides are short... sometimes, they are longer. i still ride to work and home each day, even if it takes a while!

      i also agree with re16 - talk to your medical team. your oncologist might have good advice - suggestions - maybe a perscription... your nurses may also have some excellent insights. and above, i see you are looking for a support group. we are similar in age... i don't know if we are similar in other aspects of our lives.

      i'm a chemistry professor, a mom, and a bike racer. i've the fantastic good fortune of being with the love of my life.... what else... i'm politically pretty left... i'm a dork... a nerdy sort of a dork (chem prof- duh, right?)... so, if that sounds like a person you might wanna e-support with, please email me. maybe we can help each other through this totally unfair and unfun journey... although, there are some fun aspects... like how awesome many of my friends have been... and how awesome those chemo-chair naps are (adavan and benadryl will do that).

      hugs.

    • stillkickin's Avatar

      Comment 7 months ago

      stillkickin

      I agree with everything that RE16 and leepenn said. I was an emotional wreck until my doctor put me on Prozac. That made it SOOO much easier to deal with everything that was going on in my life. By all means, look into that possibility.

      I have also found that there are small things I can for myself to help relax. I don't know if you're a reader, but I love to read, and reading really gives me an escape for as long as my nose is in a book. I also love bubble baths, and I relax all the way down to my toes when I'm soaking in that hot, soapy water. If there are things that you particularly enjoy, indulge yourself...you deserve it.

  • macarena1's Avatar  

    Experience 7 months ago

    macarena1

    Other Care

  • macarena1's Avatar  

    Experience 7 months ago

    macarena1

    Decision Point

  • macarena1's Avatar  

    Experience 7 months ago

    macarena1

    Loss

  • macarena1's Avatar  

    Experience 7 months ago

    macarena1

    Celebration

  • macarena1's Avatar  

    Experience 7 months ago

    macarena1

    Side Effects (Constipation): Experienced lots of constipation

  • macarena1's Avatar  

    Experience 7 months ago

    macarena1

    Radiation

  • macarena1's Avatar  

    Experience 7 months ago

    macarena1

    Drug or Chemo Therapy: I am unable to live normally like before

  • macarena1's Avatar  

    Experience 7 months ago

    macarena1

    Drug or Chemo Therapy: Neupogen has some strong side effects, lots of lower back pain, but is keeping my blood cell levels normal

  • macarena1's Avatar  

    Experience 7 months ago

    macarena1

    Procedure or Surgery (Lumpectomy): Very painful, margins were positive

    • leepenn's Avatar

      Comment 7 months ago

      leepenn

      did you have to have a second surgery, then?

  • macarena1's Avatar  

    Experience 7 months ago

    macarena1

    Oh No (Diagnosed)

  • macarena1's Avatar  

    New Follow 7 months ago

    macarena1

    is following KarenG_WN