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176 Goodwill
- 5 Followers
- 1 Following
mgm48
Libertyville, IL
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Patient: Prostate CancerPatient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 7 years ago, Male, Age: 63, Stage Recurrent, Progressing despite hormone therapy: Yes





Wall Post about 13 hours ago
mgm48 wrote on Pat44's wall
Good luck, sounds like you've had some less than spectacular medical help. I too have metastatic PC disease and if I can be of support, let me know. My hormone therapy period was a whopping 3 months. Now in chemo and doing very well physically. Working very hard to keep active and exercise regularly. I've been told tha tit will help and I'm all for what ever will help. My thoughts, prayers and best wishes go to you.
Update 1 day ago
mgm48 posted an update
Cycle 1 Day 11 I'm now past the the half way point of this cycle and I just cannot explain how well it is going. I'm guessing that the steroids may be responsible for some of how I feel. But, whatever it is, I'm really happy. When the I started the hormone therapy the largest side effect was a lack of energy. I drove 2.5 hours, cut the grass, cut up some branches for the trash, cooked dinner, and finished with a 4 mile bike ride. And I feel great!!! Not looking forward to the dentist tomorrow, ha, ha!
Keep it positive! One day at a time.
Comment about 9 hours ago
MichaelV
Soooooo glad to hear things are going well for you. Makes me happy and hopeful. Keep up the good results!!!!!!!!!!!
Update 2 days ago
mgm48 posted an update
Cycle1 Day 10 just made up a new word "me-phoria" that's euphoria that is specific and directly applicable to me. That's where I am today. It was a lovely day I spent with my wife, taking a walk, celebrating with family a nephew's confirmation and generally forgetting about PC. My only worry at this moment is that, maybe, just maybe the chemo won't do anything to the cancer if it's not making me sick and fatigued and .... But the doctors were pretty darn sure that that won't be the case. Ate dinner with a friend who just finished the 39 radiation treatments after surgery didn't get it all. I wish him well. But he's in worse shape than me. He's very tired and is hoping the radiation worked. I'm hoping he's right too. No one should have to deal with this s***. Here's to wishing for the researchers to find the "silver bullet". My day signs off in a state of me-phoria, I just haven't felt better in a long, long time.
Update 3 days ago
mgm48 posted an update
Cycle 1 Day 9 I'm feeling fine! Boy, when I started this chronicle I thought it was going to be a record to look back on to determine just who much gain I had versus how much it cost me. As well as, a measure of the quality of life. Now I feel that it has become a rather unbelievable celebration of each day. The docs tell me that it is "sure" to drive the PSA and lesions back. So now I'm just so positive that I wish I could send everyone just a bit of my extra, since that seems to be the one thing most of the people here really need. I wish all of you well. Stay tuned for tomorrow. Tonight my 35 year old son gets his associate degree and goes on to. 4 year school. It's never too late for mom and dad to be right.
Update 4 days ago
mgm48 posted an update
Cycle 1 Day 8. Feeling GR8!!!! Worked a 11 hour day and still have lots of energy. I wish it were just a bit warmer I'd do a bigger bike ride. Found some really great veggie burgers at Costco and they have a really good effect on my sensitive stomach. Bizarre, what you think of when all is well. I am beginning to think I'm the luckiest guy around.
Wall Post 5 days ago
mgm48 wrote on MichaelV's wall
Michael, can't help thinking about you. Thought I was taking the harder way with chemo. But you have had it tougher on the vaccine. Hope all is well.
Comment 5 days ago
MichaelV
Well, after recovering in one day, I went out the next and celebrated Mother's Day with some close friends. The payment for that was three days out of commission with a bad head/chest cold. As I have said many times, when it comes to the individual and treatment, it really is a XXX shoot. We all are built slightly different and have experienced different viruses over our lifetime which makes us each unique when it comes to "drugs". It is Thursday and I'm back to work, hopefully for the whole day.
I hope things keep going well for you and that your side effects are minimal for the rest of your treatments. I will let you know what the results are as time goes by. Right now the best news was that my co-pay on my Zytiga has gone down from $1243 to $729 for a three months supply!!!!!!! Horaaaayyyyyy!!!!!!
Update 5 days ago
mgm48 posted an update
Cycle 1 Day 7. Hip, hip hurrah!!! Heart rate is back to approx normal. I feel great. I was able to carry out a really full day of work and will cycle a couple miles yet tonight. Celebrating my good fortune. Wishing everyone else all the best. I'm blown away with how well my body is dealing with this. Maybe I'll be able to use Docetaxel to fight this for a long time, wouldn't that be great!!!
Comment 4 days ago
DaveWaz
That's great!
Update 6 days ago
mgm48 posted an update
Cycle 1 Day 6 update 2. Seems a bit of a fast has settled the intestinal cramps. Managed to get quite a bit done at the office even though I got in late. The chemo journey is going really well. I'm really feeling silly for worrying so much about it. I have noticed an elevated heart rate which is probably due to the impact on my blood. I'm celebrating my good fortune.
Update 6 days ago
mgm48 posted an update
Cycle 1 day 6. Slow start to the day. Have stomach cramps and loose bowels. Feeling s***y. Still a bit short of breath. But still if this works it's not bad. Going in to the office now.
Update 6 days ago
mgm48 posted an update
Cycle 1 day 6. Slow start to the day. Have stomach cramps and loose bowels. Feeling s***y. Still a bit short of breath. But still if this works it's not bad. Going in to the office now.
Update 7 days ago
mgm48 posted an update
Cycle 1 day 5, not bad, feeling a little out of breath and some loose bowels with the upset stomach to go along but all in all not bad. As i said earlier if this keeps up it will be a real piece of cake and I will just be hoping for good numbers on the 31st.
Update 8 days ago
mgm48 posted an update
Cycle 1 Day 4, minor ick factor. Slight headache, upset stomache. Did not get a great night's sleep, kept waking up. Took a 3 mile (short) slow speed bike ride and a 2 mile walk with my wife. Feeling somewhat limited physically but not bad. So far I'd say that I'm having it very easy and if this stuff works, I'll be very happy. Maybe all the anxiety about chemo was unnecessary, I hope so.
Update 9 days ago
mgm48 posted an update
Cycle 1 Day 2 was a good one. Very tired from prior night's insomnia but fealt ok. Day 3 has also been good, cut the grass and did some shopping. Slight nausea and head ache but slept soundly last night. Still wondering when/if it will hit me. With some luck, I'm going to tolerate this stuff better than most. Wonder how it will look when the next blood draw is done.
Update 11 days ago
mgm48 posted an update
Last night was mostly sleepless (probably all the steroids), upset stomach, and low level head ache (went away after i got a nap at 3:00 AM). Other than tired (insomnia can do that or the docetaxel can) and still indigestion no significant side effects.
Experience 11 days ago
mgm48
Drug or Chemo Therapy (Chemotherapy): Day of was smooth as glass. No day of side effects and Susan was so nice. They give the Docetaxel a little slower the first time. I can't believe the saints they call oncology nurses. My blood pressure has been unusually high - can you say apprehensive about the unknown? I'm waiting to see which side effects show up, I've been assured that there will be some. The steroids have me a nagging head ache but think a night's sleep will make that go away.
Update 14 days ago
mgm48 posted an update
Hey just noticed 96 goodwill's. Wow thanks for all the support I hope everyone beats this evil disease. I'm always in awe of the courage others share in their journey. I hope to be just half as good!
Wall Post 14 days ago
mgm48 wrote on MichaelV's wall
Great video. I'm also a Badger, which bar did you work? As I recall there was quite a student life in most of those joints. Last time in Madison seemed that nearly all were gone but then so is the 18 year old drinking age.
I'll keep a bit of a diary at my What's Next page as I go through the chemo. I had thought the Provenge was relatively mild in the side effects but you certainly can't say that exactly.
Good luck we are going to kick c's *ss!!!
Comment 13 days ago
MichaelV
I worked and lived above The PUB for three years. I had brats at The Brat House and trudged up the "hill' for three years. The first year I lived at the Univ. YMCA and was a life guard at the pool and Pres. of the House. I'm a XXX and some of the meetings were off the wall as were the conventions I went to. Got drunk in a small motor boat on the lake and fell asleep on the roof of the Pub one day trying to get suntan with a 12 pack of beer. Ended up in Univ. Hospital with 3rd degree burns, you know, the usual college dumb stuff. And you????
Comment 11 days ago
mgm48
Panty raids on Sellery Hall, too much beer, crazy roommates, practical jokes that never quit, intermural hockey, and ridiculous accounting home work. Yup, I loved every minute, but you really can never go back. I've tried sort of.
Update 14 days ago
mgm48 posted an update
Just realized that but for the " hope" of the trial, I probably would not have been as open to the Docetaxel. See there' s a silver lining! It's always there - I told you!
Wall Post 18 days ago
mgm48 wrote on MichaelV's wall
How are you? Been thinking of you. Docetaxel is next for me, feeling a little apprehensive
Comment 17 days ago
MichaelV
I had my second Provenge treatment. The first part was a it was before. The infusion three days later went well until I was riding back on the train when I started to feel rather tired. I got back to my office in Highland Park and only stayed for an hour and had to go home, now in Grayslake. I spent that night, Sat. and Sun. in bed because I had no energy. I have to say this whole battle is taking a toll on me. When I go and check things out I find out that no one really knows. It is their business so they have to take some kind of stand but when you read what others are doing you really understand what a XXX shoot it is and they are rolling the dice with my life. I'm not against that but I would feel more comfortable if more doctors "owned it" when they tell you something instead of pretending they really know what they are talking about. Many of the people in my position get tired of the research and the anxiety it produces on a daily basis. Part of what troubles me is the personal side of my life which has gone into to toilet as well as the business side of my life. I keep a very positive outlook everyday but by the end of the day I look forward to going to bed. Never had that feeling for the first 71 years of my life. I am now going to send you a private link to a video the nurses shot with my cell phone.
http://www.youtube.com/watch?v=sg4VaCTj2mM
Well, I hope all goes well for you. Want to know how you feel as you go through the treatment. All the best to you and hope for good family support.
Michael
Update 18 days ago
mgm48 posted an update
Oh, spit! Just got a call. After all the considering and emotional capital, I have been rejected for the trial. I was ok doing chemo plus but now they say chemo only. My info says it is worth a small overall survival plus, kinda wonder if it is worth it!
Comment 13 days ago
MichaelV
After all you have put yourself through, I am sorry to see that you got rejected for the trail. They ponder and move the numbers and we hope that we win the prize of remission. It becomes a bit of a nasty game as there in not enough info and the patient begins to wonder is it profit and greed that is the motivation factor or is financial consideration at the top of the list? There are many good people in the field but I have witnessed those who think the "old" way which to me is "give him the stuff and he will live an extra 3-4 months" but what quality of life will the man have? Just killing everything in sight in the hopes that the fast growing cancer will be knocked out works on some cancers but not on many others. Me thinks we need to capture the enemy and examine what makes him tick rather than trying to blow up the whole battle field just to find out that new troops from another division are being sent in and the good guys have already been greatly weakened by the decimation of both sides of the war in the name of progress. I will now step down from my soap box.