• Kristy728's Avatar

    Kristy728 wrote on NanaL's wall

    Hope things are going well for you :-)

  • NanaL's Avatar

    NanaL posted an update

    Hi my WhatNext family, I just wanted to share a few things with all of you. First of all I had my scans on Tuesday and saw the Dr on Wed. Good News! All is stable and there have been no changes or growth! I am on a one month chemo break and my husband and I leave next week for vacation! I'm really looking forward to getting away and relaxing and enjoying the scenery on our road trip. Also seeing family we haven't seen for over a year will be great! Blessings to all!

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      That's good news, enjoy the trip and enjoy seeing the family. I find that I enjoy getting together with family so much more now, post treatments. Have fun!

      29 days ago
    • Lirasgirl33's Avatar
      Lirasgirl33

      That's great! :) I am so glad things are stable and that you are getting to go on a fun road trip with hubby. Enjoy your trip and take lots of pretty pictures. :) Hugs.

      29 days ago
  • ibcarolek's Avatar

    ibcarolek wrote on NanaL's wall

    Hi Nana, You mentioned that it took 2-3 months to be approved for SSD - did you file on your own or via an attorney?

    By the way, thank you for being part of this site - I read your journey / wall and admire your strength and perseverance and your big heart to share, help and encourage all of us. You're wonderful.

    1 Comment
    • NanaL's Avatar
      NanaL

      Thanks so much for the encouraging words! You're too sweet! I didn't use an attorney to file for SSD as they take 25% of your first check as their fee. I was blessed to be assinged a wonderful caseworker at our local SS office and he was a great help. I applied mid Jan. and I believe I received notice the first week of March that I had been approved. I stopped working on Feb. 5th so I therefore have to wait 6 months to receive my 1st check which will be in August. I don't know whether I stated that right now I'm receiving short term disability thru my pension plan. Any time I can help please feel free to ask. I love this sight because it's so nice to be able to share information with each other. Blessings!!

      about 1 month ago
  • NanaL's Avatar

    NanaL wrote on Willbill's wall

    Hang in there Willbill. I know exactly how you feel. I also have metastatic nodules in both lungs which is rectal mucinous adenocarcinoma. It was worse hearing the news 2nd time around, just like you stated. I was so angry when they told me I would have to go thru a lung wedge resection and biopsy. I have been doing maintenance chemo since Jan. 2012. Feel free to vent, ask questions or just share info with us. Blessings!!

    3 Comments
    • Willbill's Avatar
      Willbill

      Thanks. Blessings to you also. I am in the hospital now. Had my ileostomy reversed and next week I will meet the thoracic surgeon. So, did you have your lung surgery and then start doing maintenance chemo? And I am interested to know how often you have chemo (and what kind) and how your PET scans have looked. Sorry about all the questions. I am trying to learn as much as I can.

      about 1 month ago
    • Fitness64's Avatar
      Fitness64

      Same thing. Stupid lung. I was super XXX how dare me just finish treatment and now my lung n surgery. But u do it and move on

      about 1 month ago
    • NanaL's Avatar
      NanaL

      Willbill, I hope your recovery from ileostomy goes well. I had lung surgery, biopsy's confirmed malignancy and then had another port put in. I then started chemo once every two weeks. I did 8 treatments with ironetican, avastin, leucovoran and 5FU. In May of 2012 they took away the Ironetican. My ct scans have been holding stable with very minimal growth. I get rescanned on April 15th. I had chemo last week, but am now on a 1 month break as my hubby and I are going on vacation for 12 days at the end of the month and I want to feel as good as possible. I'll start back up on May 8th. Best Wishes and let us know how you're doing.

      about 1 month ago
  • NanaL's Avatar

    NanaL wrote on Kalya's wall

    Kalya, ask lots of questions concerning your surgery. Take a friend of family member with you to be another set of ears. Let them ask questions. I know this is all very scary but once you get some answers and know what you're dealing with it will get easier. I am sending prayers your way and please keep us posted.

  • NanaL's Avatar

    NanaL started following

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