RE16's Avatar

RE16

Lodi, CA

  • Survivor: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma
    Patient Info: Finished active treatment more than 5 years ago, Diagnosed: over 14 years ago, Female, Age: 55, Stage IV, HER2 Positive: No, ER Positive: No, PR Positive: No
  • Lisa626's Avatar  

    Wall Post about 18 hours ago

    Lisa626 wrote on RE16's wall

    Hello Re. I am encouraged to see that you are a 14 year Stage IV cancer survivor. I finished active treatment 7 months ago for Stage IV and the latest scan last month shows all is well. You give me hope!

  • ktsmomus' Avatar  

    Wall Post 3 months ago

    ktsmomus wrote on RE16's wall

    Hi RE16
    What kind of treatments did you have to take. I have breast cancer > Invasive(Infiltrating) Ductal Carcinoma
    Stage 1, Her2 Positive: No, ER Positive: Yes, PR Positive:Yes
    I was diagnosed in August of 2011, had lumpectomy on Oct. 5, and still waiting for them to decide if I need Chemo before the Radiation treatments , but I have been started on hormone therepy : Femara .

  • RE16's Avatar  

    Wall Post 3 months ago

    RE16 wrote on PhillieG's wall

    Hi Phil, just popped in to say hello and wish you well!

    • PhillieG's Avatar

      Comment 3 months ago

      PhillieG

      Hi RE, doing ok..trying to spend a little more time over here now. Hope you are well too.

  • bonjour's Avatar  

    Wall Post 3 months ago

    bonjour wrote on RE16's wall

    So good to hear. Wonderful to see a 14 year survivor too! Yea! Great picture. I see it on the opening page of WN every day. Thanks for sharing. Lots of Goodwill points--wow!

  • RE16's Avatar  

    Experience 4 months ago

    RE16

    Procedure or Surgery (BONE SCAN): Had my first bone scan in 6 years a few weeks ago, I hate those things just because the machine comes so close to your head! If it were not for that it is truly the easiest test we as patients have to endure. I am happy to report the results were an all clear cancer wise but a good amount of arthritis in my back area, much better than cancer!

    • grams2jc's Avatar

      Comment 4 months ago

      grams2jc

      I hated the bone scan too. Very scary.

      So glad "all" that they found was arthritis!

    • lynn1950's Avatar

      Comment 3 months ago

      lynn1950

      Isn't it funny that we can be "glad" for arthritis!?!!

    • KarenG_WN's Avatar

      Comment 3 months ago

      KarenG_WN

      That is great news!

  • macarena1's Avatar  

    Wall Post 4 months ago

    macarena1 wrote on RE16's wall

    I am in my second month of chemotherapy and I am finding it very hard to cope with the emotional stress, any suggestions?

    • RE16's Avatar

      Comment 4 months ago

      RE16

      Cancer is a very emotional illness, I strongly suggest you tell your oncologist that you are having a difficult time coping with your current situation he can give you meds to help you cope and get you through treatment. Things will even out with time, but I will be honest with you and tell you that to some degree once we know we have had cancer we tend to always be a bit more emotional in regards to our health. Please speak to your doctor as soon as possible and let me know how you are doing.

    • leepenn's Avatar

      Comment 4 months ago

      leepenn

      hi there - what's your regimen like? i'm nine cycles into my 12 weekly cycles of taxol, with carboplatin on every third... i'm also on an experimental drug that seems to be mucking with my blood counts in a big way... that will be followed by 4 cycles of AC every other week.

      i find that exercise helps a TON!!!! i don't know what you like to do in terms of being active, but whatever it is, DO IT DO IT DO IT!!!! my mental state always improves after motion. for me, that is riding my bicycle. i'm no where near as fast as i was pre-chemo... but i still ride quite a lot. sometimes, the rides are short... sometimes, they are longer. i still ride to work and home each day, even if it takes a while!

      i also agree with re16 - talk to your medical team. your oncologist might have good advice - suggestions - maybe a perscription... your nurses may also have some excellent insights. and above, i see you are looking for a support group. we are similar in age... i don't know if we are similar in other aspects of our lives.

      i'm a chemistry professor, a mom, and a bike racer. i've the fantastic good fortune of being with the love of my life.... what else... i'm politically pretty left... i'm a dork... a nerdy sort of a dork (chem prof- duh, right?)... so, if that sounds like a person you might wanna e-support with, please email me. maybe we can help each other through this totally unfair and unfun journey... although, there are some fun aspects... like how awesome many of my friends have been... and how awesome those chemo-chair naps are (adavan and benadryl will do that).

      hugs.

    • stillkickin's Avatar

      Comment 4 months ago

      stillkickin

      I agree with everything that RE16 and leepenn said. I was an emotional wreck until my doctor put me on Prozac. That made it SOOO much easier to deal with everything that was going on in my life. By all means, look into that possibility.

      I have also found that there are small things I can for myself to help relax. I don't know if you're a reader, but I love to read, and reading really gives me an escape for as long as my nose is in a book. I also love bubble baths, and I relax all the way down to my toes when I'm soaking in that hot, soapy water. If there are things that you particularly enjoy, indulge yourself...you deserve it.

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    Update 5 months ago

    RE16 posted an update

    I got my cancer marker results today and I am happy to say they are pretty good!

    My CEA is 0.8 and normal is anything below 2.5.

    My CA15-3 is 12.5 and normal is anything below 30.

    Very happy with these results.

    • NewFlower's Avatar

      Comment 5 months ago

      NewFlower

      Great news Rena.Congratulations

    • RE16's Avatar

      Comment 5 months ago

      RE16

      Thank you everyone for your awesome support!

    • DaveWaz's Avatar

      Comment 5 months ago

      DaveWaz

      Whoha! Thanks for being such an inspiration to us all.

  • NewFlower's Avatar  

    Wall Post 5 months ago

    NewFlower wrote on RE16's wall

    Rena,
    I just read about your eye. I am very sorry that you have to undergo another surgery, yes last surgery sounds like a myth.
    I am having a similar situation, red eye and scheduled to see ophthalmologist tomorrow. Since I moved I was not checked my vision and kept postponed. Now this red eye.
    I will let you know.
    I will be thinking of you on the 10th.
    Hugs

    • RE16's Avatar

      Comment 5 months ago

      RE16

      Let me know how your appointment goes, you will on my mind and heart!

  • RE16's Avatar  

    Update 5 months ago

    RE16 posted an update

    Just got results on my cancer markers they are within range and actually low! Very good news indeed!

    • NewFlower's Avatar

      Comment 5 months ago

      NewFlower

      Rena,
      happy for the good news. Congratulations! Mine is due in October.
      Hugs

  • Jivan's Avatar  

    Wall Post 5 months ago

    Jivan wrote on RE16's wall

    Respected Madam, Thanks lot of for your feedback, Thanks once again.
    Can I sand medical file of my sister in law (Manishaben) to you. so you know all thing which is we completed here, My Email Id is [email redacted], if you send me your email id so I can send you PDF file of his medical treatment.

    I am working in divyabhaskar.com (NO 1 gujarat news paper) . my family is living in At: Vandarvad, Dist: junagadh, state: Gujarat. (India)

  • RE16's Avatar  

    Experience 5 months ago

    RE16

    Oh No (Mass Growing in my Eye): Well darn it, I recently had my gall bladder out and thought that would be my last surgery for awhile it turns out I was wrong. For several weeks now I have had a really irritated very red eye. I have known that I have a small growth in it as it has been there for years and the eye docs I have seen have not been concerned about it. Well last Monday I went to see an eye specialist and he was quite concerned. He said there is a slight chance it can be cancerous and it must come out....oh great! To say I was upset would be a major understatement. I left his office a bit stunned with a vile of drops to put in eye (if the drops help then no surgery, they are not helping.) I decided to go see my oncologist and get his opinion. He saw me right away (he is such a good dr) and reassured me that he has never seen an eye cancer in that location but that it is possible. He also told me the dr. that I am seeing for my eye is very good. He said it is a small mass and if cancerous would be in the beginning stages. Surgery is scheduled for the 10th I will let you all know how it turns out.

  • RE16's Avatar  

    Experience 5 months ago

    RE16

    Oh No (STOMACH ISSUES): I have had stomach issues ever since chemo in 99, they relented for time then returned after chemo in 07. I have been told after much testing that I have IBS (irritable bowel syndrome) I had an ultrasound, endoscopy and colonoscopy so I accepted that that must be my problem. Well in July my tummy got worse and remained worse for 8 weeks. I went back to the doc to they did a CT scan (clear) then an MRI (not so clear). It turned out that my gall bladder was going bad on me. Long story short I had it removed several weeks ago (surgery #11) and had instant relief. I had to wait 5 days for pathology to let me know if it was cancer related, happily it was not. I know many of us instantly worry that anything that goes awry may well be cancer so it is always such a great relief when it is not!

  • RE16's Avatar  

    Wall Post 5 months ago

    RE16 wrote on karenglowacki's wall

    Fantastic News Karen, very happy for your father in-law!

    • karenglowacki's Avatar

      Comment 5 months ago

      karenglowacki

      Thanks so much! He still feels awful and it's going to be a long road to recovery. But at least his body can start to heal. =)

    • RE16's Avatar

      Comment 5 months ago

      RE16

      Yes it takes some time but he will get there, rest and being kind to ones self goes a long way! Hugs to all involved!

  • RE16's Avatar  

    Wall Post 6 months ago

    RE16 wrote on PhillieG's wall

    Hey Phil, hope your doc comes back from vacation soon so you can get that taken care of. I know for me I prefer my personal surgeon rather than someone I am not familiar with! My best to you and have a good weekend!

    • PhillieG's Avatar

      Comment 6 months ago

      PhillieG

      Thanks RE. He's very good at what he does. I like having doctors who I really do not have to question. I certainly have asked questions and he always has taken the time to go over things with me. My whole team is great from my Oncologist on down.

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    Update 6 months ago

    RE16 posted an update

    Just wanted to wish everyone a good 3 day weekend rather you are staying at home or heading out for an adventure enjoy it my friends! :-)

    • lynn1950's Avatar

      Comment 6 months ago

      lynn1950

      Hi RE. It will be a quiet weekend here. My husband is on a fire and my son will be camping. I'm looking forward to the peace and quiet. : ) Happy weekend to you, too.

    • BellaLuna's Avatar

      Comment 6 months ago

      BellaLuna

      Hi RE. Thanks for the well wishes. Enjoy yours as well!

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