IDec. 2nd is when I found out I had a tumor in my bladder and then they did a scope ,then shaved out the tumor but it was also in the wall of my bladder. They started me on chemo and have had 2 sessions so farand will have about 6 more before I have surgery. The options they gave me was bag on the outside,the Indiana pouch which is in the inside with a small port to empty out urine about 5-6 times a day or the reconstruction bladder
-
ready4nascar started following
User: RachaelC@StF
-
Jay wrote on ready4nascar's wall
P.S. I had this done at Memorial Sloan Kettering. Dr. Bernard Bochner is really great. He does these all the time and is the best! Do your best to go to a really good hospital that does this a lot if you can't make it to Memorial.
-
Jay wrote on ready4nascar's wall
Hi, I have an Indiana Pouch and I love it! It works well and doesn't leak. I would hate to have a bag on the outside. It was kind of weird getting used to cathing my bellybutton but I have gotten used to it and now it's nothing. I now think it would be strange to void the conventional way! Once in awhile I whip it out and stand at the toilet for a minute or so and then realize I don't pee that way anymore and it makes me laugh at myself :-) Good luck to you and I know you'll get through this. It will be OK after awhile. Stay positive.
-
calypsois wrote on ready4nascar's wall
How are you doing? Still In chemo? See my response to your post.
-
-
ready4nascar asked a questionBladder Cancer
I am wondering also about a cancer center and they did not get all of my tumor out either. Thats whay I am in chemo . I
4 answers-
-
calypsois
over 1 year ago1. Where are you going for your surgery and chemo? A major cancer center, I'm hoping? It is so very important to have the best. Bladder cancer is very sneaky and you want to get this as right as possible now. I'm assuming you are T2? and, maybe G3? I was T2G3 after my last cysto before my RC. Turned out, I was T3G3N1 afterwards. Not meaning to scare you, but I'm really glad I have one of the best and at Cleveland Clinic. Per US News, CC is: #2 in urology and #9 in cancer in the country.
2. It seems that the big majority of RC patients are quite happy with their diversion choice, regardless of what it is. I have the Indiana Pouch. My pouch and I get along just fine. i just didn't think I could do the "bag" and turns out we may not have been so compatible. I have tape allergies, and may have had troubles with the adhesives used to attach the "bag". I do have friends who are quite happy with their "luggage" and have active lifestyles. (There was no "." at the end of your post, so I'm not sure if I'm seeing it all. The last of what I see is: "The options they gave me was bag on the outside,the Indiana pouch which is in the inside with a small port to empty out urine about 5-6 times a day or the reconstruction bladder"). So, If your question is what diversion shall I select, I guess I haven't a definite answer. Go with what the facts tell you and then let "your gut" have a big part in it. I didn't have the opportunity to select a neo (bad urethra), but all the facts presented - and "my gut" - I chose the IP, and very happy I did. Let me know if I can help more. -
leroy
3 months agoI'n going for my 6th operation since march 2012.Tumors are what they call on a fast track.Tumors come back so fast with in days after they removed them. also get cemo treatment. They tell me it's hard to get the tumors under control.We will get the tumors under control along with cemo. when under control you need to be checked every three months to see if the cancer has returned.THIS IS NOT NORMAL FOR TUMORS TO GROW SO FAST, BUT I'M NOT A NORMAL PERSON EITHER??
-
