• rhumbert's Avatar

    rhumbert shared an experience

    Side Effects (Other): I just completed 6 weeks of radiation treatment. I did good for the first 5 weeks then I started experiencing fatigue, weight gain and 2nd degree burns in the area where the tumor was located.
    My Dr is awesome, he prescribed me an aloe base burn cream with hydrocortizone in it and I am doing much better.

    1 Comment
    • akristine's Avatar
      akristine

      Good for you! I just finished my 6th treatment and have 24 to go. The area around the radiation seems fine so far and the only side effect I have is fatigue. I have aloe vera gel I can use if there are burns.

      over 1 year ago
  • rhumbert's Avatar

    rhumbert shared an experience

    Radiation (External radiation ): I am currently at the end of my 3rd week of radiation treatment and have 3 more to go. So far I am doing great. It takes the technician longer to get me situated on the table than the actual procedure.

  • rhumbert's Avatar

    rhumbert asked a questionSarcoma - Adult Soft Tissue Cancer

    Does ACS assist with financial support for gas expense?

    7 answers
    • shauna0915's Avatar
      shauna0915

      I see the phone number was blocked on my post. The phone number is available at cancer.org. I'll try typing it one more time to see if I can get it to post. 800 227 2345

      over 1 year ago
    • mspinkladybug's Avatar
      mspinkladybug

      ACS does give a 50 gift card every 12 months for gas and they do offer a ride program where if u need a ride a volunteer will take you to treatment and pick you up if you are going to a cancer center a few hours away from where u live talk to the about a gas program lost of them have it youjust have to ask We drove 2 hours 1 way for my treatment.

      over 1 year ago
    • toml's Avatar
      toml

      The acs does have the gas card, here in CA. it pays at $.14 a mile. It helps a lot. Also the cnacer center I go to gives me Chevron Gas cards to help, you have to ask about them.

      over 1 year ago
  • DaveWaz's Avatar

    DaveWaz wrote on rhumbert's wall

    Welcome. Thank you for taking the time to register and share your journey. I know we have several people on the network with sarcoma experience so when you are ready please do not hesitate to reach out to them.

    If you need anything (e.g., emotional support, help finding support/care resources, insights as to what to expect), please be sure to ask the network for help. You can do this by clicking on the "Ask Network" link on your logged in home page or the "Questions" link at the top of this page. When you post needs/questions using our question feature, we route your question to everyone in the network who might be able to help. Also, know you can use the "Update" feature on the site to keep anyone who might be following you on WhatNext up to date.

    As things progress, I look forward to reading how you are doing.

    - David, Founder, WhatNext

  • rhumbert's Avatar

    rhumbert shared an experience

    Celebration (Cancer is Gone): 1 week after my surgery, my Dr informed me that I was cancer free and that my tumor had been encapsulated and that due to the type of tumor I had, chemo therapy would not work nor be needed.
    I am scheduled to meet with radiation and oncology this coming week and will be undergoing radiation treatments only.

  • rhumbert's Avatar

    rhumbert shared an experience

    Drug or Chemo Therapy (Pain medicine): I was diagnosed with Cancer during my senior year in college,( later in life attending). I was placed on pain killers 2 weeks before my surgery (Vicodin) minimal impact to daily life, after the CT Scan and Ultra Sound.
    1 week before surgery I was placed on Dilaudid which made me sleep all the time. I was also in the middle of midterm exams during this time period.
    Positive thoughts lead to positive results. I scored a 98, 96 and 100 on 3 midterm exams, despite cancer surgery and spending the night in the hospital.