I am 6 mos past radiation; 1 yr surgery. Had to stop chemo; the 2nd treatment nearly killed me! Had a CT scan yesterday. Probably won't get results till my appt net month as that is dr's policy [email redacted] ;) Last one in Oct was "great". Can't believe the anxiety (hard to control and my therapist/natural dr is in China). Am stressed beause I've had some rectal bleeding recently which I've assumed is my hemarhoid. But it increased yesterday (from barium?). Seems better today. I didn't know that radiation "changes" occur about this time so I'm thinking maybe my gut is just sensitive right now. Exp'd some vaginal bleeding in Dec and thank God that biopsy came back as "consistant w radiation change", thanks be to God. Some days being positive is a real grace; other days it's hard work. Anything odd happening in your body? Be well Sue..
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SettledSue wrote on lchapman2000's wall
I wish you the best in your recovery from the aneurism. Someone I work with was just diagnosed with this yesterday. She will be undergoing coil surgery and getting a stent.
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3XSurvivorGal wrote on SettledSue's wall
Glad to meet you SettledSue. Last time I was on this site I had a hard time finding clear cell survivors; not too many women have this type of CA. I will keep you in my prayers and hopefully be in touch via What Next. What a blessing to know there are survivors out there. We need that hope and encouragement. How are you?
By the way I am 69 yrs. Stage 1A, 5 mos out of radiation.4 Comments-
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SettledSue
about 1 month agoI bet the doctor would let you know before your next appointment if the CT scan showed anything, so the longer it is that you haven't heard anything, the more likely it is that the news is good. Sue
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3XSurvivorGal
about 1 month agoFunny, I was just thinking the same thing. And as they say "No news is good news" ;) Thanks for the encouragement. I'm "the strong one" to those who (think they) know me, but no one sees what you're thinking or feeling inside. For the most part I am positive and it sound like you are too. But waiting & wondering isn't easy for me.
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SettledSue wrote on Pinky7's wall
I had the carbo taxol treatments every 21 days for six treatments. I did have some side effects but they varied over the course of the treatment. The nausea was very mild and I never vomited. I did take compazine for the first couple of days whether I felt nauseous or not. The nurses had instructed me to do that.
My hair started to fall out about two weeks after the first treatment. I felt a tingling in my scalp about a day before I started losing my hair.
After the first treatment I had bad pain in both knees and after the second treatment it was only in one knee. I now think these pains came from the Neulasta shot I had a day after each chemo. Both taxol and Neulasta can cause bone or joint pain, but in general I think Neulasta side effects tend to decrease with each treatment whereas taxol side effects tend to get worse with subsequent treatments.
After my third treatment I got some neuropathy (tingling and numbness in fingers and toes). I also started having some gastro-intestinal problems. My doctor reduced my dose of taxol for the last 3 treatments and the neuropathy didn't get any worse and now is almost completely gone. My stomach problems also got better, but that has taken longer.
Good luck with your treatments! Sue
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Pinky7 wrote on SettledSue's wall
Hello SettledSue, Just wondering How the carbo/taxol treated you? Any nausea, vomiting? How long did it take for your hair to fall out. I start the same treatment Wed. Did you get it every 21days and how many treatments? Are you Snowed in??? Thanks for responding
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SettledSue wrote on Pinky7's wall
Hi Pinky. I also have clear cell endometrial cancer. I finished my chemo (carboplatin and Taxol) in October, and my picture shows the regrowth of my hair. It is quite thick now, and I am feeling pretty good. Feel free to ask me any questions about chemo. I only had 3 internal radiation treatments, no external ones. I am 61, stage 2, and live in NJ. Sue
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SettledSue wrote on marie60's wall
I'm surprised you are getting a port. I only had trouble getting the IV put in on my fifth treatment. If I have to have chemo again I imagine I will get a port.
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