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Take Me: Home People storknurse's Profile
  • storknurse
  • Rancho Cucamonga, CA
  • Member Since Nov 2012
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Silver_star_empty
My Goodwill help 21

Their Diagnoses (1)

    • Patient: Lung Carcinoid Tumor
    • Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 1 year ago, Female, Age: 67
    • View this journey (1 Experience)

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  • storknurse's Avatar

    storknurse wrote on georgettew68's wall

    I had a 1.8cm, typical, node negative, low mitotic rate lung carcinoid resected May 2012. Other than every 3 month carcinoid blood and urine tests and every 6 month scans I have not had further treatment. It would be interesting to know what the pathology of your tumor was that got you into a clinical trial and what about it made the doctor choose chemo/radiation.

    • 0 Like
    3 months ago
  • storknurse's Avatar

    storknurse wrote on mjkulla's wall

    I also had a pulmonary carcinoid with RLL resection by VATS in the May. So far all of my labs are good and I will have my first octreoscan as soon as the insurance approves it. My nodule did have receptors but I have no syndrome symptoms so am not having any therapy at this time. I hope to see a carcinoid specialist as soon as my insurance allows but I have talked to one on the phone. I had no syndrome symptoms before surgery and do not have any now. I If you haven't discovered Lovable Lungnoids on Facebook yet, please come join us. I wish you well and hope to see you at the LL soon.

    • 0 Like
    6 months ago
  • storknurse's Avatar

    storknurse started following

    Question: How do you deal with chronic pain resulting from treatment that interferes with your life?

    • View
    6 months ago
  • storknurse's Avatar

    storknurse started following

    Question: Has anyone had carcinoid tumor of the lung and had a thoracotomy to remove it? Need to see if anyone is going through what I am.

    • View
    6 months ago
  • storknurse's Avatar

    storknurse shared an experience

    Procedure or Surgery (Surgery): I am I am told that the chest pain from adhesions, that happens with every deep breath, will not ever go away.

    • View Journey
    6 months ago
  • storknurse's Avatar

    storknurse started following

    User: GregP_WN

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    6 months ago

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  1. What is that Goodwill number?

    The Goodwill number is one way you can tell how helpful each WhatNext member has been in providing information that may help others in the network. Someone with a “0” by their name may mean that they are new to the network, while someone with a higher number means that they may have either posted more information in their journey, asked questions and/or provided answers that others may have “liked.” Your number can change daily based on your contributions and involvement.

    As you get involved and contribute on WhatNext, you’ll be recognized with the following badges:

    Silver_star_empty 0 - 500
    Silver_star 501 - 1499
    Green_star 1500 - 3499
    Gold_star 3500+
 
 
 
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