susie81610

Just checking in to see how you're doing. We're thinking of you.

susie, I know that feeling, waiting, wondering, ever time I feel something I think, there it is again. But then, there's the overwhelming feeling and rush when you here, "everything looks good". I sometimes get a rush so bad I get dizzy. Best of luck to you, I'm sure it will be nothing but good news.

I hope you will have good news in those test results. Waiting can be frustrating.

Susie, I'm sorry to hear of your situation. Do you have a local church that you could visit? I have found comfort there you could possibly form a support network there as well. I'll keep you and your family in my prayers.

Susie,
I too am married, was told that we had to have a spenddown.
My husband moved out, my spenddown was then much much lower.
My doctor, and the hospital are aware of how the spenddown works....
My doctor ordered a scan, which totaled to an amount which was way over the spendown amount.
The hospital made sure the total bill was fax to the state that day, and my spendown was than met. The difference the state will pay, and the spendown amount will be covered by many charites that the hospital has. Talk with both your doc, and the hospital billing office, or charity officer, you will be surprised by how they can help you. They deal with this issue on a daily basis
Karen

My wife & I are over 70. We both had life threatening diseases in the last 11 years.We had to file chapter 7 with the grand that was left in my 401K 7 years ago, and we later lost our home of 22 years.
I only see the doc every 6 months for refills and blood work. All the "tests" they want to do are not done because even with insurance, the co-pays are TFH.
My health is good enough to get through a DOT physical, which allows me to drive commercially, but I stay away from these "experts" other than get refills on my tier 1 meds because they bankrupted us once, and I don't have anything else to give.
I'll die driving...hope I don't take anyone else with me when I do.

Awesome - have a blast! Karen is a huge Springsteen fan and is upset he's not coming to Indy. Let us know how it was.

Thanks Dave we did have a great time that man sure can put on a show. He started and hr late that was the only thing that made me mad but he made up for it at the end. Great seats and great company my best buddy and good people to sit next to whomever they were :) yeah had a drunk behind us but he was a fun one. lol
I sure am paying for it today every bone in my body hurst lol but at chemo today so will just relax.

Now that all you have talked about sounds good. lol Thought it was just me must be the new chemo and meds mix? Just happy to be eating finally maybe finally will put on a few pounds wouldn't hurt. Well keep munching away my friends and thanks again.

Lemon! Craved anything and everything with lemon! I went with the cravings, however. I wasn't eating much so whatever I craved and could get down, I did.

I didn't mind the cravings as much as I hated not being able to eat my favorite foods (i.e. chocolate!). Everything resolved a few months after I finished chemo.

Cravings, wonderful cravings. When my blood count was dangerously low I craved black pepper chicken (high in protein and iron I later found out), When my magnesium was low I craved artichokes. Sometimes cravings are the bodies way of saying it needs some vitamin, mineral or essential nutrient and sometimes its just saying it needs comfort. Sometimes when in treatment you just don't feel like eating so when something is being craved go for it. I would journal your cravings and see if there is a pattern related to your treatments and labs. It may help you and the treatment team find a pattern of changes.

Glad things are going well!

That sounds pretty good - you enjoy the weekend!

Thanks Dave have tomorrow free will check things out.

Dave:
Just wanted to let you know that ImermanAngels contacted me today I emailed them last Friday. Took my information and said if they can find someone we will connect through email first. Something to look forward to hope it works out.
Thanks again
Susie

Good, Susie. They are great folks. Please keep us posted and we continue to search for you. Stay as strong and amazing as you are!

Hi Staci:
Thanks for checking in. It sure was a beautiful day got to enjoy about an hour of it then my sister showed up then her kids then so much for the day but there is always tomorrow. Supposed to rain but thats ok I have appts as long as it warming up I'm fine with some rain. Hope things are well with you don't think I could handle Texas heat lol. Have a great day.
Susie

I'm doing good, yeah Texas heat is something to get used to. I've lived here all my life and I'm still not use to it cause you never know when it's gonna change :) lol. Its Spring Break week for the kiddos so they are keeping me pretty busy and I'm working on blogs for the site. Good luck with your appts tomorrow, let me know how everything goes.

Husband has been on Herceptin for about 2 months now. His doctor says it's gone through his cancer like a steam roller. He has chemo + Herceptin every week and is down for a few days, but otherwise doing OK. 2 more weeks and it'll be 1 year post diagnosis. :-) Hope you're feeling better, Susie!
Ellen

I'm so happy its working for your husband also. Does he have to do the neulasta shots also for the white blood count? I'm handling the chemo well it just those darn shots but I can deal with the pain for the outcome :) Doesn't seem like we have been together so long on this chat can't believe its been almost a yr for hubby yeah maybe we will still be writing to each other in 10 yrs hehehe Enjoy your day.
Hugs Susie

No neulasta. His issues are usually low red count instead of low white count. Praying for 10 years, and more.

Barbara:
So sorry to hear that everything seems to be going wrong and I'm sure you are very frustrated as I know I would be. Have you been able to talk to your cancer team for some support. You sure are a trooper for having the same surgery twice. My hair and nails did change but now the hair is gone so I don't worry I was lucky just lost hair about a month ago and have been having chemo and radiation for two yrs now. It was falling out bad and doc said I would lose it so I cut it. As for your nails they are probably hard brittle and cracking and some of them are coming off the nail beds. I have read up on this and it is a common side effect to chemo I just keep them cut short seems to be much easier.
Hope you get the frustration so it doesn't get you. When I feel that way I usually try and go for a walk or just get outside and let the fresh air blow through my brain and clear it out some. I even called a scream time one day posted on my facebook at a certain time for all of my friends to just scream. Felt better when I was done :) Hope things get better for you and you can get off the feeding tube at some point. God Bless.
Big Hugs
Susie