• NannyK
    • Experience with Bladder Cancer
    10 months ago
    NannyK's Avatar

    Surgery

    Procedure or Surgery

    Life changing but mansgeable

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    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
    • Nannette
    • Experience with Adenocarcinoma, Bladd...
    12 months ago
    Nannette's Avatar

    Surgery

    Procedure or Surgery

    High and low grade stage 1 tumors. Then temporary inability to pee. Then catheters until flowmax rx’d

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  1. about 1 year ago
    Roadrunner1's Avatar

    Cystostopy

    Procedure or Surgery

    Came home with cathiter & collection bag. Very bloody urine. Had for a week at home after a week in hospital.

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    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. over 1 year ago
    jackkaufl's Avatar

    Procedure or Surgery

    Got my port so start chemo Monday. Will celebrate Thanksgiving with a huge plate of stuffing and gravy which breaks all my dietary r...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. over 1 year ago
    Kblakeave's Avatar

    CT scan

    Procedure or Surgery

    Ct scan of bladder and kidneys normal. Still gotta go for Cystoscopy

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    Went as Expected: Strongly Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Jay
    • Experience with Bladder Cancer
    over 1 year ago
    Jay's Avatar

    Surgery

    Procedure or Surgery

    After about two years of doing BCG treatments, I developed another tumor at the base of my ureter (the ureter is the tube that moves...

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • suelynn
    • Experience with Transitional Cell (Uro...
    over 1 year ago
    suelynn's Avatar

    Surgery

    Procedure or Surgery

    Outcome of surgery was different than what was planned, but has worked out very well for me. Received an ileal conduit and external...

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Patti55
    • Experience with Bladder Cancer
    over 1 year ago
    Patti55's Avatar

    Surgery

    Procedure or Surgery

    Having surgery July 9

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    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • susan1760
    • Experience with Transitional Cell (U...
    over 2 years ago
    susan1760's Avatar

    Kidney removal surgery

    Procedure or Surgery

    In 2017, both of my kidneys started to fail. I had tubes put in both, and eventually they said the right one would be ok, but they h...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • susan1760
    • Experience with Transitional Cell (U...
    over 2 years ago
    susan1760's Avatar

    Radical cysectomy w/ illeal conduit (stoma)

    Procedure or Surgery

    In 2016, I began to lose control of my bladder. Tests showed my bladder was so damaged from radiation, that it had to be removed. (I...

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • susan1760
    • Experience with Transitional Cell (U...
    over 2 years ago
    susan1760's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    I had a port-a cath plced in 2013 when I was first diagnosed with ureathral and vulvar cancer (stage 4). The surgery was "easy" and ...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • Nette1
    • Experience with Adenocarcinoma, Bladder...
    over 2 years ago
    Nette1's Avatar

    Surgery

    Procedure or Surgery

    Prompt removal of bladder tumors, in and out of hospital, was not informed in advance of same day chemo with catheter and go home bag,

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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