1. 7 months ago
    GBMsurvivordad's Avatar

    External radiation

    Radiation

    the side effects still showing up 17 years later

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    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  2. 11 months ago
    LindaPrescott's Avatar

    External radiation

    Radiation

    Radiation was difficult with fatigue and nausea. Symptoms lasts for months after treatment was completed. 30 treatments in six weeks...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Vcas
    • Experience with High-Grade Astrocytoma (a...
    about 2 years ago
    Vcas' Avatar

    External radiation

    Radiation

    more tired after 4 weeks

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Megan75
    • Experience with Medulloblastoma
    about 2 years ago
    Megan75's Avatar

    External radiation

    Radiation

    30 Proton treatments. It’s mentally and physically exhausting.

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    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Deana1
    • Experience with Brain and Spinal Cord T...
    over 2 years ago
    Deana1's Avatar

    External radiation

    Radiation

    Radiation was absolutely painless Most difficult part for me was loosing hair

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Cadubuc
    • Experience with High-Grade Astrocytoma...
    almost 3 years ago
    Cadubuc's Avatar

    External radiation

    Radiation

    Extreme fatigue

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    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • suzbri
    • Experience with Ganglioglioma
    almost 4 years ago
    suzbri's Avatar

    External radiation

    Radiation

    Much greater loss of hair than expected. Fatigue

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    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. over 4 years ago
    MaribelRamos' Avatar

    External radiation

    Radiation

    35 treatments of radiation.

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • RissaRooXx
    • Experience with Intermediate-Grade ...
    over 4 years ago
    RissaRooXx's Avatar

    External radiation

    Radiation

    Proton Therapy. Spots of hair loss, minimal side effects during treatment but a long term impact, as expected, from tissue scarring ...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. over 4 years ago
    Tinabricker's Avatar

    External radiation

    Radiation

    Very tired, confused

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. almost 5 years ago
    Violet_Rose's Avatar

    External radiation

    Radiation

    While the radiation appointments didn't bother him, the after effects have been hard to deal with. Of course, some of that can be du...

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    Painless Experience: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  6. about 5 years ago
    MeToo15's Avatar

    External radiation

    Radiation

    At that time, only Proton Therapy could "kill" a chordoma. On my 5 year exam, was told it was back....and was basically dismissed a...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
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