• asn2212
    • Experience with Diffuse Large B-Cell L...
    over 3 years ago
    asn2212's Avatar

    CAR-T ?

    Decision Point

    Expenses, stage of disease, new country, no insurance - resulted in indecision and eventually not being able to go for it as disease...

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    0 Comments
    • GilDBA
    • Experience with Diffuse Large B-Cell Ly...
    about 4 years ago
    GilDBA's Avatar

    Went for a 2nd Opinion

    Decision Point

    Had PET scan after 3rd cycle of R-CHOP. All lymph nodes were clear some remained in Spleen though much reduced activity. Went for 2...

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    0 Comments
    • stacyuf1
    • Experience with Diffuse Large B-Cell ...
    over 5 years ago
    stacyuf1's Avatar

    getting 2nd and 3rd opinions

    Decision Point

    I had my pathology reviewed by 3 places. two said i had follicular in marrow and DLBCL in base of tongue, one facility said high gra...

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    1 Comment
  1. about 7 years ago
    dirtygoldfish's Avatar

    Back to school

    Decision Point

    I have decided to go back to work. Kids begin school/daycare and I am looking forward to bringing a familiar routine and hopefully a...

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    0 Comments
  2. over 7 years ago
    dirtygoldfish's Avatar

    Wait

    Decision Point

    Once in the hospital, doctors diagnosed hubs with diffuse large B cell lymphoma. A form of non Hodgkin's lymphoma. They were relucta...

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    0 Comments
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    over 7 years ago
    ariez's Avatar

    I decided not to have the last (6th) treatment of chemotherapy.

    Decision Point

    My Petscan showed that the cancer was in remission after my second session of chemo and with the necessary two treatments after that...

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    0 Comments
    • yvonne58
    • Experience with Diffuse Large B-Cell ...
    almost 8 years ago
    yvonne58's Avatar

    Do a stem cell transplant or try Rituxun

    Decision Point

    Since the Rituxun is largely unproved for B-Cell NHL we decided to go the traditional route.

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    0 Comments
  3. about 8 years ago
    WriterJoeyB's Avatar

    Where/How to afford treatment

    Decision Point

    A solid year of unemployment, depressed, broke, and insuranceless, and then a lump appears in my neck. I had difficulty figuring out...

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    0 Comments
    • kiki95632
    • Experience with Primary Mediastinal ...
    over 8 years ago
    kiki95632's Avatar

    Decided to stop Chemo

    Decision Point

    I have been on Chemo for the last 6 months, a combo Rituxan and Treandra. The side effects have been awful. From being so tired I ...

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    0 Comments
    • tnoel68
    • Experience with Diffuse Large B-Cell L...
    over 8 years ago
    tnoel68's Avatar

    2nd Opinion

    Decision Point

    After 8 rounds of chemo, 3 rounds of radiation, we were told by his treating oncologist, that he has exhausted all he can and he was...

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    0 Comments
    • strawny
    • Experience with Diffuse Large B-Cell L...
    over 8 years ago
    strawny's Avatar

    Continue Treatment or Not?

    Decision Point

    Quality Vs Quantity. I was told terminal but I dont give up. Ive been told this before and Im still here

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    0 Comments
    • caipa
    • Experience with Diffuse Large B-Cell Lym...
    over 8 years ago
    caipa's Avatar

    Pursue mom's treatment at MGH

    Decision Point

    We made the decision to commute to Boston so that mom could get the best care possible with highly specialized oncologists and a neu...

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    0 Comments
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