1. almost 4 years ago
    Roadking31063's Avatar

    Surgery

    Procedure or Surgery

    Heart attack in 2010, 2 stents placed in heart. Open heart surgery in Oct. 2017 to repair mitral valve, replaced mitral valve ring &...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
  2. almost 4 years ago
    Roadking31063's Avatar

    Surgery

    Procedure or Surgery

    Had a resection of the tumor within the spinal cord and the syrinx that ran the length of my spine. 10 hour surgery. Needed emergenc...

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. almost 8 years ago
    ependymomamom's Avatar

    Surgery

    Procedure or Surgery

    The one tumor at the base of her brain is blocking spinal fluid. Must have surgery to remove as much as possible. She would only ha...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • rickw11
    • Experience with Ependymoma
    over 8 years ago
    rickw11's Avatar

    Surgery

    Procedure or Surgery

    seven hours for the operation, but very little back pain and quick recovery.

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. about 9 years ago
    BeenThere's Avatar

    Surgery

    Procedure or Surgery

    No longer any tissue left to be able to close with - had to use a plastic surgeon to do a skin graft from his thigh to close the cra...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. about 9 years ago
    BeenThere's Avatar

    Surgery

    Procedure or Surgery

    Running out of options now. Had to travel to Chicago for surgery so new radiation method could be done while he was in surgery.

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  6. about 9 years ago
    BeenThere's Avatar

    Surgery

    Procedure or Surgery

    From age 18 - 23 he had 3 more additional surgeries for same tumor.

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  7. about 9 years ago
    BeenThere's Avatar

    Surgery

    Procedure or Surgery

    Recurrence #7, or 8????? Starting to really impact his quality of life and mental outlook.

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  8. about 9 years ago
    BeenThere's Avatar

    Surgery

    Procedure or Surgery

    Removed tumor yet again. No further treatment at this time.

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  9. about 9 years ago
    BeenThere's Avatar

    Surgery

    Procedure or Surgery

    Dealing w/recurrent malignant anaplastic ependymoma over 3-4 years.

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  10. about 9 years ago
    BeenThere's Avatar

    Surgery

    Procedure or Surgery

    Removed entire tumor according to neuro-surgeon that did all of his surgeries prior.

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  11. about 9 years ago
    BeenThere's Avatar

    Surgery

    Procedure or Surgery

    At the age of 9 my son was diagnosed w/a brain tumor. It was small and slow growing. Surgery was 2 wks after initial MRI.

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
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