• Thess3_13
    • Experience with High-Grade Astrocyto...
    over 8 years ago
    Thess3_13's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Temodar started affecting Dad's platelets and WBC after about 20 days during radiation

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • jazzhead68
    • Experience with High-Grade Astrocyt...
    over 8 years ago
    jazzhead68's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    February 2013: She started treatment with 135MG of Temodar taken daily at home, and radiation Mon-Fri for 6 weeks. The first week wa...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Suzee
    • Experience with High-Grade Astrocytoma (...
    over 8 years ago
    Suzee's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Back on Avastin....my husband had a port-a-cath put in a few months back, so now it is much easier for him to receive his IV Avastin...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Suzee
    • Experience with High-Grade Astrocytoma (...
    over 8 years ago
    Suzee's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    When the tumor grew, the chemo was switched to Avastin, given IV. We opted to continue having all treatments and follow-ups at the ...

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Suzee
    • Experience with High-Grade Astrocytoma (...
    over 8 years ago
    Suzee's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Round 2 of temodar....after the initial round, there was a 2 month buffer and then round 2. The dose was much higher and, after the...

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Suzee
    • Experience with High-Grade Astrocytoma (...
    over 8 years ago
    Suzee's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The initial round of chemo (Temodar) was given in tandem with the radiation (6 weeks: 42 days of Temodar; radiation was 5 days a w...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  1. over 8 years ago
    msfullofhope's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Over the past three months, I have been on the 5 day (per month) temador regiment. I finish the third round tonight (1/13/13). I hav...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • saddee
    • Experience with High-Grade Astrocytoma ...
    almost 9 years ago
    saddee's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Started chemo drug Temodar 10/1.Little to none side effects

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • tervin
    • Experience with High-Grade Astrocytoma ...
    almost 9 years ago
    tervin's Avatar

    Nausea medicine

    Drug or Chemo Therapy

    They started me out with phenegen(sp?) which helped Tuesday - Friday and made me sleep really well. I now take the phen, along with ...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • tervin
    • Experience with High-Grade Astrocytoma ...
    almost 9 years ago
    tervin's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo (Temodar) was done in pill form daily Monday - Friday. I was ill each Monday night for the course of initial treatment. We see...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • jREINHARDT
    • Experience with High-Grade Astrocyt...
    almost 9 years ago
    jREINHARDT's Avatar

    Seizure Control

    Drug or Chemo Therapy

    Currently trying to minimize my level of seizures. Was on 500mgx twice daily of Keppra from surgery, until July with no seizures. ...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    1 Comment
    • jREINHARDT
    • Experience with High-Grade Astrocyt...
    almost 9 years ago
    jREINHARDT's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I have undergone 1x42 of temodor, 5x 5/23 temodor, and I am still participating in clinical trial N0877 (Sprycel- Double blind) Fin...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
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