• Ruthieq99
    • Experience with Inflammatory Breast ...
    almost 3 years ago
    Ruthieq99's Avatar

    Mastectomy

    Procedure or Surgery

    Had bilateral mastectomy, because as my onc. Stated, " Do you really want to do this again?"

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Ruthieq99
    • Experience with Inflammatory Breast ...
    almost 3 years ago
    Ruthieq99's Avatar

    Sentinel lymph node biopsy

    Procedure or Surgery

    Even though second surgery confirmed IBC, surgeon said it wasn't, couldn't be. Took all lymph nodes because first four grossly posi...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Ruthieq99
    • Experience with Inflammatory Breast ...
    almost 3 years ago
    Ruthieq99's Avatar

    Lumpectomy

    Procedure or Surgery

    No clear margins, but dr went on vacation.

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Song4Him
    • Experience with Inflammatory Breast C...
    about 3 years ago
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    PET scan

    Procedure or Surgery

    I went in for a PET scan because my pathology came back bad from my mastectomy. Out of 19 lymph nodes removed,13 showed positive for...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
    • Song4Him
    • Experience with Inflammatory Breast C...
    about 3 years ago
    Song4Him's Avatar

    Mastectomy

    Procedure or Surgery

    Two things scared me more than the surgery and that was getting dye shot into me for the lymph dissection and being put under for th...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Song4Him
    • Experience with Inflammatory Breast C...
    over 3 years ago
    Song4Him's Avatar

    Port Placement

    Procedure or Surgery

    I had a port placed last Thursday. The surgery went very well,it was the first time I had been put under for any reason so I was ner...

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    2 Comments
    • Kelly45
    • Experience with Inflammatory Breast Ca...
    over 3 years ago
    Kelly45's Avatar

    Breast Reconstruction (Flap)

    Procedure or Surgery

    6 months after radiation I had the DIEP flap reconstruction with tissue from my stomach. 16 hour surgery for both breasts. Horrible ...

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    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • FRGMOM
    • Experience with Inflammatory Breast Cancer
    about 4 years ago
    FRGMOM's Avatar

    Double Mastectomy

    Procedure or Surgery

    With Latismus Flap reconstruction and Tissue Expanders

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • irenesf
    • Experience with Inflammatory Breast Ca...
    about 4 years ago
    irenesf's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    and a year later removal of port

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • irenesf
    • Experience with Inflammatory Breast Ca...
    about 4 years ago
    irenesf's Avatar

    Lumpectomy

    Procedure or Surgery

    Lumpectomy, two lymph nodes,

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Kelly45
    • Experience with Inflammatory Breast Ca...
    over 4 years ago
    Kelly45's Avatar

    Double Mastectomy

    Procedure or Surgery

    Psychological side effects and mental and emotional impact to daily life. This affected me more than I imagined it would before surg...

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  1. over 4 years ago
    JackieDuffy's Avatar

    Breast Reconstruction (Implant)

    Procedure or Surgery

    Fatigue and slowly healing

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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