• Hilkei
    • Experience with Mantle Cell Lymphoma
    11 days ago
    Hilkei's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I have to provide an update from my previous experience from when my MCL had just returned and I was put on Calquence. It is a year...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • pklein01
    • Experience with Mantle Cell Lymphoma
    5 months ago
    pklein01's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I have had only one treatment of the Bendamustine plus rituximab so far.

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • Debech
    • Experience with Mantle Cell Lymphoma
    8 months ago
    Debech's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    My husband just completed his 1st round of chemo-Bendeka and immunotherapy-Rituxan. He was really tired after yesterday, took 6 hrs....

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Debech
    • Experience with Mantle Cell Lymphoma
    8 months ago
    Debech's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    1st treatment next week

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
    • Wilson59
    • Experience with Mantle Cell Lymphoma
    12 months ago
    Wilson59's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    58 yr old male diagnosed in 2014 with MCL, w/w til 2016. 6 x rchop/auto sct on mar01, 2017. Currently on rituxamab 3 months x 3 yrs.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Hilkei
    • Experience with Mantle Cell Lymphoma
    about 1 year ago
    Hilkei's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Got the authorization for the chemotherapy. The reason it was so difficult is that the drug I'm on is Calquence specifically for re...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Hilkei
    • Experience with Mantle Cell Lymphoma
    about 1 year ago
    Hilkei's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    June 2016 was the end of my 2 years of maintenance doses of Rituxan. As I indicated it was easy because I had a port, just a few ho...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Nen
    • Experience with Mantle Cell Lymphoma
    over 1 year ago
    Nen's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Haven't started chemo.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  1. over 3 years ago
    bluebirdflys' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    As a 44 year old woman,still young in age,with 4 grandbabies and knowing I have to fight for my life including dealing with the side...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Santana
    • Experience with Mantle Cell Lymphoma
    almost 4 years ago
    Santana's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    May 15th, 16th I I start Chemo, (Rituximab every month, with Rivlimid 20 mg capsules.

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Santana
    • Experience with Mantle Cell Lymphoma
    almost 4 years ago
    Santana's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This was a trail that was offered by City of Hope, Not Car-t but something only they offered. So i went and signed my consent for...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • darracq
    • Experience with Mantle Cell Lymphoma
    over 4 years ago
    darracq's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I am in a trial, and sometimes it makes me feel like a guinea pig. The first year of the trial was rather easy, but now I'm dealing ...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
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