• AUS
    • Experience with Multiple Myeloma
    about 1 year ago
    AUS's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Only side effect has been peripheral neuropathy

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  1. about 1 year ago
    Cypress001's Avatar

    Revlamid

    Drug or Chemo Therapy

    Diarrhea, dizziness, lethargic, no strength, easily tired,

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. about 1 year ago
    JazzQueen's Avatar

    Pomalyst

    Drug or Chemo Therapy

    Also taking Dex.

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  3. over 1 year ago
    lynniepoo's Avatar

    Daratumumab+Pomalyst+Dex

    Drug or Chemo Therapy

    Treatment new since myeloma has returned. In middle of treatment so still feeling side affects.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Debbieo
    • Experience with Multiple Myeloma
    over 1 year ago
    Debbieo's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Started with Revlamid, had to stop after 1st round, continued with valcaid. #’s and markers not lowering at a good rate. 1st round o...

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Charlieb
    • Experience with Multiple Myeloma
    over 1 year ago
    Charlieb's Avatar

    Daratumumab - A monoclonal antibody drug

    Drug or Chemo Therapy

    Started on 12-17-19. 10 hours for infusion due to bad reaction. Note: Pre-Medications must be taken prior to start of infusion to ...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. over 1 year ago
    MiriamMarino's Avatar

    Darzalex, Pomalyst and Dexamethasone - started November 20, 2019

    Drug or Chemo Therapy

    I completed the recommended six months of treatment with Darzalex and am now on maintenance infusion once per month. Dexamethasone a...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. almost 2 years ago
    JimmyNY23's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    many, many types up till now

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • jeffcole
    • Experience with Multiple Myeloma
    almost 2 years ago
    jeffcole's Avatar

    Velcade injections

    Drug or Chemo Therapy

    Velcade shot every 2 weeks. Feel sick for about 6 hours afterwards. Causes neuropathy in hands and feet.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment
    • jeffcole
    • Experience with Multiple Myeloma
    almost 2 years ago
    jeffcole's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Felt sick and achy most of the time. Like having the flu for 3 months.

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Pscott29
    • Experience with Multiple Myeloma
    over 2 years ago
    Pscott29's Avatar

    Drug or Chemo Therapy

    Nothing

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  6. over 2 years ago
    Saturnhartwig's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Revlimid, dexamethasone, velcade, acyclovir, vitamin d, baby aspirin, oxycodone. I am on a two week on one off for revlimid. The De...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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