• LindaT
    • Question about Myelodysplastic Syndrom...
    almost 2 years ago
    LindaT's Avatar

    Why are some doctors so scared of this disease?

    I guess I ask this questions because my husband was just recently in the hospital and the doctor... Read More

    10 Answers - Answer -
    • babygirl50
    • Question about Myelodysplastic Syn...
    almost 7 years ago
    babygirl50's Avatar

    BMB

    Russell had BMB yesterday. We find out the 26th the verdict.....MDS getting worse or Revlimed st... Read More

    6 Answers - Answer -
    • GoodGuyNY
    • Question about Myelodysplastic Synd...
    over 6 years ago
    GoodGuyNY's Avatar

    Stem Cell Transplant

    I am looking for anyone that may have had a successful Stem Cell Transplant. Would like to discu... Read More

    5 Answers - Answer -
    • babygirl50
    • Question about Myelodysplastic Syn...
    almost 7 years ago
    babygirl50's Avatar

    Low platelet count?

    They just called and want to recheck Russell's CBC on Tues. Said his platelets are way down. His... Read More

    4 Answers - Answer -
    • NeilNZ
    • Question about Myelodysplastic Syndrom...
    over 6 years ago
    NeilNZ's Avatar

    what now

    I saw the doctor 2 weeks ago and was given the news and a brochure. At the time my state of mind... Read More

    4 Answers - Answer -
    • maryl
    • Question about Myelodysplastic Syndrome...
    over 6 years ago
    maryl's Avatar

    IPSS-R says high risk, average longevity of 5 months...

    How do I prepare for whatever may come? Bed pads, check, gloves, check. Estate plans, hubby, G... Read More

    4 Answers - Answer -
    • FrenchyP
    • Question about Myelodysplastic Syndr...
    about 2 years ago
    FrenchyP's Avatar

    Dr. said that I have acute MDS, Leukemia of the blood/bones.

    I Have a chance to partake in a trail is this a good Idea? Thank you!

    4 Answers - Answer -
    • Kory
    • Question about Myelodysplastic Syndrome ...
    about 1 year ago
    Kory's Avatar

    Cause?

    This is my first post and I’m not really sure where to start. February 27th, almost 2 months ago... Read More

    4 Answers - Answer -
    • LindaT
    • Question about Myelodysplastic Syndrom...
    4 months ago
    LindaT's Avatar

    Scared

    So it has been awhile since I posted about my husband. Well last year he was in clinical trial a... Read More

    4 Answers - Answer -
  1. over 6 years ago
    VickieGelso's Avatar

    Not a question, but Information for Catholic patients

    Hi...if you are Catholic and like me, have been diagnosed with mds or any of the leukemias, and ... Read More

    3 Answers - Answer -
  2. over 1 year ago
    Chavislynn61's Avatar

    Vidaza

    I have been taking Videos going on 2 years is there anyone that can help me with side affects I ... Read More

    3 Answers - Answer -
    • babygirl50
    • Question about Myelodysplastic Syn...
    almost 7 years ago
    babygirl50's Avatar

    Spouse has MDS over 2 years now

    Spouse is extremely tired all time, doesn't recoup as easy as before. Revelimed keeping RBC arou... Read More

    2 Answers - Answer -
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