• 52leema
    • Experience with Gastrointestinal Strom...
    about 1 year ago
    52leema's Avatar

    Just Diagnosed

    Oh No

    Just diagnosed with GIST in the head of the Pancreas. Dr recommends Whipple procedure and Imatinib. Part of my trouble making a deci...

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    0 Comments
    • Cklanier
    • Experience with Carcinoid tumor, Smal...
    over 2 years ago
    Cklanier's Avatar

    Problem with doctor

    Oh No

    After initial surgery combined with adrenal adenoma removal with adrenal gland. 12.5 cm in size .. Benign.... I was sent to K U Canc...

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    3 Comments
  1. over 4 years ago
    thompsonsaraht's Avatar

    Cancer has spread/Metastasized

    Oh No

    Surgeon only saw localized cancer, but PET scan showed spread to heart and ovaries.

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    0 Comments
    • NancyMc
    • Experience with Gastrointestinal Strom...
    about 5 years ago
    NancyMc's Avatar

    Treatment plan

    Oh No

    Two EUS and no pathology because they can't get tissue due to calcification. EUS and CT measurements are different - CT shows twice...

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    0 Comments
    • Wlevy7768
    • Experience with Adenocarcinoma, Smal...
    over 5 years ago
    Wlevy7768's Avatar

    Being told results of biopsy

    Oh No

    I was told today i have cancer... Scary word felt like i got hit in gut. Ok now more testing

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    0 Comments
    • rosina88
    • Experience with Adenocarcinoma, Small...
    over 5 years ago
    rosina88's Avatar

    Cancer has spread/Metastasized

    Oh No

    Husband's hip shattered, but hospital didn't diagnose for a week while he was stuck in bed at hospital in utter agony. He was trans...

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    0 Comments
    • rosina88
    • Experience with Adenocarcinoma, Small...
    over 5 years ago
    rosina88's Avatar

    Cancer has spread/Metastasized

    Oh No

    On top of the work problems, cancer has spread to the stomach wall. Next up is Folfiri.

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    0 Comments
    • Longlife
    • Experience with Adenocarcinoma, Small...
    over 5 years ago
    Longlife's Avatar

    Misdiagnosed

    Oh No

    December 2013 was told it was "just" ulcers. One month later couldn't eat because of blockage found after multiple procedures/tests....

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    0 Comments
    • WifeofCIPN
    • Experience with Adenocarcinoma, Sma...
    over 5 years ago
    WifeofCIPN's Avatar

    Misdiagnosed

    Oh No

    In the spring of 2015, my husband had a couple of bouts with what he assumed was food poisoning. Once he had eaten at a buffet and t...

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    1 Comment
    • rosina88
    • Experience with Adenocarcinoma, Small...
    over 5 years ago
    rosina88's Avatar

    Work problems

    Oh No

    After starting a new, pill-form chemo, which we thought would help him get back to work, he ends up with chemo brain. Now his work ...

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    0 Comments
  2. over 6 years ago
    PerryLowell's Avatar

    Rectal GIST

    Oh No

    Although my diagnosis is listed as Small Intestine, mine was in my rectum up against the vaginal wall. GIST is not a colo-rectal ca...

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    0 Comments
    • dheller02
    • Experience with Adenocarcinoma, Smal...
    over 6 years ago
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