unicorn6482's Journey with Colorectal (Colon) Cancer

Patient: Colorectal (Colon) Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 5 years ago, Female, Stage IIB

  1. 1
    about 4 years ago
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    Colon surgery (colectomy or hemicolectomy)

    Procedure or Surgery

    Had surgery on March 28, was in hospital for 5 days. Dr said would be 3-4 but has gas pain and that made my stay longer. Removed lymph nodes during surgery and they came back negative...woot. My dr said that was "astonishing" So that was a bright spot. I was off work for 5 weeks. Also had a tumor removed from bladder at same time and had to wear a catheter for 10 days. That was very uncomfortable. That on top of all the pain from my insision was not good.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  2. 2
    about 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I had FLOFOX chemo every other Monday for six months. I has many issues with side effects. Mostly from the drug oxyplatin. I couldn't drink cold liquids for 10 days after treatments, my neutrophil count was very low. Dr had to decrease amounts of drugs on each treatment and I was giving myself shots of Neuprgen 3 days after each chemo treatment. I started having neuropathy during the last 2 treatments and it still hasn't gone away. I am taking medication for that but hasn't helped much. I didn't have alot of fatigue though. I was able to work during chemo.

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    about 4 years ago
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    External radiation

    Radiation

    Had radiation Nov 15 until Dec 21, M-F 25 treatments. Only side effect was diarreha. So was much easier on me than chemo. Was able to work during that treatment also. Finishing radiation before Christmas was awesome, best present I could have gotten!

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    about 4 years ago
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    Low white blood cell counts (neutropenia)

    Side Effects

    the chemo drug oxyplantin caused this side effect. This started after 1st chemo treatment was so low dr decided to postpone that treatment for a week. Next treatment was still low so decreased dosage, It continued to be low so added Neuprign injections. Had to give it to myself, kinda freaked me out at first but got used to it. Was up to 3 injections the week of treatment. My dr said had never seen a case of this side effect this bad. After chemo was finished had me come in for blood test two weeks later to monitor white cell counts then once a month next two months. They were finally up to normal after that!

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  5. 5
    about 4 years ago
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    Nerve damage (peripheral neuropathy)

    Side Effects

    started about 1 month before finishing chemo...didn't know it would still have it after chemo (guess I wasn't asking the right questions). Am taking medication for it. Have been gradually increaseing the dosage but not helping enough yet. Dr told me should decrease over time. It has been very difficult to deal with.

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  6. 6
    about 4 years ago
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    Sensitivity to cold liquids

    Side Effects

    Couldn't drink cold liquids was very painful. Was also painful to touch anything very cold or frozen. I could only drink cold liquids the weekend before my next treatment. This was the worst of all my side effects from chemo.

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  7. 7
    about 4 years ago
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    Finished treatment

    Celebration

    End of chemo was 10/8/12 and my 25th wedding anniversay was on 10/3. So I decided to combine them. We did a weekend getaway two weeks after my chemo ended. Was the first time in a long time we went away for a weekend without the kids. Had a great time.

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  8. 8
    about 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    had port implanted 4/30. was still on medical leave from surgery so that helped my recovery time.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  9. 9
    about 4 years ago
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    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  10. 10
    about 4 years ago
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    Decision Point

    This person has yet to add any details about this experience.

    0 Comments
  11. 11
    about 4 years ago
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    Other Care

    This person has yet to add any details about this experience.

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  12. 12
    about 4 years ago
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    Diagnosed

    Oh No

    I had been having blood in my stool a month or so..went to GI and he decided I should have a colonoscopy. Was nervous about that..had never had one. After the procedure he told me he found a mass in my colon and that I would need to have surgery to remove it and they would do a biopsy. I was scheduled for a PET and CT scans and saw him again a week later. I knew it could be cancer and was very worried and stress out that week. When I saw the GI Dr. he said it was colon cancer and has spread a little bit to my bladder. I was devestated of course. At 47 I thought I was too young to have that type of cancer. So that was the beginning of dr appt for something or another pretty much every week. I hated it.

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  13. 13
    about 4 years ago
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    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  14. 14
    about 4 years ago
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    Removal of port cathater

    Procedure or Surgery

    I just got the port cath out yesterday.....feels a little wierd not having that bump on my chest. Will update my perspective as more time passes

    Went as Expected: Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments