katethegreat's Journey with Brain and Spinal Cord Tumors in Adults

Patient: Brain and Spinal Cord Tumors in Adults

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 4 years ago, Female, Age: 32

  1. 1
    over 4 years ago
    katethegreat's Avatar

    Other

    Oh No

    November 2012 I had what I thought was a horrible migraine. After 5 days of pain, light and sound sensitivity, vision loss, and trips to the ER to help manage the pain and nausea a CT Scan was done revealing a mass in the right frontal lobe of my brain. This was confirmed by an MRI. The tumor has not presented with any symptoms. The pain, nausea, and vision loss were caused by a different contition that presented itself at the same time. Diagnosis: Oligoastrocytoa Stage 2 I spent 3 months recovering from the vision loss and other condition (Pseudotumor cerebri) before having a craniotomy sometime in March 2013.

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  2. 2
    over 4 years ago
    katethegreat's Avatar

    Brain biopsy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    about 4 years ago
    katethegreat's Avatar

    Surgery

    Procedure or Surgery

    Had craniotomy tumor resection for right frontal lobe. Able to have 90% of tumor removed surgically, told there would be a 100% chance I would wake up with weakness and inability to move left arm and leg due to location of the surgery. And an 18% chance this could be a permanent challenge after surgery. We planned on a 3 week hospitalization because of necessary rehab and therapy. I woke up with full movement. Getting staples removed from incision today.

    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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