iluvmykids' Journey with Invasive (Infiltrating) Ductal Carcin...

Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 6 years ago, Female, Age: 56, Stage I, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • iluvmykids
    • Experience with Invasive (Infiltrat...
    over 5 years ago
    iluvmykids' Avatar

    Diagnosed

    Oh No

    Went in for a regular annual mammo, got called back for more views and an ultrasound, still wasn't worried, have gone there before and it was just cysts, but not this time. I never worred about BC cause of no family history, learned that doesn't mean anything really.

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  2. 2
    • iluvmykids
    • Experience with Invasive (Infiltrat...
    over 5 years ago
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    Lumpectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • iluvmykids
    • Experience with Invasive (Infiltrat...
    over 5 years ago
    iluvmykids' Avatar

    Decision Point

    Right now we are deciding on whether or not to do chemo, the oncologist would like to do the Oncotype DX to see how much of a benefit chemo would be. We need to make some phone calls and talk to the oncologist again to see if there are any other benefits to this test (it's expensive and our insurance probably won't pay). Update, we have ordered the Oncotype test, after doing a lot of research, talking to a friend's sister who works in the field of genetics - all the information pointed to so many benefits of doing the test, so we are. Now we are waiting for the results, another few days..... then decision again.

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  4. 4
    • iluvmykids
    • Experience with Invasive (Infiltrat...
    over 5 years ago
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    Decision Point

    We got the results from the Oncotype test back on Friday. My number was 20 which is the bottom of the intermediate range. Not what I was hoping for, but what it boiled down to was a 3% difference with chemotherapy, meaning chemo would help by only 3%, so I decided against it and my husband agreed. After making this decision, that evening the huge knot in my stomach was gone, so I know it was the right decision for me. I started Tamoxifen on Sunday and meet to set up for radiation on Thursday. Onward and upward.

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  5. 5
    • iluvmykids
    • Experience with Invasive (Infiltrat...
    over 5 years ago
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    Hormone therapy

    Drug or Chemo Therapy

    First week of Tamoxifen, so far, cranky and tired are the only real noticeable side effects. My poor family.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  6. 6
    • iluvmykids
    • Experience with Invasive (Infiltrat...
    over 5 years ago
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    External radiation

    Radiation

    Starting 33 treatments of radiation tomorrow. Hoping to stay as active as possible, though everyone says it zaps your energy. Trying to stay positive!

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  7. 7
    • iluvmykids
    • Experience with Invasive (Infiltrat...
    over 5 years ago
    iluvmykids' Avatar

    Finished treatment

    Celebration

    Completed radiation treatments a week ago. I was very lucky to go through radiation with little to no side effects. The last two weeks I experienced some fatigue in the early mornings and late evenings, but otherwise felt normal. The radiation side is red and itchy, but other than that, I can't complain! It's great to have that 2 hours (long commute) back in my M-F days! Feel great, and it wasn't as bad as I anticipated. Although now it feels like it went by fast, it didn't in the middle of it. The radiation techs were super, so that also made it easier to go every day.

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  8. 8
    • iluvmykids
    • Experience with Invasive (Infiltrat...
    over 3 years ago
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    Surgery

    Procedure or Surgery

    Earlier in 2013, I went in for my annual pap. My Dr. decided to do a biopsy because I was on Tamoxifen and I was having irregular periods. It came back as complex endometrial hyperplasia atypia - which is pre-cancerous. So we scheduled a complete hysterectomy for June 12th. I was really nervous about the procedure, so much more than my lumpectomy for some reason. Everything went very well, minimal pain, went back to work in 2 weeks, and now six weeks out, pretty much completely normal except for lifting and exercise. All the pathology was normal - thank goodness. Hoping this is the end of surgery for me for a long long time!

    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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