Amanda57's Journey with Triple-Negative Breast Cancer, Ductal

Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma > Triple-Negative Breast Cancer

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 4 years ago, Female, Age: 60, Stage I

  1. 1
    • Amanda57
    • Experience with Triple-Negative Breas...
    over 4 years ago
    Amanda57's Avatar

    Diagnosed

    Oh No

    I was just in my early 30's and my doctor sent me for an early baseline mammogram because my sister had just gone through breast cancer. I went breezing in there for my first mammogram never dreaming there'd be a problem but then the doctor called and said I'd need to see a surgeon.

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  2. 2
    • Amanda57
    • Experience with Triple-Negative Breas...
    over 4 years ago
    Amanda57's Avatar

    Lumpectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • Amanda57
    • Experience with Triple-Negative Breas...
    over 4 years ago
    Amanda57's Avatar

    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  4. 4
    • Amanda57
    • Experience with Triple-Negative Breas...
    over 4 years ago
    Amanda57's Avatar

    Finished treatment

    Celebration

    I finished treatment and each year for 20 years I've had a clean mammogram until just before Christmas of 2012 and then here I am back at the oh no stage. I must say the biopsy I had last week and the biopsy I went through 20 years ago were as different as night and day. It was so much easier in 2013 and I have to say I celebrate that as well.

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  5. 5
    • Amanda57
    • Experience with Triple-Negative Breas...
    over 4 years ago
    Amanda57's Avatar

    Diagnosed

    Oh No

    So here I am 20 years later and I'm back at the Oh No stage and I'm a different person than the one 20 years ago and my feelings about it now aren't nearly as frightening as it was back then.

    1 Comment
  6. 6
    • Amanda57
    • Experience with Triple-Negative Breas...
    about 4 years ago
    Amanda57's Avatar

    Double Mastectomy

    Procedure or Surgery

    I had my mastectomy and was at the hospital the doctor wanted me to stay another day but left it up to me. It was snowing out and for some reason I felt I had to get home and it was silly of me really I should have listened to the nurses and the doctor but for some reason the snow really made me want to go home and next time I won't let snow have that much power over my decision making process!

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  7. 7
    • Amanda57
    • Experience with Triple-Negative Breas...
    about 4 years ago
    Amanda57's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    They put my port dead center in my chest which makes me a bit of a sideshow when I get a new nurse to access my port. I tell them its dead center in the middle of my chest and they nod their heads politely as if I must be out of my mind and then I open my shirt and there it is and its a surprise every time. I'm sure I'm not the only person like this but evidently the only person they've seen.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Neutral/NA
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  8. 8
    • Amanda57
    • Experience with Triple-Negative Breas...
    about 4 years ago
    Amanda57's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The first type of chemotherapy we tried ended up causing me to have colitis so for several months we'd wait a few weeks and try again and again I'd end up at the ER every day or in the hospital for a few days at a time. This went on until late May and I put my foot down and I said "No more!" I walked away from it all much to the disappointment of all my doctors but I was totally alone and severely ill and I'd hit my breaking point. I took time to let my insides heal up, for me to get my strength back, and to feel strong enough emotionally. Now I've restarted chemo just 2 weeks ago. We've moved on to just the Taxol and I'm doing fine with all of the normal side effects and that I can handle I'm okay with it. I simply needed time to heal up.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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