Laureen's Journey with Endometrial (Uterine) Cancer

Patient: Endometrial (Uterine) Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 5 years ago, Female, Age: 60, Stage IV

  1. 1
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Surgery

    Procedure or Surgery

    Had a D&C because of fibroid tumors.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  2. 2
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Getting the port to work properly was a constant fight, sometime 3 to 4 hrs of trying. Also, the fact that my insurance said it must be done in a hospital caused many hours of just waiting, as there were no chemotheraphy-dedicated nurses. The few (1 or 2) nurses who could do the necessary chemotherapy tasks had to do regular nursing duties, so sometimes we had to wait 45 mins or more for IV changes. An average chemo session began at 10 am & went through until 11 pm or later.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Diagnosed

    Oh No

    Found out I had endometrial cancer & it was Stage IV & it was all over my lungs

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  4. 4
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Pain

    Side Effects

    Severe pain in all of my "long" bones in my body....felt as if someone took a nutcracker to them. Even Oxycodone didn't help.

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  5. 5
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Hair loss (alopecia)

    Side Effects

    Before I bagan chemo, a friend suggested that I get my hair cut kind of short....the loss of shorter hair is less traumatic. It helped. Some days parts of my scalp would hurt & the next morning the hair from that place would be floating in my tub. I found out that not all heads should be bald...Mine is one of them. It was kind of lumpy & splotchy. Thank God I was able to find some nice scarves to wear on my head. I also found that being bald did have advantages...no need to buy all those expensive haircare products or bother with curling irons & blow dryers. Shower was quicker too! My curly, kinky hair grew back straight with a very slight wave. I was thrilled the first time I needed to get a trim!

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  6. 6
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Mouth sores

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  7. 7
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Finished treatment

    Celebration

    Went out for a good lunch & dessert to celebrate.

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  8. 8
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Weight Loss

    Celebration

    I have always been overweight & I now have Type 2 diabetes. I am not very structured nor do I have a lot of self control so dieting was always frustrating. Well, I found the best diet.......Chemotherapy! I lost 45 pounds in a short period of time. Seriously, I don't recommend the Chemo Diet to any one, but it did help me lose weight which in turn lowered my blood sugar & blood pressure. I donated all my too big clothes & bought things that fit. Now, when the pants start getting tight, I know to back off the food & increase the activity.

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  9. 9
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Flu-like symptoms (fever, chills, sweats)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  10. 10
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    External radiation

    Radiation

    The worse part of the procedure was that it took almost 4 hrs from home to radiation to home again. The radiation took about 10 mins from walking into the room & walking out.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Disagree
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  11. 11
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Cancer is back/Recurred

    Oh No

    Symptoms began about 2 months after end of chemotherapy. One tumor in my uterus was back (or still there). Obstinate little bugger.

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  12. 12
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Remission

    Celebration

    8/24/12: PET/CT Scan showed NO cancer in my body!!!!!

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  13. 13
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Cancer is back/Recurred

    Oh No

    12/12: Tumor that was gone from lung is back; 1 cm in size. Surgery is not an option, as more than a 1/3 of my lung would have to be removed because of where tumor is located. More chemo to be done.

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  14. 14
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Trip Cancelled

    Loss

    I had scheduled (in September) a 3-week visit to family (in December) in another state & had to cancel it at the last moment. So looking forward to spending the holidays with my family & it could not be.

    0 Comments
  15. 15
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Side Effect

    Oh No

    Noticed my eyes blurred a day or 2 after having the Avastin drip. It isn't going away & is annoying. I contacted the Avastin 'hotline' & was told that blurry vision is not a common side effect, but it may be leading to blindness. It was suggested I call my chemo dr, who suggested I see an opthamologist asap. Hoping to get an appt Monday, cos I am due to get Avastin again on Thursday. Hope this is no big deal.

    0 Comments
  16. 16
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Do Not Need Neulasta!

    Celebration

    My chemo dr suggested that I get a Neulasta shot 24-48 hrs after my Doxil chemo. I checked it out with my insurance & my cost, after insurance, was roughly $1,000.00. Yup, $1K for 1 shot. I don't even make that much money on disabilty each month. Dr decided to monitor my blood very closely & order the shot only if absolutely necessary & then they will try to get a deal from the maker. I put myself in basic isolation until the end of my chemo session which will be in March.

    0 Comments
  17. 17
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Not going blind!

    Celebration

    When I was told I was going on Avastin, I freaked when I read that blindness can be a side effect; I've always been terrified of going blind. My eyesight got progressively blurry for a few days which caused a frantic call to dr. I was sent to an opthamalogist, who gave me good news: Avastin can cause blurry vision that will get better over time & the major reason for my blurry vision is I AM GETTING OLD! I told her that I used to like her. Have a script for glasses....cheaters aren't good enough anymore.

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  18. 18
    • Laureen
    • Experience with Endometrial (Uterine) ...
    almost 4 years ago
    Laureen's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Have completed 3 doxil & 6 avastin treatments. The side effects have been horrific. After my first doxil treatment, I was in a very dark place....cared about no one & nothing; did nothing; nasty thoughts. My dr increased my psych meds, which helped a little. Fatigue is awful......there's a permanent impression of my butt on the couch & my body on the bed. I developed a nasty, red, hot, painful rash all over my abdomen & in my armpits, between my toes & fingers & my skin rips very easily. The rash burns almost like when you sunburn, but just before the blisters come. Steroid cream & Udderly Smooth Cream help a lot. Advil works somewhat. This is one h3ll of a nasty treatment program. I will find out next week, after my PET/CT Scan, if it did any good. Lord, I hope so! Next week I start on a "kinder, gentler" chemo cocktail Please pray for me.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  19. 19
    • Laureen
    • Experience with Endometrial (Uterine) ...
    about 4 years ago
    Laureen's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Began Doxil 12/26/12. One treatment every 28 days. After the first treatment, I began to have dark moods & exhaustion. Need to rest a lot. Very hard to get motivated. Don't like these side effects......rather have the High Priestess to the Porcelain God side effect; it wasn't 24/7.

    Easy to Do: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments