Marybm's Journey:

Family/Friend: Pancreatic Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Male, Age: 57

  1. 1
    • Marybm
    • Experience with Pancreatic Cancer
    almost 4 years ago
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    Diagnosed

    Oh No

    On July 3rd my Dad told us he had Pancreatic Cancer. He had been feeling bad for a few weeks, pain in his stomach and such. I remember the day like it was yesterday. My brother and I went shopping to pick up some things for the Fourth of July festivities, we randomly ended up buying water balloons. Later, we decided to fill them up and go to our dad's house to play with our little brother and sister (7 & 3). We go over there a lot but usually it is more planned out. This was just a random visit. When we got there my step mom told us dad was upstairs and he would be down soon. We went outside and played with the water balloons. The kids had a blast. When we were done, my dad finally came out. He told my older brother and I that he had to talk to us. The little kids went inside, and my dad, stepmom, and brother all sat down on the back porch. I knew it wasn't going to be good. He hadn't been feeling well and I knew he had been going to the dr trying to figure out what was wrong. But I really wasn't expecting the words "I have Cancer" to come next. I tried, and tired not to cry, but I failed when he said that my little sister probably wouldn't even remember him. He didn't cry but it was the closest I've ever seen him get to it. The conversation didn't last long, no one really knew much at that point. My brother and I went home. I went to my room and cried. Then it was like a switch went off and I was just angry. I was so angry that my strong, caring, wonderful dad was sick, when I know so many people who are just not good people, and they are just fine. And that's how July 3rd ended for me. Sad and Angry.

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  2. 2
    • Marybm
    • Experience with Pancreatic Cancer
    almost 4 years ago
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    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • Marybm
    • Experience with Pancreatic Cancer
    almost 4 years ago
    Marybm's Avatar

    Radiation

    Today is my dads last day of radiation! At least for a couple weeks. He is so excited! I really hope he starts feeling better with this time off. Radiation seemed to be so much easier for him than chemo was, but it still seems to take its toll. The last week or so has been though. He just looks tired and sick. I called him yesterday and he was in bed at 4 o'clock (which is rare for him, even through all of this so far, he has gone to work everyday, not always a full day, but he always goes in), and he just sounded horrible. I told him to just get some rest and call me later, but before I let him go, he reminded me that today was his last day of radiation. He was so excited, even though he sounded horrible, it made me smile. So 2 o'clock today is the last one! at least for a little while.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    • Marybm
    • Experience with Pancreatic Cancer
    almost 4 years ago
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    Other

    Other Care

    After about six weeks of a break from treatment, my dad had to go in and get scanned to see if the radiation did anything. It was a pretty long 48 hours waiting for the results. I just kept praying for good news, even okay news...just not bad news. I still don't know how I feel about what the Doctor had to say. The tumor shrunk a little more, which is good. It is still inoperable, which sucks. They said he will at least be around for at least another year, which is great but I want more than that. They are not going to do anymore treatments right now. They are going to give him blood tests twice a month, because right now his blood shows no cancer signs, and scan him once a month to make sure the tumor doesn't grow. I think he is happy that he doesn't have to go through any more treatments because he wants to do a lot of things this summer, and he wants to feel good. But I kind of feel like "Why aren't we trying to beat this anymore? Why are we just making sure it doesn't get worse, instead of trying to make it go away?" We are still waiting to hear from his other Doctors, I don't know what they will say, but for now this is what is happening. It's not bad. It's not good, but I guess it's okay.

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  5. 5
    • Marybm
    • Experience with Pancreatic Cancer
    almost 4 years ago
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    Other

    Other Care

    Johns Hopkins called my Dad! They are going to try to remove his tumor. I am so excited and so scared! We leave in two weeks and will be there for a month. They think they can remove the portion of his artery that the tumor is on, if they get in and find out that they can't, they are going to at least remove as much of the tumor as possible. We are all really excited and really nervous but it is his best chance!

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  6. 6
    • Marybm
    • Experience with Pancreatic Cancer
    over 3 years ago
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    Surgery

    Procedure or Surgery

    My dad had surgery to remove is tumor! It might have been the longest day of my life, but they got it! I have never felt more relieved than when the nurse came out and told us they got the tumor! It took the doctors about four hours once they started surgery to even decide if they were going to try to remove it since it was wrapped around a vein. The surgeon said everyone told him not to do it, but he did it anyways. And I couldn't be happier he made that decision. After about ten hours of waiting around in the hospital waiting room, the surgeon came out, sat down and said "Well, we hit a home run!" Which couldn't have been more fitting since all day we were talking about "Forget baseball cards, can we get this guys autograph and frame it!" He removed the tumor, did the whipple, and all the tests they did on tumor came back that it was already dead. It has been about a month since the surgery. Recovery seems to be going slow, but it was expected. He was in the hospital for about a week and a half, then he got to go to the hotel for two weeks (we live eight hours away from the hospital) then he got a little dehydrated and such because he was having a hard time eating so he went back to the hospital for about a week, but now he is home! He lost a lot of weight, but is slowly starting to eat more and get out more. It is kind of hard because when the surgery worked, we all got so excited to get our dad back, but the recovery is taking so long, and he is so tired all the time, he seemed to have more energy during chemo. But all in all I cant complain. My dad is alive. And right now, cancer free!

    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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