Rokjhn's Journey with Fibrosarcoma, Adult Soft Tissue Cancer

Patient: Sarcoma - Adult Soft Tissue Cancer > Fibrosarcoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Male, Age: 51, Stage III

  1. 1
    • Rokjhn
    • Experience with Fibrosarcoma, Adult Sof...
    over 4 years ago
    Rokjhn's Avatar

    Hematoma Evacuation

    Procedure or Surgery

    Had a mass in my calf that Doctors initially diagnosed as a simple Hematoma. Decided to have it taken out at the urging of my spouse.

    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. 2
    • Rokjhn
    • Experience with Fibrosarcoma, Adult Sof...
    over 4 years ago
    Rokjhn's Avatar

    Diagnosed

    Oh No

    The surgeon that did the Hematoma Evacuation indicated things looked normal after the surgery, however, he sent the sample to a pathologist just to be certain. Two days later I get the call that I have a Sarcoma i.e. Cancer.

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  3. 3
    • Rokjhn
    • Experience with Fibrosarcoma, Adult Sof...
    over 4 years ago
    Rokjhn's Avatar

    Emend

    Clinical Trial

    Emend is an anti nausea, anti vomiting drug (Fosaprepitant) that has been used for chemo patients for a while now. My clinical trial was to have it via IV on day 1 and Day 4 of chemo. It worked very well (I didn't get it on Round 2 as part of the study) and had it throughout the rest of my treatments. Had very little nausea throughout chemo, other than Round 2.

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  4. 4
    • Rokjhn
    • Experience with Fibrosarcoma, Adult Sof...
    almost 4 years ago
    Rokjhn's Avatar

    Surgery

    Procedure or Surgery

    Had a 6x6x3 inch piece of meat removed from my left calf and was expecting to have skin flap or at a minimum skin graft, however, neither was needed. Spend 3 weeks on crutches, 2 more with a cane, and am now fully ambulatory. Pathology came back with a 99% kill rate on the tumor so I'm now on the 3 month checkup plan. Feeling truly blessed.

    Went as Expected: Disagree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  5. 5
    • Rokjhn
    • Experience with Fibrosarcoma, Adult Sof...
    over 4 years ago
    Rokjhn's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Just finished 6th (and final) round of AIM protocol, Adrymiacin, Ifosfamide, and Mesna. 5 days of chemo followed by two weeks of recovery over the past 4 months. Miserable stuff, but I think my side affects experience wasn't as bad as some. Low blood counts but haven't needed any transfusions or been hospitalized beyond first round. Was able to work 50% off the time

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments