mmoorewia's Journey with Adenocarcinoma, Esophagus Cancer

Spouse/Partner: Esophagus (Esophageal) Cancer > Adenocarcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Male, Age: 68, Stage III

  1. 1
    • mmoorewia
    • Experience with Adenocarcinoma, Esop...
    over 4 years ago
    mmoorewia's Avatar

    Surgery

    Procedure or Surgery

    Complications immediately following surgery resulted in the surgeon taking him back into the operating room, opened him back up, and undid all the reconstruction. He was in ICU for 14 days fighting pnemonia. But once he got passed all that, he started improving and was home for Christmas. I am so grateful for that but also so fearful for what the future will be bringing him. They had to unattach the lower intestine from the part of the esophagus that was not removed. Then they resected that part of the lower intestine. They created an opening (stoma) in his chest and attached the esophagus to it. This was done to "save it" for a future attempt at reconstruction. He is wearing an ostomy bag to collect flem and spit. They also had to remove the spleen due to tears. It was felt that the organ tissue was compromised from the last round of very agressive chemo that was completed about 4 weeks before the surgery. The plan is for him to begin chemo/radiation in approximately 6 weeks. I am not clear on how long this is to be but I believe it is going to be in the neighborhood of 6 weeks (but I could be wrong). After that is completed, he will spend a few months recovering and when the surgeon feels he is healed enough and is in strong enough shape, he will go back in and try the reconstruction again. Chemo/Radiation to begin in about 6 weeks followed by an attempt to redo the reconstrution - possibly in late summer.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    • mmoorewia
    • Experience with Adenocarcinoma, Esop...
    over 4 years ago
    mmoorewia's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    First 5 rounds of chemotherapy, pre-operative, were not as bad as we had anticipated, but it wasn't a piece of cake either. He was profoundly tired and in some pain from the frequent luekine (sp?) shots to stimulate new white blood cell growth. Nausea was well controlled with medication. Never had one incident of vomiting! Wonderful drug!

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • mmoorewia
    • Experience with Adenocarcinoma, Esop...
    over 4 years ago
    mmoorewia's Avatar

    The surgeon told us yesterday that my husband will not be getting the reconstructive surgery in June or July as he originally thought. Since there were 14 lymph nodes out of 47 testing positive they will need to do several PET scans (after treatment ends)

    Oh No

    This is making me me feel as if they are trying to tell us the prognosis isn't as good as they once thought. Both of us are still trying hard to remain positive - just having a slight setback and feeling scared.

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  4. 4
    • mmoorewia
    • Experience with Adenocarcinoma, Esop...
    about 4 years ago
    mmoorewia's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    My husband completed his final round of chemotherapy yesterday. He's feeling quite ragged but all symptoms are being controlled well with medications.He has 5 more radiation treatments and is looking forward to gaining some strength back and praying this is a recovery as his reconstructive surgery depends on it.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    • mmoorewia
    • Experience with Adenocarcinoma, Esop...
    about 4 years ago
    mmoorewia's Avatar

    Completed chemotherapy and radiation treatments.

    Milestones

    The long drive to Cleveland Clinic (98 miles each way) everyday for the past 9 weeks was tiring but is finally over. Now we wait for follow up in May. Scared but full of hope.

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  6. 6
    • mmoorewia
    • Experience with Adenocarcinoma, Esop...
    over 4 years ago
    mmoorewia's Avatar

    Anti-nausea drug

    Clinical Trial

    Excellent experience. This drug is in stage 4 of the trial and is producing excellent results. My husband did not throw up or suffer nausea at all. He had 5 rounds of chemo prior to the initial surgery.

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