RLM's Journey with Intrahepatic, Bile Duct Cancer

Patient: Bile Duct (Cholangiocarcinoma) Cancer > Intrahepatic

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 6 years ago, Male, Age: 64

  1. 1
    • RLM
    • Experience with Intrahepatic, Bile Duct Ca...
    about 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Sick and tired mist of the time.

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    • RLM
    • Experience with Intrahepatic, Bile Duct Ca...
    about 4 years ago
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    Surgery

    Procedure or Surgery

    Attempted resection of liver where tumor was. More cancer found in liver than previously showed up on CT.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • RLM
    • Experience with Intrahepatic, Bile Duct Ca...
    about 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Chemo type changed.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  4. 4
    • RLM
    • Experience with Intrahepatic, Bile Duct Ca...
    about 4 years ago
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    Cancer has spread/Metastasized

    Oh No

    Cancer Metastasized to lungs.

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  5. 5
    • RLM
    • Experience with Intrahepatic, Bile Duct Ca...
    almost 4 years ago
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    Decision Point

    Dr. Told me two weeks ago that the chemo I was currently on was all he had to offer. We decided to increase the dosage. Wrong move. I could not handle it. Spent four days in hospital due to dehydration. I have since told my Dr. No more chemo. I have an appointment at Duke University Medical Center to see if they have any clinical trials to offer.

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  6. 6
    • RLM
    • Experience with Intrahepatic, Bile Duct Ca...
    over 3 years ago
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    no more help can be given. bile duct cancer spread to the lungs. all chemo types have been tried.

    Oh No

    Went to Duke University Medical Center for clinical trial. There for nine weeks. No help. Dr. Advised me to seek hospice help which I have just started. Fluid being drained off my right lung biweekly.

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