hfrench's Journey:
Survivor: Colorectal (Colon) Cancer
Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 8 years ago, Female, Age: 63, KRAS mutation positive: No, BRAF mutation positive: No, Stage II
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Experience Icon Descriptions
Procedure: Drag this icon to show a procedure.
Radiation: Drag this icon to show a specific radiation therapy experience.
Drug Therapy: Drag this icon to show a specific drug therapy experience.
Clinical Trial: Drag this icon to show a clinical trial experience.
Side Effect: Drag this icon to show experience with a specific side effect.
Oh No: Drag this icon to show when something bad happened (e.g., cancer’s back, lost job).
Celebration: Drag this icon to show when something good happened (e.g., last treatment, hair is back).
Loss: Drag this icon to show a time of loss (e.g., lost hair, lost loved one).
Decision Point: Drag this icon to show a time when you had to make a tough decision.
Other Care: Draft this icon to show a time when you needed other care (e.g., hospice, psychotherapy).
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Routine colonoscopy
Procedure or Surgery
Went in for my first colposcopy at age 54. No symptoms, no history of colon cancer in my family. Found a rectal mass low in my colon, surgeon did not think it was cancer but still recommended it be removed.
Removal of rectal tumor
Procedure or Surgery
Surgery itself was a breeze. First 10 days was excruciating during bowel movements. After that no problems.
Rectal mass turned out to be cancer stage II!
Oh No
Was shocked to find out from my surgeon that the mass was, in fact, cancer, was referred to an oncologist.
more surgery, chemoradiation, or wait and see?
Decision Point
Oncologist recommended colon resection to be absolutely sure none of the cancer was left behind or might have gotten into lymph nodes as none were removed. Most likely would have resulted in colostomy as location was low in rectum. After the initial shock wore off I decided no more surgery, but would agree to 6 weeks of chemo/radiation as insurance.
Chemotherapy
Drug or Chemo Therapy
Dragging around the pump was inconvenient, but side effects seemed to be minimal unless they were partly to blame for the pain from radiation.
External radiation
Radiation
Had to stop treatment after 4 weeks because of the pain of radiation/chemo combo. Was going to the bathroom many times a day, diarreah, which felt like acid coming out, just burning. Most painful thing I have ever experienced. Never got an answer as to if this was caused by radiation alone or if the simultaneous chemo was making it worse. Just "everyone is different." Doctor asked me if I would continue two more weeks (as prescribed) if he could help with the pain and I said okay. Even with hydrocodone, numbing creams, etc. etc., after one more week I said I've had enough, just flat out quit and never looked back. Still took another two weeks for the pain to subside.
Finished treatment
Celebration
Finished treatment, three month bloodwork, CT scan and ultrasound all came back clear. Have to go back at one year mark for another colososcopy, feeling GREAT! Really feel like I am DONE with cancer, hope I am right.