jojo12's Journey with Breast Cancer

Patient: Breast Cancer

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: about 10 years ago, Female, Age: 38, Stage IIB, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • jojo12
    • Experience with Breast Cancer
    almost 10 years ago
    jojo12's Avatar

    Axillary Lymph Node Dissection

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  2. 2
    • jojo12
    • Experience with Breast Cancer
    almost 10 years ago
    jojo12's Avatar

    Lumpectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • jojo12
    • Experience with Breast Cancer
    almost 10 years ago
    jojo12's Avatar

    Diagnosed

    Oh No

    I was diagnosed with breast cancer in Octoboer.

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  4. 4
    • jojo12
    • Experience with Breast Cancer
    almost 10 years ago
    jojo12's Avatar

    Other

    Celebration

    I found out a few days ago the results of my genetic test. I am not a carrier of the BRAC1 or BRAC2 gene. I was so relieved b/c I was (still am actually) so scared that I was going to be a carrier and have my chances for recurrance and ovarian cancer jump way high. I know the results are not 100% but it's still such good news to me.

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  5. 5
    • jojo12
    • Experience with Breast Cancer
    almost 10 years ago
    jojo12's Avatar

    Decision Point

    Well I met with my radiation oncologist 2 days ago and he went over my diagnosis and pathology report. He said that even though I had my lumpectomy and lymph node auxillary dissection and had clean margins, he was recommending that I go back for more surgery. Apparently, my margins are only 1mm and even though some doctors are happy with any size of good clean margins, he wants it to be a little bit bigger to be on the safe side. If I have the surgery and get bigger clean margins, my radiation dose wont be as high or as long as if I didnt have the surgery. The radiation oncologist and my surgeon were going to have a discussion about this and wanted to see how I felt about it. He's just worried about anything possible being missed b/c my cancer is already worrysome to him b/c I am so young and it had spread to 2 out of my 17 lymph nodes they removed. I will do anything I possibly can to make sure nothing was left or missed and anything to help from it coming back. This is just stressfull b/c I was supposed to start chemo next week.

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  6. 6
    • jojo12
    • Experience with Breast Cancer
    almost 10 years ago
    jojo12's Avatar

    Lumpectomy

    Procedure or Surgery

    Two days ago, I went in for a re-excision on my lumpectomy. My clean margins the first time were less than 1mm so my oncologist recommended I go in for more surgeryto get a bigger margin. I looked at this procedure as a second chance to make sure nothing was left behind. It also,meant less radiation down the line. I don't ache too much this time around, but that's probably because I had lymph nodes removed with my first lumpectomy. My surgeon said he got everything out that he needed to with no complications. I have my follow up next week and I will know then how big my margins are.

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments