jojo12's Journey with Breast Cancer

Patient: Breast Cancer

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 5 years ago, Female, Age: 34, Stage IIB, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • jojo12
    • Experience with Breast Cancer
    about 5 years ago
    jojo12's Avatar

    Axillary Lymph Node Dissection

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  2. 2
    • jojo12
    • Experience with Breast Cancer
    about 5 years ago
    jojo12's Avatar

    Lumpectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • jojo12
    • Experience with Breast Cancer
    about 5 years ago
    jojo12's Avatar

    Diagnosed

    Oh No

    I was diagnosed with breast cancer in Octoboer.

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  4. 4
    • jojo12
    • Experience with Breast Cancer
    about 5 years ago
    jojo12's Avatar

    Other

    Celebration

    I found out a few days ago the results of my genetic test. I am not a carrier of the BRAC1 or BRAC2 gene. I was so relieved b/c I was (still am actually) so scared that I was going to be a carrier and have my chances for recurrance and ovarian cancer jump way high. I know the results are not 100% but it's still such good news to me.

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  5. 5
    • jojo12
    • Experience with Breast Cancer
    about 5 years ago
    jojo12's Avatar

    Decision Point

    Well I met with my radiation oncologist 2 days ago and he went over my diagnosis and pathology report. He said that even though I had my lumpectomy and lymph node auxillary dissection and had clean margins, he was recommending that I go back for more surgery. Apparently, my margins are only 1mm and even though some doctors are happy with any size of good clean margins, he wants it to be a little bit bigger to be on the safe side. If I have the surgery and get bigger clean margins, my radiation dose wont be as high or as long as if I didnt have the surgery. The radiation oncologist and my surgeon were going to have a discussion about this and wanted to see how I felt about it. He's just worried about anything possible being missed b/c my cancer is already worrysome to him b/c I am so young and it had spread to 2 out of my 17 lymph nodes they removed. I will do anything I possibly can to make sure nothing was left or missed and anything to help from it coming back. This is just stressfull b/c I was supposed to start chemo next week.

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  6. 6
    • jojo12
    • Experience with Breast Cancer
    about 5 years ago
    jojo12's Avatar

    Lumpectomy

    Procedure or Surgery

    Two days ago, I went in for a re-excision on my lumpectomy. My clean margins the first time were less than 1mm so my oncologist recommended I go in for more surgeryto get a bigger margin. I looked at this procedure as a second chance to make sure nothing was left behind. It also,meant less radiation down the line. I don't ache too much this time around, but that's probably because I had lymph nodes removed with my first lumpectomy. My surgeon said he got everything out that he needed to with no complications. I have my follow up next week and I will know then how big my margins are.

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments