Hippo's Journey with Medulloblastoma

Patient: Brain and Spinal Cord Tumors in Adults > Medulloblastoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Female, Age: 38

  1. 1
    • Hippo
    • Experience with Medulloblastoma
    almost 5 years ago
    Hippo's Avatar

    MRI/CAT scans to be done

    Procedure or Surgery

    This week or next I am having testing done to see how I'm progressing. That's good I suppose. Especially since I just want to be finished with everything! To think that I used to get nervous about MRI & CAT scans, now those are cake walks! I'm not sure what other testing they might do besides bloodwork to make sure the cancer isn't spreading and that the chemo & radiation are doing their jobs.

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  2. 2
    • Hippo
    • Experience with Medulloblastoma
    almost 5 years ago
    Hippo's Avatar

    Relationship issues

    Oh No

    When I was diagnosed I was heart broken, I still am. I didn't want to tell anyone but my husband because I didn't and don't want to be a burden to them. I don't want them to worry and stress about me. Lose sleep over me, she'd tears and spend countless hours playing what-if just as I had done. I wanted to shield them. Save them. All of my family and friends. I tried and my husband was patient with me but he kept telling me they had a right to know. I told them & they took it better than I thought. My mom who I thought would take it the worst was actually the best because I was prepared for her. I told her that I knew she wanted to jump in & take charge. I knew she wanted to 'save me' to make me all better but she couldn't this time & we had to do things my way. Family can still be over bearing but their support is amazing and I love them. Their words of encouragement is inspiring. Makes me understand how things have been built & created in the world---you know those amazing awe-inspiring masterpieces that we all stare at with our mouths hanging open because they are so incredible? They were built by people who had really great encouraging families I bet! Of course stand by & I'll share how un-perfect my family is...

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