Lynnb0708's Journey with Sarcoma - Adult Soft Tissue Cancer

Caregiver: Sarcoma - Adult Soft Tissue Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 7 years ago, Female, Age: 82, Stage Recurrent

  1. 1
    • Lynnb0708
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    Diagnosed

    Oh No

    My mom was diagnosed with Angiosarcoma in July of 2010. What started out as a "patch of dry skin" on her scalp (that wouldn't heal); was finally biopsied and diagnosed.

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  2. 2
    • Lynnb0708
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    Surgery

    Procedure or Surgery

    The small patch on her scalp that was to be removed; had spread much MUCH further than originally thought. She had to have a large skin graft done (tissue taken from her upper thigh).

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • Lynnb0708
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    Surgery

    Procedure or Surgery

    While having more surgery performed on her scalp, the doctors also removed a "bump" on her left ring finger. Only to find out from the biopsy that it was spindle cell carcinoma. And it had spread. They had to amputate her finger, reposition the remaining fingers, and also remove more cancer that had spread into the back of her hand.

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • Lynnb0708
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    Surgery

    Procedure or Surgery

    Another sarcoma was found in her left arm. Surgery was performed.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • Lynnb0708
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    External radiation

    Radiation

    Last spring, mom began a course of radiation to her arm.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  6. 6
    • Lynnb0708
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    Surgery

    Procedure or Surgery

    Once again, mom found another (Angio) sarcoma in her left hand. She has had the initial surgery to remove the lump. Unfortunately; her PET scan showed it had again spread. She will be having more surgery to clean up the margins.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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