Ninegirl's Journey with Breast Cancer

Patient: Breast Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 10 years ago, Female, Age: 65

  1. 1
    • Ninegirl
    • Experience with Breast Cancer
    over 5 years ago
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    Diagnosed

    Oh No

    I found a lump in my right breast after a mammagram and it took me a while to go in again because i had lots of cystytis, lumps in my breasts. When I finally went in it was cancer, just under 2cm stage one.

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  2. 2
    • Ninegirl
    • Experience with Breast Cancer
    over 5 years ago
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    Lumpectomy

    Procedure or Surgery

    I had a lumpectomy but then they decided that the "margins" weren't good enough so I had a second surgery. I also had a seminal node surgery to remove lymph nodes under my right arm. That became inflammed and filled with fluid and had to be drained at least three times. After that my recovery began.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • Ninegirl
    • Experience with Breast Cancer
    over 5 years ago
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    External radiation

    Radiation

    I am so glad I didn't let them "tatoo" me. "Oh it will just look like a freckle." Ha! The one tatoo I have is blue and stands out. Anyway I had them draw on me with a magic marker. They said the sensitivity in my breast "could take up to a year" to diminish. Ha! It is 2011 now, four years and my whole breast still feels like tiny pin XXX if I touch it and is crooked. The doctor said it was good compared to others but I think it looks like it has a dart in it.

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • Ninegirl
    • Experience with Breast Cancer
    over 5 years ago
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    Hormone therapy

    Drug or Chemo Therapy

    I took tamoxafen and had minimal side effects, just hot flashes. I did not have to get any chemotherapy because I took a DNA test that deemed my cancer as "non-agressive" and not a candidate for chemo. So, the next two years I was not scanned or checked for metastisis, just given blood tests.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  5. 5
    • Ninegirl
    • Experience with Breast Cancer
    over 5 years ago
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    Cancer has spread/Metastasized

    Oh No

    In 2008, not more than a year after diagnosis I started having extreme back pain. Finally in 2009 my chiropractor said I should get an MRI because he thought I might have a compression fracture due to my osteoporosis. A very sad sad day I found out the cancer was in most of my thorasic spine, I had three fractures and it was also in my liver. Why do doctors not scan their patients as a rule? They would have found it earlier. Mad!

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  6. 6
    • Ninegirl
    • Experience with Breast Cancer
    over 5 years ago
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    Clinical Trial

    I went on a blind clinical trail with Avastin and Femara, an aromatase inhibitor, or placebo and Femara. They unblinded it and it turned out I was placebo. I was relieved actually the more I heard about the side effects of Avastin. I have been stable for two years. At first the tumors shrunk and since then they have not changed.

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  7. 7
    • Ninegirl
    • Experience with Breast Cancer
    over 5 years ago
    Ninegirl's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    At first I was infused with Zometa every six weeks. I didn't know what was happening but now know that it makes me severely depressed, along with a few days of over all body pain. This lasts about two weeks after the infusion. I ended up in psychiatric care hospitalized due to suicidal thoughts and after trial and error I now am on two anti depressants and an anti-anxiety drug.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  8. 8
    • Ninegirl
    • Experience with Breast Cancer
    over 5 years ago
    Ninegirl's Avatar

    Nautropathic, List serve, energy, prayer

    Other Care

    I go to a naturopath and I say "thank the Lord" for her. Oncology is great but when it comes to nutrition or supplementation they do nothing, usually. (The Cancer Treatment Centers of America, where I went after the first diagnosis do though, and I take my cue from them.) Case in point, my naturopath just gave me B supplements that have helped my fibromyalgia muscle pain, mood and all over well being feelings. I get energy healings and am on lots of prayer groups. I am a member of a terrific list serve for metastatic breast cancer patients. They have helped me in so many ways.

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