JAMMS4's Journey:

Family/Friend: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Follicular Lymphoma

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: almost 5 years ago, Male, Age: 73, Stage III

  1. 1
    • JAMMS4
    • Experience with Follicular Lymphoma
    over 4 years ago
    JAMMS4's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    My father starts Chemotherapy January 28, 2013, which will continue in intervals until June, 2013.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  2. 2
    • JAMMS4
    • Experience with Follicular Lymphoma
    over 4 years ago
    JAMMS4's Avatar

    Diagnosed

    Oh No

    In the last month a noticable lump developed in my father's neck, so his physician did a neck biopsy in mid-January, 2013 and the result showed my Dad has Non-Hodgkins Lymphoma (NHL) My father has just been diagnosed with Non-Hodgkin's Lymphoma. This week he had his first appointment with a specialist, they did a chest x-ray which showed developing tumors, but are not yet tumors (not sure if I am using the correct terms/way to describe it). We are waiting for for the results of the CAT Scan/PET Scan. Until then we will not know what stage of Cancer he has etc. They are beginning Chemotherapy on my Dad next week and will continue until June, 2013. I feel strong mixed feelings of this, I am certainly going to do my best to be there for my Dad and give my mom a break (I am the only family member in this area), but worry about balancing things in my life while taking care of my Dad. The main reason I worry about that is I have intractable seizures/Temporal Lobe Epilepsy, which has been dealing with for over 25 years. In 2003, after extensive testing (10 day Video EEG, fMRI, MRI, Neuro-psychological Evaluation, WADA Test etc..) I had brain surgery (Temporal Lobectomy). Unfortunatley the outcome of the surgery was not as doctors predicted, I am no longer able to work (especially because of the mild brain damage (frontal lobe dsyfunction) the surgery caused and I am still having seizures, I am on SOcial Security Disability Income. I even went to rehabilitation at National Rehabilitation Hospital (NRH), in Washington DC, after the surgery, in hopes that would improve the areas that effected my ability to work, enough to be able to work at least part-time. The doctors at NRH after several months of rehab (such as cognitive remediation) determined that I needed to learn to accept my new lifestyle and am unable to work. I want to be there for my Dad while he is going through treatment for Cancer, and in my heart and mind feel willing to do anything and everything to save his life and make him feel better, but realistically worry about how much I am capable of doing for my Dad, because of my low energy level (which I take prescription medication for daily), days I am very active I am extremely likely to have seizure(s) and stress increases my seizures. Also, in December, 2012 I got engaged and live with my fiance', now I have to figure out how to balance my life with my fiance' and being there for my Dad (and Mom), during my Dad's treatment... and also getting my parents to not worry about me and my health and let me be active in taking care of them. I am hoping to find services that help with even small things in life, to help save energy for the important things, taking care of my Dad, making sure my mom is mentally ok and taking care of myself, my fiance, my parents house and my home (including my 2 toy poodles). Are there any services for Cancer patients while in Chemotherapy such as housecleaning, providing prepared/pre-prepared meals that are free or extremely cheap (I do not have much of an income living on SSDI, then also my fiance' and I are trying to save for a wedding and buying a home closer to my parents (which will help me be able to get to my parents whenever needed, I am unable to drive because of my uncontrolled seizures) My fiance' owned the townhouse he and I live in when we met, is there any chance there is any sort of program that includes Northern Virginia area that helps someone like myself (caregiver of parent with Cancer/Permanently Disabled Citizen) sell and find new home close to public transportation and within access by public transportation to get to my parents? This diagnosis is so new and we are still waiting for more details of the NHL including what stage, I am overwhelmed, combination of sad and mad.., worried about losing my Dad, how my Mom is going to deal with this (throughout their 48 years married, my Dad has always been my mom's rock). My Dad and Mom have always been very active in the community and helping others, my mom is a retired social worker and my Dad is a retired teacher. After they retired they both took on volunteering for the community, borth of them atleast twice a week volunteer at a food pantry for homeless, my Dad was voluntarily teaching inmates in a local jail, helping them earn their G.E.D. or College Degree (as statistics show education is one of the things that helps prevent citizens from committing crime/getting in trouble with law). My mom has been active in county programs for low income programs, including a volunteer on the board of a low income senior citizen home/nursing home. With all the good things my parents have done helping others and the support and love they gave me and my brother, it makes me mad to see such a thing happen to my Dad. I fear how this will effect my parents future and for me most of all I want my Dad to be able to walk me down the aisle at my wedding (which is being postponed while he has chemo, then my fiance' will determine what is best so my Dad is there) and that he is able to enjoy my Wedding and see I am in a good place with a wonderful loving man for life. Any recommendations, or anyone who has experienced anything like me or even just hearing people's experience of chemo and what to expect, resources/help for cancer patients receiving chemo etc. is much appreciated. My best wishes to everyone who has or currently is battling cancer and/or any other medical changes.

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