braintumorz's Journey with Intermediate-Grade Astrocytoma
- 1 Oh No Icon Oh No
- 2 Loss Icon Loss
- 3 Loss Icon Loss
- 4 Procedure or Surgery Icon Procedure or Surgery
- 5 Celebration Icon Celebration
- 6 Radiation Icon Radiation
- 7 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 8 Other Care Icon Other Care
- 9 Oh No Icon Oh No
- 10 Decision Point Icon Decision Point
- 11 Side Effects Icon Side Effects
- 12 Other Care Icon Other Care
- 13 Other Care Icon Other Care
- 14 Celebration Icon Celebration
- 15 Drug or Chemo Therapy Icon Drug or Chemo Therapy
Survivor: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > Intermediate-Grade Astrocytoma
Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 8 years ago, Female, Age: 31
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Experience Icon Descriptions
Procedure: Drag this icon to show a procedure.
Radiation: Drag this icon to show a specific radiation therapy experience.
Drug Therapy: Drag this icon to show a specific drug therapy experience.
Clinical Trial: Drag this icon to show a clinical trial experience.
Side Effect: Drag this icon to show experience with a specific side effect.
Oh No: Drag this icon to show when something bad happened (e.g., cancer’s back, lost job).
Celebration: Drag this icon to show when something good happened (e.g., last treatment, hair is back).
Loss: Drag this icon to show a time of loss (e.g., lost hair, lost loved one).
Decision Point: Drag this icon to show a time when you had to make a tough decision.
Other Care: Draft this icon to show a time when you needed other care (e.g., hospice, psychotherapy).
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Diagnosed
Oh No
It's the end of my life! I'm going to die!
My mind/Sense of Humor
Loss
SO scared. Had to wait for family to arrive after hearing the bad news alone.
Job
Loss
This person has yet to add any details about this experience.
Surgery
Procedure or Surgery
Craniotomy. Couldn't walk or use the bathroom for weeks.
Breakthrough
Celebration
Made it through craniotomy and gained back my strength.
Proton Radiation
Radiation
About halfway through I lost my hair in front of my scar and became very fatigued in my daily life.
Chemotherapy
Drug or Chemo Therapy
Temodar pills at 120 mg dose daily. Took anti-nauseal (Zofran) and took Lactulose to combat constipation. Didn't notice side effects.
Genetic Counseling
Other Care
I went to a geneticist and they tested for the P53 gene mutation. Cancer has run in my mother's side of the family.
Gene mutation
Oh No
I found out I have Li-Fraumeni Syndrome, which makes me 25 times more likely to get soft tissue cancers.
Should I move forward with radiation/chemo?
Decision Point
I felt like after my gene mutation was known that I had a death sentence. I wasn't sure whether going through my current treatments was worth it.
Depression/Anxiety
Side Effects
This person has yet to add any details about this experience.
CAM (Complementary and Alternative Medicine)
Other Care
Massage, reflexology, chiropractics
Psychosocial
Other Care
After feeling suicidal, I reached out more and got psychological help from many different sources.
Finished treatment
Celebration
Radiation was finished on January 11th.
Chemotherapy
Drug or Chemo Therapy
For the next six months, I will be taking 300 mg of Temodar 5 days per month.