catsmeow's Journey with Leiomyosarcoma

Patient: Endometrial (Uterine) Cancer > Leiomyosarcoma

Patient Info: Prefer not to answer/not applicable/unsure, Diagnosed: over 5 years ago, Female, Age: 61, Stage IV

  1. 1
    • catsmeow
    • Experience with Leiomyosarcoma
    over 4 years ago
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    Diagnosed

    Oh No

    found bleeding after menopause.

    0 Comments
  2. 2
    • catsmeow
    • Experience with Leiomyosarcoma
    over 4 years ago
    catsmeow's Avatar

    Surgery

    Procedure or Surgery

    Total hysterectomy.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  3. 3
    • catsmeow
    • Experience with Leiomyosarcoma
    over 4 years ago
    catsmeow's Avatar

    Work problems

    Oh No

    I used up all family medical leave time for the hysterectomy. The company told me that if I couldn't come back FULL time with no restrictions I was terminated.

    1 Comment
  4. 4
    • catsmeow
    • Experience with Leiomyosarcoma
    over 4 years ago
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    gemzar/docetaxel/avastin or placebo

    Clinical Trial

    Had to reduce gemzar dose as I was becoming short of breath. Finally dropped out of trial for health reasons and met growth.

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  5. 5
    • catsmeow
    • Experience with Leiomyosarcoma
    over 4 years ago
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    Taste change/loss

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • catsmeow
    • Experience with Leiomyosarcoma
    over 4 years ago
    catsmeow's Avatar

    need to decide next course of treatment.

    Decision Point

    temodar is the drug of choice.

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  7. 7
    • catsmeow
    • Experience with Leiomyosarcoma
    over 4 years ago
    catsmeow's Avatar

    Health insurance issue

    Oh No

    temador use DENIED by insurance.

    0 Comments