blinky414's Journey with Acute Lymphocytic Leukemia (ALL)

Caregiver: Leukemia > Acute Lymphocytic Leukemia (ALL)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 4 years ago, Female, Age: 8

  1. 1
    • blinky414
    • Experience with Acute Lymphocytic Le...
    about 4 years ago
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    Diagnosed

    Oh No

    When my daughter was diagnosed with Leukemia I felt my world collapse. But I had to be strong for her and that's how my husband and I have been since January 3rd, 2013.

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  2. 2
    • blinky414
    • Experience with Acute Lymphocytic Le...
    about 4 years ago
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    Bone marrow biopsy and Spine tap

    Procedure or Surgery

    This was the first time our daughter had to be sedated for her procedures. It was so hard to look into her eyes and to tell her she was going to take a short nap. We reassured her we would be waiting for her once she woke up. These were her first procedures which determined exact diagnosis.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  3. 3
    • blinky414
    • Experience with Acute Lymphocytic Le...
    about 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    This was her first chemo medication and I was so scared because I didn't know what to expect. Since she didn't have a port it had to be given to her through IV. The dosage was given to her slowly and carefully which made me feel at ease.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    • blinky414
    • Experience with Acute Lymphocytic Le...
    about 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    Sophia was scheduled to have port placed so she couldn't eat. Unfortunately, her platelets were too low for the procedure so she had to have a platelet transfussion before the procedure. This had to have been the longest day because she was unable to eat. Late afternoon her platelets will still low and decided to give her another transfussion just before the procedure. Finally, we headed to the operating room and had to wait for another hour. Sophia was scared and wanted to go back to her room. My husband and I tried calmed her down by telling her she was going to take another nap and that should would have food waiting for her when she woke up. The procedure wasn't very long but felt long to us. Finally, around 8pm, my Sophia was able to eat!!!

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  5. 5
    • blinky414
    • Experience with Acute Lymphocytic Le...
    about 4 years ago
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    Fatigue (tiredness)

    Side Effects

    Sophia is very active and to see her so tired is hard to get used to. The more I spoke to the nurses and doctors I understood fatigue would be common.

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