anetnut's Journey with Inflammatory Breast Cancer

Survivor: Breast Cancer > Inflammatory Breast Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 7 years ago, Female, Age: 58, Stage IIIB, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • anetnut
    • Experience with Inflammatory Breast Ca...
    over 4 years ago
    anetnut's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    While I was very glad I had this done (and I still have it in place in case God forbid I ever need it again) I was not expecting him to hit a nerve or whatever he hit when he used the guidewire to put that thing in. He hit that spot twice and I about came off the table. I was glad to get it over with. I mean, there are much worse things, but I just wasn't expecting to get zinged like that a couple of times.

    Went as Expected: Disagree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  2. 2
    • anetnut
    • Experience with Inflammatory Breast Ca...
    over 4 years ago
    anetnut's Avatar

    Diagnosed

    Oh No

    Diagnosed in June of 2010. Don't EVER put off getting a mammogram, for ANY reason. They are not scary at all. I knew I should have done something way before that when I saw symptoms that I didn't like.

    0 Comments
  3. 3
    • anetnut
    • Experience with Inflammatory Breast Ca...
    over 4 years ago
    anetnut's Avatar

    Double Mastectomy

    Procedure or Surgery

    I was fortunate enough to have an easier time during this than I ever thought I would. Having never had surgery that required me to be put to sleep, the dread was worse than the surgery. I never even had to take anything at all for pain relief. It was minimal discomfort and I was very surprised at how well it all went.

    Went as Expected: Disagree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  4. 4
    • anetnut
    • Experience with Inflammatory Breast Ca...
    over 4 years ago
    anetnut's Avatar

    External radiation

    Radiation

    Since I had to go 5 days a week for this and I work 12 hour night shifts, I did go on a leave from work while I had this done. The only problem I had was holding my arm up in the position they needed for such a long time. It got to be a bit uncomfortable, especially on my shoulder. I was glad I took off for radiation. I seemed to be very tired during it. I continued to work through my chemotherapy, which wasn't easy, but doable.

    Painless Experience: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  5. 5
    • anetnut
    • Experience with Inflammatory Breast Ca...
    over 4 years ago
    anetnut's Avatar

    Finished treatment

    Celebration

    I finished up everything in March of 2011. 9 months of treatment. And here I am nearly 2 years later, still cancer free. Thank you God for each and every day! I pray for those still fighting the fight. It is not an easy road.

    1 Comment
  6. 6
    • anetnut
    • Experience with Inflammatory Breast Ca...
    over 4 years ago
    anetnut's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Also had Neulasta and nausea drugs. Emend was a lifesaver for me for stopping nausea before it even thought about starting up again. Although I must say that it wasn't as bad as I thought it would be. Only in hospital one time when I ended up with C-diff and a white count that barely registered. That was the worst I felt.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments