CrazyHarry's Journey:

Patient: Colorectal (Colon) Cancer > Adenocarcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 4 years ago, Male, Age: 58, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage IIA

  1. 1
    • CrazyHarry
    • Experience with Adenocarcinoma, Col...
    about 4 years ago
    CrazyHarry's Avatar

    Diagnosed

    Oh No

    Poopie problems and an abnormal poop test led to a colonoscopy. Icky stuff up my butt.

    0 Comments
  2. 2
    • CrazyHarry
    • Experience with Adenocarcinoma, Col...
    about 4 years ago
    CrazyHarry's Avatar

    External radiation

    Radiation

    Driving 50 miles round trip for 30 days will be a major drag

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • CrazyHarry
    • Experience with Adenocarcinoma, Col...
    about 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Easy to take pills.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  4. 4
    • CrazyHarry
    • Experience with Adenocarcinoma, Col...
    about 4 years ago
    CrazyHarry's Avatar

    Cancer is shrinking

    Celebration

    I finally popped today. Many times and very productive!!! Yahoo!!!

    0 Comments
  5. 5
    • CrazyHarry
    • Experience with Adenocarcinoma, Col...
    almost 4 years ago
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    Finished treatment

    Celebration

    Finished treatment phase 1, the neo-adjuvant chemo radiation. My kidney's gave out 3 days before the end, but they on the mend.

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  6. 6
    • CrazyHarry
    • Experience with Adenocarcinoma, Col...
    almost 4 years ago
    CrazyHarry's Avatar

    Breakthrough

    Celebration

    And the flood gates have opened wide. No more constipation for me! Yee Haw!!!! Three (3) whole days on non-stop pooping!!!

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  7. 7
    • CrazyHarry
    • Experience with Adenocarcinoma, Col...
    almost 4 years ago
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    Surgery

    Procedure or Surgery

    Only 12 hours out of surgery on my rectal cancer. The most talented surgeon was able to do the who procedure with a laparoscope. Went so much better than expected. Only 2-3 days in hospital. Most amazing!!

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  8. 8
    • CrazyHarry
    • Experience with Adenocarcinoma, Col...
    almost 4 years ago
    CrazyHarry's Avatar

    Removal of rectal tumor

    Procedure or Surgery

    Surgery update continued. My urine plumbing was inoperable after surgery. Today after suffering some intense pain from the Foley, it was removed. All plumbing fully operational. Peeing on the toilet seat again.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  9. 9
    • CrazyHarry
    • Experience with Adenocarcinoma, Col...
    almost 4 years ago
    CrazyHarry's Avatar

    Home care

    Other Care

    Life with ostomy has not been good. Been only a week with multiple leaks and equipment failure. Time to check out another system.

    0 Comments
  10. 10
    • CrazyHarry
    • Experience with Adenocarcinoma, Col...
    almost 4 years ago
    CrazyHarry's Avatar

    Bladder problems

    Side Effects

    Been 3 weeks tomorrow since surgery. What started out as a very upset bladder and urethra over being zapped 28 times trend into a very upset bladder that first didn't want to empty. So in goes the foley cath. Further upsetting my poor bladder which was right in the middle of my surgery. After multiple foley carbs and straight caths, it has become infected with a raging UTI. Will my urinary tract ever forgive me?

    0 Comments
  11. 11
    • CrazyHarry
    • Experience with Adenocarcinoma, Col...
    almost 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    When they were implanting my port they hit the artery instead of the vein. What ever they used to stop the bleeding has caused a very large pain in my neck. Grrrrrr

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  12. 12
    • CrazyHarry
    • Experience with Adenocarcinoma, Col...
    over 3 years ago
    CrazyHarry's Avatar

    And we are done!

    Side Effects

    Cancer free and heading home from the hospital. Yahoo

    4 Comments
  13. 13
    • CrazyHarry
    • Experience with Adenocarcinoma, Col...
    about 3 years ago
    CrazyHarry's Avatar

    Symptom Management

    Excrutiating pain in the rear. Had my takedown about a month ago which went well until I go a C. Diff infection. Spent a few weeks in the hospital on vancomycin and flagyl and pooping everywhere in site. After 10 days turned the corner and home. Now I poop 6-12 timed a day and the area around my anus has become extremely sore to a point of bleeding. I've use all manner of barrier cream without luck can someone out there make a recommendation so I once again be a happy pooper.

    3 Comments
  14. 14
    • CrazyHarry
    • Experience with Adenocarcinoma, Col...
    about 3 years ago
    CrazyHarry's Avatar

    Oh No

    Went for my annual physical last week. First the doctor thought my PSA was riding too fast. Test showed that it dropped to normal levels. Then the doc found something on my thyroid. Went for an ultrasound and the results were not good. I have a large nodule that appears to be abnormal. Off to the endocrinologist for further evaluation. Surfing the net didn't come up with much positive.

    3 Comments