SharonG's Journey with Mantle Cell Lymphoma

Patient: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Mantle Cell Lymphoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Female, Age: 47, Stage IV

  1. 1
    • SharonG
    • Experience with Mantle Cell Lymphoma
    over 4 years ago
    SharonG's Avatar

    Bone marrow biopsy , lymph node biopsy for diagnosis

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  2. 2
    • SharonG
    • Experience with Mantle Cell Lymphoma
    over 4 years ago
    SharonG's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Currently having rchop and white blood cell injections .

    Easy to Do: Not Specified
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  3. 3
    • SharonG
    • Experience with Mantle Cell Lymphoma
    over 4 years ago
    SharonG's Avatar

    Fatigue (tiredness)

    Side Effects

    Side effects after 1st treatment were nausea , vomiting , which was rectified with stronger anti nausea medication in the drip . Numbness in the fingers and feet . Very sore mouth , which went pale in colour , this has improved by day 7 . Taste changes , extreme fatigue . And hunger after day 5 , when the steroids were finished , I was starving !! I ave put on some weight .

    0 Comments
  4. 4
    • SharonG
    • Experience with Mantle Cell Lymphoma
    over 4 years ago
    SharonG's Avatar

    Drug or Chemo Therapy

    I'm currently on r chop 14 day, hopefully my white cell blood count will be up in time for the second dose of chemo next week . My gums now have a nice pink colour , so fingers crossed that this is a sign I'm recovering well , as a few days ago my mouth was so sore and pale , it looked horrible .

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. 5
    • SharonG
    • Experience with Mantle Cell Lymphoma
    over 4 years ago
    SharonG's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    R chop and white blood cell injections ( to stimulate the marrow into making more cells ) can think of the name ATM

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  6. 6
    • SharonG
    • Experience with Mantle Cell Lymphoma
    over 4 years ago
    SharonG's Avatar

    Oh No

    I have a lap band which I hadn't been to my specialist in 2 years ( slack I know ! ) anyway I had difficulty swallowing food and drink , that was the first week in November 2012 . So I went to my specialist , she loosened off my band slightly so I could heal my oesophagus, as it was very inflamed . The next couple of days , I had what I thought was a gall bladder attack , it felt like a heart attack . An ultra sound was ordered and blood tests . We found my spleen was enlarged 6x the normal size , and my platelets were low 117 , the range is 150-400. And I tested positive for mono ( glandular fever in the past , I had no idea I ever had it ) a ct with contrast was then done the following week . This show indicative of lymphoma , in the neck , armpits, groin. 2 days later , a lymph node was excised from the groin for diagnosis . This showed Mantel cell , non Hodgkin's lymphoma . I then had a bone marrow biopsy , I have some in the bone marrow too , a sprinkling as my oncologist Dr Ding said . This all happened during the Christmas period , now having R chop 14 days , ready for my 2nd treatment this week .

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