tigertk62's Journey with Head & Neck/Throat Cancer

Patient: Head & Neck/Throat Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 6 years ago, Female, Age: 55

  1. 1
    • tigertk62
    • Experience with Head & Neck/Throat C...
    almost 6 years ago
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    Diagnosed

    Oh No

    After almost two years of "allergy" symptoms and increasing headaches, a trip to the ENT revealed a squamous cell, cancerous tumor that had destroyed my nasal septum.

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  2. 2
    • tigertk62
    • Experience with Head & Neck/Throat C...
    almost 6 years ago
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    Surgery

    Procedure or Surgery

    My incredibly talented ENT surgeon was able to remove the tumor (5.7x1.2x1.7), the cribriform plate and attached dura,(repair the dura),and get clean margins in one procedure! The secondary open crainotomy planned for the following week was no longer necessary, because the ENT was able to do the complete removal and repair by endoscopy.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • tigertk62
    • Experience with Head & Neck/Throat C...
    almost 6 years ago
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    Body part/function

    Loss

    I will not be able to smell anything, ever :( Taste is limited to sweet, salty, bitter and sour. Luckily, I have a good imagination, and "remember" what lots of things smell and taste like. Still, it is a bit distressing.

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  4. 4
    • tigertk62
    • Experience with Head & Neck/Throat C...
    almost 6 years ago
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    Other

    Celebration

    No need for crainotomy!

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  5. 5
    • tigertk62
    • Experience with Head & Neck/Throat C...
    almost 5 years ago
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    External radiation

    Radiation

    Proton therapy. Much better than "regular" radiation, but was not fun. Completed in March 2011.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  6. 6
    • tigertk62
    • Experience with Head & Neck/Throat C...
    almost 5 years ago
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    Other

    Side Effects

    mouth sores, blisters and weeping of eyes and residual lymphadema.

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  7. 7
    • tigertk62
    • Experience with Head & Neck/Throat C...
    almost 5 years ago
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    Finished treatment

    Celebration

    This person has yet to add any details about this experience.

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  8. 8
    • tigertk62
    • Experience with Head & Neck/Throat C...
    almost 5 years ago
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    clear scans and my birthday in June

    Celebration

    clear scans in June! Tear duct seems to be opening up on it's own. "saddling" seems to be stable

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  9. 9
    • tigertk62
    • Experience with Head & Neck/Throat C...
    almost 5 years ago
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    PT

    Other Care

    PT for facial lymphedema~m uch better

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